Cystic Fibrosis Forum (EXP)

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  1. B

    Meeting the surgeons

    Hey Lindsey, <br /> <br />Thanks for the great reply. I think I will call for an appointment to, as you say, give myself some peace of mind. I think it will take some of the fear out of it for me (some, not all) - one less unknown. I do have several questions but, I don't think the surgeon...
  2. B

    Meeting the surgeons

    I just got listed on Monday and suddenly thought I should meet the surgeons. Everytime I've I've had a planned surgery I have met with the doctors. For my thoracotomy, my shoulder, my knees, etc. My tx coordinator gave me the names numbers for the two surgeons so that I can make a "cold call"...
  3. B

    Meeting the surgeons

    I just got listed on Monday and suddenly thought I should meet the surgeons. Everytime I've I've had a planned surgery I have met with the doctors. For my thoracotomy, my shoulder, my knees, etc. My tx coordinator gave me the names numbers for the two surgeons so that I can make a "cold call"...
  4. B

    Meeting the surgeons

    I just got listed on Monday and suddenly thought I should meet the surgeons. Everytime I've I've had a planned surgery I have met with the doctors. For my thoracotomy, my shoulder, my knees, etc. My tx coordinator gave me the names numbers for the two surgeons so that I can make a "cold call"...
  5. B

    ghpp is horrible

    GHPP was never easy, but now that the California state budget has been cut they are dealing with a very reduced staff. I'm applying to get on the program now, a process I began on April 15th, and it's still not approved. What's funny, well it would be if I weren't desperate, is that they have...
  6. B

    ghpp is horrible

    GHPP was never easy, but now that the California state budget has been cut they are dealing with a very reduced staff. I'm applying to get on the program now, a process I began on April 15th, and it's still not approved. What's funny, well it would be if I weren't desperate, is that they have...
  7. B

    ghpp is horrible

    GHPP was never easy, but now that the California state budget has been cut they are dealing with a very reduced staff. I'm applying to get on the program now, a process I began on April 15th, and it's still not approved. What's funny, well it would be if I weren't desperate, is that they have...
  8. B

    Moving Port

    I know exactly what you're talking about. When I first had mine put in it would "jump" around when I raised and lowered my arm. My reaction was also to be horrified and grossed out. I've had it now for 4 years so I can't remember how long it did that for, but it has stopped. I too thought...
  9. B

    Moving Port

    I know exactly what you're talking about. When I first had mine put in it would "jump" around when I raised and lowered my arm. My reaction was also to be horrified and grossed out. I've had it now for 4 years so I can't remember how long it did that for, but it has stopped. I too thought...
  10. B

    Moving Port

    I know exactly what you're talking about. When I first had mine put in it would "jump" around when I raised and lowered my arm. My reaction was also to be horrified and grossed out. I've had it now for 4 years so I can't remember how long it did that for, but it has stopped. I too thought...
  11. B

    Fingernail Update

    Are you talking about vertical or horizontal ridges? I have vertical ridges and I asked my CF doc if it was related to CF and he said no.
  12. B

    Fingernail Update

    Are you talking about vertical or horizontal ridges? I have vertical ridges and I asked my CF doc if it was related to CF and he said no.
  13. B

    Fingernail Update

    Are you talking about vertical or horizontal ridges? I have vertical ridges and I asked my CF doc if it was related to CF and he said no.
  14. B

    Question for Collapsed Lung People

    I'm just curious, why are you at high risk for a collapse? Did you doctor tell you? As far as I know, there aren't any indicators that a collapse is about to happen. I never noticed anything before any of mine. 21 years ago, when my lung function was about 98%, my lung collapsed 3 times in 6...
  15. B

    Question for Collapsed Lung People

    I'm just curious, why are you at high risk for a collapse? Did you doctor tell you? As far as I know, there aren't any indicators that a collapse is about to happen. I never noticed anything before any of mine. 21 years ago, when my lung function was about 98%, my lung collapsed 3 times in 6...
  16. B

    Question for Collapsed Lung People

    I'm just curious, why are you at high risk for a collapse? Did you doctor tell you? <br />As far as I know, there aren't any indicators that a collapse is about to happen. I never noticed anything before any of mine. 21 years ago, when my lung function was about 98%, my lung collapsed 3 times...
  17. B

    piper got the call again

    That's great. I'm sure this is the one - I can feel it.
  18. B

    piper got the call again

    That's great. I'm sure this is the one - I can feel it.
  19. B

    piper got the call again

    That's great. I'm sure this is the one - I can feel it.
  20. B

    piper got the call again

    That's great. I'm sure this is the one - I can feel it.
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