Cystic Fibrosis Forum (EXP)

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  1. K

    Baby son has a cough

    He wouldn't necessarily need antibiotics right away...but every patient is different! Every CF doctor is different - just to make it more difficult! Generally, we've been told that antibiotics are needed if the cough lasts more than five days. There are different "norms" for each patient. Some...
  2. K

    Baby son has a cough

    He wouldn't necessarily need antibiotics right away...but every patient is different! Every CF doctor is different - just to make it more difficult! Generally, we've been told that antibiotics are needed if the cough lasts more than five days. There are different "norms" for each patient. Some...
  3. K

    AquaADEKs

    I have an unopened bottle of the pediatric liquid. Any takers? Note expiration...<br>
  4. K

    AquaADEKs

    I have an unopened bottle of the pediatric liquid. Any takers? Note expiration...<br>
  5. K

    AquaADEKs

    I have an unopened bottle of the pediatric liquid. Any takers? Note expiration...<br>
  6. K

    HTS prior to Pulmozyme

    Thanks everyone. DD's CF nurse was confused about the 15mL vials and is going to contact the pharmacy to see why 15mL vials were sent instead of 4mL. I assumed give her 5-6mL for ten mins and discard the rest. Guess it does make the most sense to do Pulmozyme at night...just trying to figure out...
  7. K

    HTS prior to Pulmozyme

    Thanks everyone. DD's CF nurse was confused about the 15mL vials and is going to contact the pharmacy to see why 15mL vials were sent instead of 4mL. I assumed give her 5-6mL for ten mins and discard the rest. Guess it does make the most sense to do Pulmozyme at night...just trying to figure out...
  8. K

    HTS prior to Pulmozyme

    Thanks everyone. DD's CF nurse was confused about the 15mL vials and is going to contact the pharmacy to see why 15mL vials were sent instead of 4mL. I assumed give her 5-6mL for ten mins and discard the rest. Guess it does make the most sense to do Pulmozyme at night...just trying to figure out...
  9. K

    newborn daughter just diagnosed

    Welcome to the forum and congrats on your daughter. My daughter was hospitalized at two weeks old due to an exacerbation (a term used to describe an increase in respiratory effort with cough and/or bacterial infection and/or inflammation). She's been doing well since starting airway clearance...
  10. K

    newborn daughter just diagnosed

    Welcome to the forum and congrats on your daughter. My daughter was hospitalized at two weeks old due to an exacerbation (a term used to describe an increase in respiratory effort with cough and/or bacterial infection and/or inflammation). She's been doing well since starting airway clearance...
  11. K

    newborn daughter just diagnosed

    Welcome to the forum and congrats on your daughter. My daughter was hospitalized at two weeks old due to an exacerbation (a term used to describe an increase in respiratory effort with cough and/or bacterial infection and/or inflammation). She's been doing well since starting airway clearance...
  12. K

    HTS prior to Pulmozyme

    Crazy how many inconsistencies there are! We were given 15mL vials of 3% HTS but not told how much to actually neb. I assumed 15mL was too much and contacted our center...was told that we were sent the wrong vials and to give DD only 1mL for nebbing. One mL seems like nothing?! Thoughts?
  13. K

    HTS prior to Pulmozyme

    Crazy how many inconsistencies there are! We were given 15mL vials of 3% HTS but not told how much to actually neb. I assumed 15mL was too much and contacted our center...was told that we were sent the wrong vials and to give DD only 1mL for nebbing. One mL seems like nothing?! Thoughts?
  14. K

    HTS prior to Pulmozyme

    Crazy how many inconsistencies there are! We were given 15mL vials of 3% HTS but not told how much to actually neb. I assumed 15mL was too much and contacted our center...was told that we were sent the wrong vials and to give DD only 1mL for nebbing. One mL seems like nothing?! Thoughts?
  15. K

    HTS prior to Pulmozyme

    There is probably an existing thread on this topic, but I'll ask anyway! <img src="i/expressions/face-icon-small-smile.gif" border="0"> DD is starting HTS and was advised to administer HTS prior to Pulmozyme with essentially no wait time in between. I understand that HTS can decrease the...
  16. K

    HTS prior to Pulmozyme

    There is probably an existing thread on this topic, but I'll ask anyway! <img src="i/expressions/face-icon-small-smile.gif" border="0"> DD is starting HTS and was advised to administer HTS prior to Pulmozyme with essentially no wait time in between. I understand that HTS can decrease the...
  17. K

    HTS prior to Pulmozyme

    There is probably an existing thread on this topic, but I'll ask anyway! <img src="i/expressions/face-icon-small-smile.gif" border="0"> DD is starting HTS and was advised to administer HTS prior to Pulmozyme with essentially no wait time in between. I understand that HTS can decrease the...
  18. K

    creon help

    Even the deterioration of the pancreas doesn't necessarily correlate when dosing enzymes. The physiological environment (e.g., pH of the stomach, intestines) affects enzyme efficacy - thus why so many people with CF are on PPIs. DD is severely PI yet not on a PPI...the next individual with...
  19. K

    creon help

    Even the deterioration of the pancreas doesn't necessarily correlate when dosing enzymes. The physiological environment (e.g., pH of the stomach, intestines) affects enzyme efficacy - thus why so many people with CF are on PPIs. DD is severely PI yet not on a PPI...the next individual with...
  20. K

    creon help

    Even the deterioration of the pancreas doesn't necessarily correlate when dosing enzymes. The physiological environment (e.g., pH of the stomach, intestines) affects enzyme efficacy - thus why so many people with CF are on PPIs. DD is severely PI yet not on a PPI...the next individual with...
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