Cystic Fibrosis Forum (EXP)

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  1. C

    New Job

    I don't want to jinks this......so anti jinks vibes are being sent while I write this!!!!! @@@@######anti-jinks#####@@@@@ @@@@######anti-jinks#####@@@@@ My husband was offered a job yesterday and everything is sounding really good. They're in negotiations today, and they want him to sign the...
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    Yummy Snacks?

    Sometimes I draw a blank when I go grocery shopping and I'm trying to think of snacks. <b>Please list your staple high calorie snacks</b>, so I can add to my regulars. Here's what I typically get: 1. peanut butter and celery sticks 2. potatoe chips 3. nachos 4. donughts 5. cheese and...
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    Best Companies to Work for?

    Hello, I have a question and I'd love to get as many responses as possible on this one. Fyi, I posted this on the adult board too. Here's the deal, my husband is looking for a new job and my hopes would be for him to find the perfect job PLUS have it offer great insurance coverage. This goal of...
  4. C

    America's Got Talent

    I'm liking america's got talent. Funny stuff. I know IceFisherman, you're watching it too. Pretty entertaining!
  5. C

    Ultimate Fighter

    My husband and I love watching Ultimate Fighter and can't wait to see the PayPerView tomorrow, Sat, with the fight between Tito and Mr. Team Shamrock!! Anyone else? Gory I know, but love it.
  6. C

    Best Companies to Work for?

    Hello, I have a question and I'd love to get as many responses as possible on this one. Here's the deal, my husband is looking for a new job and my hopes would be for him to find the perfect job PLUS have it offer great insurance coverage. This goal of mine just came up in conversation with him...
  7. C

    Stop Working

    For those of you who have stopped working, what were the defining reasons for you? Is it recommended to stop before you're really bad? I wonder if it's best to stop work before you get too bad so you can spend that time exercising and focusing your energy on improving your health, in a full...
  8. C

    Lung Damage

    I was wondering whether having the majority of lung damage is worse on the upper or lower lobes, or does it matter? Do we use all areas of our lungs the same and therefore it doesn't matter where the damage is?
  9. C

    CF Pregnant Women

    Just curious about everyone's fev1 at the time you decided to get pregnant, and then what it went down to after birth. Can we make a running list, please? The other pregnant threads just got me thinking is all. I'm not in the market to start or anything, but I'm curious how everyone's lung...
  10. C

    Another drug question.

    Just wondering if anyone has been on Amikacin IV? Apparently it's a med used to treat TB, eventhought I don't have that, they're hoping this will work to clear things up...and I actually believe it's working. Last night my hearing went out in my right ear 3 different times for about 10...
  11. C

    Gorillas in Africa?

    Just wondering if anyone has been to the Congo in Africa and hung out with the gorillas on a tour or something? I recently saw Saguerney Weaver return to the Congo, for the first time since filming Gorillas in the Mist, on Animal Planet. I was super excited to learn the the gorilla popluation...
  12. C

    80s Music - wow

    Okay, I'm sitting here in my hospital room and there's this super loooong commercial on the 80's top hits ("80s Gold Collection!), and I'm loving all of them!!!! Maybe I'm just too tired, but I can't wait to get home so I can go buy this cd. How funny... Rossanna Keep on loving you waiting...
  13. C

    Another Port Question

    I got my port placed Monday and it's healing well I guess. I'm still getting to use the whole thing b/c it certainly doesn't feel natural yet. My question is does anyone have theirs where they can see the cathedar going from the port area up to the jugular neck area? I didn't hear anyone...
  14. C

    UC Davis CF Adult Center

    Hello, I'm looking to get out of the hospital Monday. My main doctors and the hospital I go to is in LA, but I live in No. Cal, in Truckee. Truckee is inland from Sacramento about 1.5 hrs. What I'm needing to do for the first time is: 1. Find a Home Nursing company around Sacramento or...
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    Ports

    For the people who have a port, do you like it a lot? Was it a relief to not deal with peripherals and PICC any longer? I read an old thread started from Emily about best places to put a port. I learned a lot from that thread, it was great! I've decided to go with a port. Hopefully it'll be...
  16. C

    Things to do in the hospital.

    Aside from reading books, is there anything people have found or discovered to make hospital stays a little less sucky? I was hoping we could add to a list of things to try and give others ideas of what to bring to make your stay a little more enjoyable. And if books are the way to go, then...
  17. C

    Cipro and Sinuses

    I haven't taken Cipro in so long now, that I don't remember the details except that it used to help my lungs quite a bit. Does Cipro help with sinus infections too? I'm getting such nasty sinus drips at night that I literally can't stay quiet long enough to sleep. And it's just getting more and...
  18. C

    A weight question.

    When your weight fluctuates between a few numbers, which one do you pick and decide is the accurate number???? <img src="i/expressions/face-icon-small-confused.gif" border="0"> This keep happening. Yesterday morning I weighed 101 lbs, then last night I weighed 104 lbs. I wish it was just one...
  19. C

    Hypertonic Saline

    Wondering if anyone is using HS and who's PFTs are below 40%? I thought I read somewhere once that you should be above that mark, but I'm curious if it's true or matters.
  20. C

    Oil of Oregano

    Just wanted to share my experience with OO over the past month. I was on vacation for 2 weeks and brought with me a bottle of it to use drops under my tongue. There were two different times when I started to get a sore throat and each time I worried about it getting down into my chest. For me...
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