Cystic Fibrosis Forum (EXP)

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  1. K

    Are you kidding me?!?!

    Oh my gosh. That's insane!! Ours hasn't increased...but it's due to be refilled...yikes!!
  2. K

    In ER...admitting to PICU

    Thinking of and praying for Micah!!!
  3. K

    In ER...admitting to PICU

    Thinking of and praying for Micah!!!
  4. K

    Seeking Advice/Input

    Adopt before destroying embryos...please!
  5. K

    Pulmozyme &/or Hypertonic Saline at 6months

    The reason why Pulmozyme and HTS aren't labelled for use on children under five is because children that age cannot follow the guidelines (or, rules, if you will) for lung function testing. They don't comprehend to "breathe this way or that way". The age limitation isn't necessarily related to...
  6. K

    Pulmozyme &/or Hypertonic Saline at 6months

    The reason why Pulmozyme and HTS aren't labelled for use on children under five is because children that age cannot follow the guidelines (or, rules, if you will) for lung function testing. They don't comprehend to "breathe this way or that way". The age limitation isn't necessarily related to...
  7. K

    Advice for a mom that will have a child with CF

    Congrats on your baby! We found out we were CF carriers with our first child but we've never gone through an amnio or other testing prior to the births of our three children. Our second was diagnosed with CF at two weeks old during a hospitalization for respiratory issues. During that time, her...
  8. K

    Advice for a mom that will have a child with CF

    Congrats on your baby! We found out we were CF carriers with our first child but we've never gone through an amnio or other testing prior to the births of our three children. Our second was diagnosed with CF at two weeks old during a hospitalization for respiratory issues. During that time, her...
  9. K

    Good gift for some people with CF

    That's a great idea. Good for DD as well as the rest of the family. When I'm upstairs and she's doing her vest downstairs, the television is crazy loud!! Go downstairs and it doesn't seem as loud though it's the same volume!
  10. K

    Good gift for some people with CF

    That's a great idea. Good for DD as well as the rest of the family. When I'm upstairs and she's doing her vest downstairs, the television is crazy loud!! Go downstairs and it doesn't seem as loud though it's the same volume!
  11. K

    Havoc How are You Doing?

    Glad you're back home!
  12. K

    Havoc How are You Doing?

    Glad you're back home!
  13. K

    Joni (BelEAche) is in the hospital :(

    Praying for a speedy recovery and return home!!!
  14. K

    Joni (BelEAche) is in the hospital :(

    Praying for a speedy recovery and return home!!!
  15. K

    Tap Water

    We boil DD's neb pieces...not worried about the tap water thing. We spray the mask with PureGreen24 to kill bacteria, viruses, fungi while the neb parts boil. I rinse the mask with the boiled water.
  16. K

    Tap Water

    We boil DD's neb pieces...not worried about the tap water thing. We spray the mask with PureGreen24 to kill bacteria, viruses, fungi while the neb parts boil. I rinse the mask with the boiled water.
  17. K

    Not sure what to do....

    The vest can be started when a child's chest circumference meets a certain measurement - definitely by the time they are 1.5 to 2 yrs old. It's the same machine for everyone - child or adult. The actual vest size changes as they grow. The settings on the machine also vary per the size of the...
  18. K

    Not sure what to do....

    The vest can be started when a child's chest circumference meets a certain measurement - definitely by the time they are 1.5 to 2 yrs old. It's the same machine for everyone - child or adult. The actual vest size changes as they grow. The settings on the machine also vary per the size of the...
  19. K

    Baby son has a cough

    I agree...we don't use humidifiers either...
  20. K

    Baby son has a cough

    I agree...we don't use humidifiers either...
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