Cystic Fibrosis Forum (EXP)

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  1. T

    I wanted to share this article

    He is an awesome doc. Was at Children's until 1997-they have a great team.
  2. T

    Best Advice

    @Lex That's great....I hadn't even thought about that! I grew up riding horses-maybe I will have to make a trip back home :-0
  3. T

    Best Advice

    @Lex That's great....I hadn't even thought about that! I grew up riding horses-maybe I will have to make a trip back home :-0
  4. T

    Best Advice

    @Lex That's great....I hadn't even thought about that! <br /> <br />I grew up riding horses-maybe I will have to make a trip back home :-0
  5. T

    Best Advice

    Got it...exercise! Thanks so much for your input-it would be so cool to be able to recover quickly. Guess I will work hard at setting myself up for that.
  6. T

    Best Advice

    Got it...exercise! Thanks so much for your input-it would be so cool to be able to recover quickly. Guess I will work hard at setting myself up for that.
  7. T

    Best Advice

    Got it...exercise! Thanks so much for your input-it would be so cool to be able to recover quickly. Guess I will work hard at setting myself up for that.
  8. T

    Best Advice

    So I am getting ready to undergo the eval process and have really enjoyed perusing through your posts. For those of you on "the other side" (lol) what is the best advice you would pass on to someone like me. Something you did, read, a question you asked, an approach you took, etc. Thanks
  9. T

    Best Advice

    So I am getting ready to undergo the eval process and have really enjoyed perusing through your posts. For those of you on "the other side" (lol) what is the best advice you would pass on to someone like me. Something you did, read, a question you asked, an approach you took, etc. Thanks
  10. T

    Best Advice

    So I am getting ready to undergo the eval process and have really enjoyed perusing through your posts. <br /> <br />For those of you on "the other side" (lol) what is the best advice you would pass on to someone like me. Something you did, read, a question you asked, an approach you took, etc...
  11. T

    at what point is transplant suggested?

    Jane When you hear transplant that can be scary. I have just been faced with this conversation the past month. For me, the doctor's concern is that it could take one really bad round of infections to really do a number on my lungs. So, they have encouraged me to start the process and to get...
  12. T

    at what point is transplant suggested?

    Jane When you hear transplant that can be scary. I have just been faced with this conversation the past month. For me, the doctor's concern is that it could take one really bad round of infections to really do a number on my lungs. So, they have encouraged me to start the process and to get...
  13. T

    at what point is transplant suggested?

    Jane When you hear transplant that can be scary. I have just been faced with this conversation the past month. For me, the doctor's concern is that it could take one really bad round of infections to really do a number on my lungs. So, they have encouraged me to start the process and to get...
  14. T

    Amakacin availability

    I just got this in an email. NTM stands for Non Tuberculosis Mycobacteria. "We are pleased to advise you that on Tuesday afternoon NTM Info & Research was notified by the Food and Drug Administration (FDA) that Amikacin is being released to the market by the main manufacturer and will be...
  15. T

    Amakacin availability

    I just got this in an email. NTM stands for Non Tuberculosis Mycobacteria. "We are pleased to advise you that on Tuesday afternoon NTM Info & Research was notified by the Food and Drug Administration (FDA) that Amikacin is being released to the market by the main manufacturer and will be...
  16. T

    Amakacin availability

    I just got this in an email. NTM stands for Non Tuberculosis Mycobacteria. "We are pleased to advise you that on Tuesday afternoon NTM Info & Research was notified by the Food and Drug Administration (FDA) that Amikacin is being released to the market by the main manufacturer and will be...
  17. T

    Need some advice

    Jenny I am so sorry that you are faced with this. It is not wrong to have the desire to be loved! Please know that I will be thinking of you and praying for all the stuff you are facing during this time.
  18. T

    Need some advice

    Jenny I am so sorry that you are faced with this. It is not wrong to have the desire to be loved! Please know that I will be thinking of you and praying for all the stuff you are facing during this time.
  19. T

    Need some advice

    Jenny I am so sorry that you are faced with this. It is not wrong to have the desire to be loved! Please know that I will be thinking of you and praying for all the stuff you are facing during this time.
  20. T

    NEW LUNGS!

    Whoohoo! Congrats on your new lungs! Praying for a smooth and uneventful recovery.
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