Cystic Fibrosis Forum (EXP)

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  1. K

    Sweat Test Required?

    DD has never been sweat tested. Her blood test came back positive homozygous ddf508....the test would be redundant for her...
  2. K

    Sweat Test Required?

    DD has never been sweat tested. Her blood test came back positive homozygous ddf508....the test would be redundant for her...
  3. K

    Sweat Test Required?

    DD has never been sweat tested. Her blood test came back positive homozygous ddf508....the test would be redundant for her...
  4. K

    Sweat Test Required?

    DD has never been sweat tested. Her blood test came back positive homozygous ddf508....the test would be redundant for her...
  5. K

    Sweat Test Required?

    DD has never been sweat tested. Her blood test came back positive homozygous ddf508....the test would be redundant for her...
  6. K

    Sweat Test Required?

    DD has never been sweat tested. Her blood test came back positive homozygous ddf508....the test would be redundant for her...
  7. K

    enzyme dosing?

    Congrats on your newest addition!! I'm sure he's beautiful! There is a max amount that you can give without increased risk of side effects. Your daughter is taking Zenpep 5 capsules which means 5,000 lipase units per capsule. For children 1 to 4 yrs old, the dosing is based upon up to 1,000...
  8. K

    enzyme dosing?

    Congrats on your newest addition!! I'm sure he's beautiful! There is a max amount that you can give without increased risk of side effects. Your daughter is taking Zenpep 5 capsules which means 5,000 lipase units per capsule. For children 1 to 4 yrs old, the dosing is based upon up to 1,000...
  9. K

    enzyme dosing?

    Congrats on your newest addition!! I'm sure he's beautiful! There is a max amount that you can give without increased risk of side effects. Your daughter is taking Zenpep 5 capsules which means 5,000 lipase units per capsule. For children 1 to 4 yrs old, the dosing is based upon up to 1,000...
  10. K

    working to correct Delta F508

    Good answer, Jonathan. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  11. K

    working to correct Delta F508

    Good answer, Jonathan. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  12. K

    working to correct Delta F508

    Good answer, Jonathan. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  13. K

    working to correct Delta F508

    Okay...here comes the downer...since the CFF is embarking on this endeavor, doesn't it stand to reason that they believe the Vertex drugs are far from working sufficiently for d508? Just had to throw that one out there...
  14. K

    working to correct Delta F508

    Okay...here comes the downer...since the CFF is embarking on this endeavor, doesn't it stand to reason that they believe the Vertex drugs are far from working sufficiently for d508? Just had to throw that one out there...
  15. K

    working to correct Delta F508

    Okay...here comes the downer...since the CFF is embarking on this endeavor, doesn't it stand to reason that they believe the Vertex drugs are far from working sufficiently for d508? Just had to throw that one out there...
  16. K

    Why doesn't it seem like doctors are super aggressive with sinuses?

    I wonder about DD and her sinuses/lack of being aggressive. She has always snored...they wonder if her adenoids are enlarged. She doesn't suffer from repeated sinus infections - that I know of. She doesn't complain about headaches or other things that may indicated sinus problems OTHER THAN...
  17. K

    Why doesn't it seem like doctors are super aggressive with sinuses?

    I wonder about DD and her sinuses/lack of being aggressive. She has always snored...they wonder if her adenoids are enlarged. She doesn't suffer from repeated sinus infections - that I know of. She doesn't complain about headaches or other things that may indicated sinus problems OTHER THAN...
  18. K

    Why doesn't it seem like doctors are super aggressive with sinuses?

    I wonder about DD and her sinuses/lack of being aggressive. She has always snored...they wonder if her adenoids are enlarged. She doesn't suffer from repeated sinus infections - that I know of. She doesn't complain about headaches or other things that may indicated sinus problems OTHER THAN...
  19. K

    Infant CPT

    I disagree. You'll find many people on here with CF actually prefer hand CPT when sick...that alone tells me that manual CPT can be beneficial. The vest and exercise are ultimately the best...but she's too young for these. If you picture what manual CPT does vs simply stretching --- you're...
  20. K

    Infant CPT

    I disagree. You'll find many people on here with CF actually prefer hand CPT when sick...that alone tells me that manual CPT can be beneficial. The vest and exercise are ultimately the best...but she's too young for these. If you picture what manual CPT does vs simply stretching --- you're...
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