Cystic Fibrosis Forum (EXP)

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  1. S

    When there's a cure.....

    The absolute only thing I will miss is my excellent team of doctors/hospital staff. They are very knowledgeable and actually care about their patients. But that's it. There's a whole laundry list of things, mostly what others have said, but there is definitely no love loss between me and...
  2. S

    When there's a cure.....

    The absolute only thing I will miss is my excellent team of doctors/hospital staff. They are very knowledgeable and actually care about their patients. But that's it. There's a whole laundry list of things, mostly what others have said, but there is definitely no love loss between me and...
  3. S

    Personality

    I am really not cold at all, but my personality a lot of times is mistaken for hostile or anti-social because I like to keep my distance and separate myself. I find it extremely difficult to relate to everyday people, as there are only 30,000 people in the US who know what it's like to walk in...
  4. S

    Personality

    I am really not cold at all, but my personality a lot of times is mistaken for hostile or anti-social because I like to keep my distance and separate myself. I find it extremely difficult to relate to everyday people, as there are only 30,000 people in the US who know what it's like to walk in...
  5. S

    Personality

    I am really not cold at all, but my personality a lot of times is mistaken for hostile or anti-social because I like to keep my distance and separate myself. I find it extremely difficult to relate to everyday people, as there are only 30,000 people in the US who know what it's like to walk in...
  6. S

    Those who fake having CF :(

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>angelsmom</b></i> but on Facebook, I think I would start posting comments on her wall or commenting on her status updates. I would try to "out" her to her Facebook friends. Any of them that I know personally, I would send them a...
  7. S

    Those who fake having CF :(

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>angelsmom</b></i> but on Facebook, I think I would start posting comments on her wall or commenting on her status updates. I would try to "out" her to her Facebook friends. Any of them that I know personally, I would send them a...
  8. S

    Those who fake having CF :(

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>angelsmom</b></i> <br /> <br /> but on Facebook, I think I would start posting comments on her wall or commenting on her status updates. I would try to "out" her to her Facebook friends. Any of them that I know personally, I would...
  9. S

    Approved For SSDI

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Landy</b></i> Thanks for the verification, Julie. I agree on Dr's not fudging numbers & wonder how this could even happen. How do you change PFT numbers? Hmmm...</end quote></div> Hey Landy. How ya doing? I dropped facebook as I...
  10. S

    Approved For SSDI

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Landy</b></i> Thanks for the verification, Julie. I agree on Dr's not fudging numbers & wonder how this could even happen. How do you change PFT numbers? Hmmm...</end quote> Hey Landy. How ya doing? I dropped facebook as I wasn't too...
  11. S

    Approved For SSDI

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Landy</b></i> <br />Thanks for the verification, Julie. I agree on Dr's not fudging numbers & wonder how this could even happen. How do you change PFT numbers? Hmmm...</end quote> <br /> <br />Hey Landy. How ya doing? I dropped...
  12. S

    Approved For SSDI

    Congrats on getting approved JennifersHope. The last time I tried, I didn't qualify because of my CF. Granted, we are not military personnel, but we are in an active war, and have been fighting since the onset of this disease. My genes have been plotting to kill me since I was born. No general...
  13. S

    Approved For SSDI

    Congrats on getting approved JennifersHope. The last time I tried, I didn't qualify because of my CF. Granted, we are not military personnel, but we are in an active war, and have been fighting since the onset of this disease. My genes have been plotting to kill me since I was born. No general...
  14. S

    Approved For SSDI

    Congrats on getting approved JennifersHope. The last time I tried, I didn't qualify because of my CF. Granted, we are not military personnel, but we are in an active war, and have been fighting since the onset of this disease. My genes have been plotting to kill me since I was born. No general...
  15. S

    Antacid

    I take famitodine (pepcid) once a day. But make sure you take a b complex vitamin apart from the ant-acid, as PPI's can negate the function of B vitamins. That's why you hear of hair loss and lack of energy, etc with their use.
  16. S

    Antacid

    I take famitodine (pepcid) once a day. But make sure you take a b complex vitamin apart from the ant-acid, as PPI's can negate the function of B vitamins. That's why you hear of hair loss and lack of energy, etc with their use.
  17. S

    Antacid

    I take famitodine (pepcid) once a day. But make sure you take a b complex vitamin apart from the ant-acid, as PPI's can negate the function of B vitamins. That's why you hear of hair loss and lack of energy, etc with their use.
  18. S

    neb for HTS?

    neb for HTS? - one more question I use the Pari LC plus. HTS is the only inhaled medicine that I take, and I credit my continued use of HTS that has enabled me to be hospital-free since 2008!
  19. S

    neb for HTS?

    neb for HTS? - one more question I use the Pari LC plus. HTS is the only inhaled medicine that I take, and I credit my continued use of HTS that has enabled me to be hospital-free since 2008!
  20. S

    neb for HTS?

    neb for HTS? - one more question I use the Pari LC plus. HTS is the only inhaled medicine that I take, and I credit my continued use of HTS that has enabled me to be hospital-free since 2008!
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