Cystic Fibrosis Forum (EXP)

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  1. A

    I wonder

    As a plump CFer (from Alabama, <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and DDF508'er, you can be overweight and have CF. There are enough of us for a club <img src="i/expressions/face-icon-small-tongue.gif" border="0"> . <br /> <br />Hopefully, mlag, you can get the...
  2. A

    A1c, fasting glucose...help?

    Solo, your pancreas ducts get clogged with mucus, too, and when the natural digestive enzymes don't get out because of the blockages, it essentially digests itself, causing damage and scarring. So, you can have CFRD also from either the blockages or the scarring, but the enzymes pills we take...
  3. A

    A1c, fasting glucose...help?

    Solo, your pancreas ducts get clogged with mucus, too, and when the natural digestive enzymes don't get out because of the blockages, it essentially digests itself, causing damage and scarring. So, you can have CFRD also from either the blockages or the scarring, but the enzymes pills we take...
  4. A

    A1c, fasting glucose...help?

    Solo, your pancreas ducts get clogged with mucus, too, and when the natural digestive enzymes don't get out because of the blockages, it essentially digests itself, causing damage and scarring. So, you can have CFRD also from either the blockages or the scarring, but the enzymes pills we take...
  5. A

    Someone please help me understand

    I don't know for sure, but I imagine it has to do with his prune belly syndrome and his inability to cough/cough correctly. While it's true that children do sadly die everyday, not all of them are organ donors. Therefore, the rare organs that are donated are allotted to the ones who are in the...
  6. A

    Someone please help me understand

    I don't know for sure, but I imagine it has to do with his prune belly syndrome and his inability to cough/cough correctly. While it's true that children do sadly die everyday, not all of them are organ donors. Therefore, the rare organs that are donated are allotted to the ones who are in the...
  7. A

    Someone please help me understand

    I don't know for sure, but I imagine it has to do with his prune belly syndrome and his inability to cough/cough correctly. While it's true that children do sadly die everyday, not all of them are organ donors. Therefore, the rare organs that are donated are allotted to the ones who are in the...
  8. A

    High Pulse Rate

    Mine always runs high too- usually 100+. I have to admit, I find this thread a bit reassuring. Clinic has never seemed concerned, and I never think to ask <img src="i/expressions/face-icon-small-tongue.gif" border="0"> , but I have wondered.
  9. A

    High Pulse Rate

    Mine always runs high too- usually 100+. I have to admit, I find this thread a bit reassuring. Clinic has never seemed concerned, and I never think to ask <img src="i/expressions/face-icon-small-tongue.gif" border="0"> , but I have wondered.
  10. A

    High Pulse Rate

    Mine always runs high too- usually 100+. I have to admit, I find this thread a bit reassuring. Clinic has never seemed concerned, and I never think to ask <img src="i/expressions/face-icon-small-tongue.gif" border="0"> , but I have wondered.
  11. A

    Does anyone use these 3 specialty pharmacies?

    Thanks so much everyone!
  12. A

    Does anyone use these 3 specialty pharmacies?

    Thanks so much everyone!
  13. A

    Does anyone use these 3 specialty pharmacies?

    Thanks so much everyone!
  14. A

    Does anyone use these 3 specialty pharmacies?

    I got a letter in the mail today saying that I had to order my "specialty" meds (Tobi and Pulmozyme) from one of these three companies now, instead of the CF Services Pharmacy- Accredo Health, CVS/Caremark, Triessent. Any suggestions on who to use, or, at the least, who to avoid? I'm thinking...
  15. A

    Does anyone use these 3 specialty pharmacies?

    I got a letter in the mail today saying that I had to order my "specialty" meds (Tobi and Pulmozyme) from one of these three companies now, instead of the CF Services Pharmacy- Accredo Health, CVS/Caremark, Triessent. Any suggestions on who to use, or, at the least, who to avoid? I'm thinking...
  16. A

    Does anyone use these 3 specialty pharmacies?

    I got a letter in the mail today saying that I had to order my "specialty" meds (Tobi and Pulmozyme) from one of these three companies now, instead of the CF Services Pharmacy- Accredo Health, CVS/Caremark, Triessent. Any suggestions on who to use, or, at the least, who to avoid? I'm thinking...
  17. A

    transplant at UAB

    Hi Sara, I go to UAB, but I haven't had a transplant. I do know a couple of people on FB who are on the waiting list, and one person irl who had a transplant elsewhere, but is now followed by UAB. If you would like their names, I can give you a blog and where to find them on another cf forum in...
  18. A

    transplant at UAB

    Hi Sara, I go to UAB, but I haven't had a transplant. I do know a couple of people on FB who are on the waiting list, and one person irl who had a transplant elsewhere, but is now followed by UAB. If you would like their names, I can give you a blog and where to find them on another cf forum in...
  19. A

    transplant at UAB

    Hi Sara, I go to UAB, but I haven't had a transplant. I do know a couple of people on FB who are on the waiting list, and one person irl who had a transplant elsewhere, but is now followed by UAB. If you would like their names, I can give you a blog and where to find them on another cf forum in...
  20. A

    Mommas WITH cf?

    I have homeschooled my daughter since she was 3. We just finished 5K <img src="i/expressions/face-icon-small-smile.gif" border="0"> . We have mostly computer based programs for the core subjects in the preschool/kindergarten grades (math and reading), and then I fill in the rest according to...
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