Cystic Fibrosis Forum (EXP)

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  1. J

    MAC and Pseudomonas

    I actually have switched clinics as well. I thought I was getting very good care where I was going, I really, really trusted with my whole heart. I was actually undiagnosed with CF by them based on one nasal PD test t that was done in a clinical trial setting. I dont' want to say very much more...
  2. J

    Croup & Christmas

    I hope you didn't go, I ended up with a cold in November, a plain old cold virus I caught and I have been intubated over it for six days and in also recently put back in the ICU again for a weeke, just recently getting out two days ago.. We never know what are bodies are going to do or how they...
  3. J

    Croup & Christmas

    I hope you didn't go, I ended up with a cold in November, a plain old cold virus I caught and I have been intubated over it for six days and in also recently put back in the ICU again for a weeke, just recently getting out two days ago.. We never know what are bodies are going to do or how they...
  4. J

    New changes to medicaid starting in Jan

    I live in SC, Medicaid under the plan I chose ( absolute total care) only covers four prescriptions a month. All I needed to do was an appeal process... it was not that hard for me, my doctors wrote letters of necessity. That is how it works for me here in SC.
  5. J

    New changes to medicaid starting in Jan

    I live in SC, Medicaid under the plan I chose ( absolute total care) only covers four prescriptions a month. All I needed to do was an appeal process... it was not that hard for me, my doctors wrote letters of necessity. That is how it works for me here in SC.
  6. J

    MEL JazzysMOM

    I want to get some Christmas presents to Jazzy, anyone know how to....??? I adored Mel and I was blessed enough to have lunch with her a few times, as well as Jeanne. Mel will always have a place in my heart, If anyone knows how to get a gift to Jazzy please let me know....
  7. J

    MEL JazzysMOM

    I want to get some Christmas presents to Jazzy, anyone know how to....??? I adored Mel and I was blessed enough to have lunch with her a few times, as well as Jeanne. Mel will always have a place in my heart, If anyone knows how to get a gift to Jazzy please let me know....
  8. J

    Cold medications

    I have had it several times, they always try that before I have been intubated, I have been intubated more times then you can count on two hands... I do feel hot from it but when it works, it works great, sometimes it does, sometimes it doesn't.... I have declined slightly tonight and most...
  9. J

    Cold medications

    I have had it several times, they always try that before I have been intubated, I have been intubated more times then you can count on two hands... I do feel hot from it but when it works, it works great, sometimes it does, sometimes it doesn't.... I have declined slightly tonight and most...
  10. J

    Cold medications

    I have had it several times, they always try that before I have been intubated, I have been intubated more times then you can count on two hands... I do feel hot from it but when it works, it works great, sometimes it does, sometimes it doesn't.... I have declined slightly tonight and most...
  11. J

    Muscle and Joint Pain/severe exhaustion

    The longer I am on the medication, the more my body is getting used to it. The pain is starting to lessen a bit, still there but tolerable atm. Thanks so much, I am sorry for anyone who is stuck with pain.. Not any fun
  12. J

    Muscle and Joint Pain/severe exhaustion

    The longer I am on the medication, the more my body is getting used to it. The pain is starting to lessen a bit, still there but tolerable atm. Thanks so much, I am sorry for anyone who is stuck with pain.. Not any fun
  13. J

    Muscle and Joint Pain/severe exhaustion

    The longer I am on the medication, the more my body is getting used to it. The pain is starting to lessen a bit, still there but tolerable atm. Thanks so much, I am sorry for anyone who is stuck with pain.. Not any fun
  14. J

    Cold medications

    Thanks so much, I have always been a believer in not stopping the runny nose and cough since like you said it suppresses your body from getting rid of the germs, I have decided not to take anything so far.... the only issues is the post nasal drip is giving me bad broncho spasms, I saw the...
  15. J

    Cold medications

    Thanks so much, I have always been a believer in not stopping the runny nose and cough since like you said it suppresses your body from getting rid of the germs, I have decided not to take anything so far.... the only issues is the post nasal drip is giving me bad broncho spasms, I saw the...
  16. J

    Cold medications

    Thanks so much, I have always been a believer in not stopping the runny nose and cough since like you said it suppresses your body from getting rid of the germs, I have decided not to take anything so far.... the only issues is the post nasal drip is giving me bad broncho spasms, I saw the...
  17. J

    Cold medications

    I caught a nasty cold..Runny nose, sneezing and tons more secretions and coughing. I am already covered with IV antibiotics and have been for a while now but since I know this is viral and the post nasal drip is making me choke so hard I am throwing up which is sending me into Bronchospasm... it...
  18. J

    Cold medications

    I caught a nasty cold..Runny nose, sneezing and tons more secretions and coughing. I am already covered with IV antibiotics and have been for a while now but since I know this is viral and the post nasal drip is making me choke so hard I am throwing up which is sending me into Bronchospasm... it...
  19. J

    Cold medications

    I caught a nasty cold..Runny nose, sneezing and tons more secretions and coughing. I am already covered with IV antibiotics and have been for a while now but since I know this is viral and the post nasal drip is making me choke so hard I am throwing up which is sending me into Bronchospasm... it...
  20. J

    Mom of 2 daughters wants to connect...

    I was with you until the height thing. I have been sick my whole life, I have Addison's disease which is complete adrenal failure and take cortisol and florinef daily, I was diagnonosed with CF 10 years ago via several positive sweat tests, I have one known CF gene Df508 and another one Q1330e...
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