Cystic Fibrosis Forum (EXP)

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  1. K

    Hyperbaric Oxygen Therapy

    Funnily enough, I thought of this when DD was diagnosed. Don't know what made me think of it...haven't heard of anyone trying it for CF. Have you?
  2. K

    Hyperbaric Oxygen Therapy

    Funnily enough, I thought of this when DD was diagnosed. Don't know what made me think of it...haven't heard of anyone trying it for CF. Have you?
  3. K

    To Pulmozyme or not?

    We started DD on Pulmozyme at less than 2 years old. She's tolerated it well. Her doctor saw "changes" in her xray which warranted trying Pulmozyme. Her most recent xray showed improvement somewhere around a year of taking Pulmozyme. We're going to add HTS to her treatments next month. I pushed...
  4. K

    To Pulmozyme or not?

    We started DD on Pulmozyme at less than 2 years old. She's tolerated it well. Her doctor saw "changes" in her xray which warranted trying Pulmozyme. Her most recent xray showed improvement somewhere around a year of taking Pulmozyme. We're going to add HTS to her treatments next month. I pushed...
  5. K

    To Pulmozyme or not?

    We started DD on Pulmozyme at less than 2 years old. She's tolerated it well. Her doctor saw "changes" in her xray which warranted trying Pulmozyme. Her most recent xray showed improvement somewhere around a year of taking Pulmozyme. We're going to add HTS to her treatments next month. I pushed...
  6. K

    Becca23's Transplant

    Yay!
  7. K

    Becca23's Transplant

    Yay!
  8. K

    Becca23's Transplant

    Yay!
  9. K

    Vertex 770 question

    You definitely heard wrong...the drug functions to bring the NaCl channel to it's proper function...thus mucus becomes thinner and can be moved out of the lungs more easily. Colonization with PA would 'hopefully' no longer be an issue without the thickened secretions....
  10. K

    Vertex 770 question

    You definitely heard wrong...the drug functions to bring the NaCl channel to it's proper function...thus mucus becomes thinner and can be moved out of the lungs more easily. Colonization with PA would 'hopefully' no longer be an issue without the thickened secretions....
  11. K

    Vertex 770 question

    You definitely heard wrong...the drug functions to bring the NaCl channel to it's proper function...thus mucus becomes thinner and can be moved out of the lungs more easily. Colonization with PA would 'hopefully' no longer be an issue without the thickened secretions....
  12. K

    Vertex 770 question

    You definitely heard wrong...the drug functions to bring the NaCl channel to it's proper function...thus mucus becomes thinner and can be moved out of the lungs more easily. Colonization with PA would 'hopefully' no longer be an issue without the thickened secretions....
  13. K

    Vertex 770 question

    You definitely heard wrong...the drug functions to bring the NaCl channel to it's proper function...thus mucus becomes thinner and can be moved out of the lungs more easily. Colonization with PA would 'hopefully' no longer be an issue without the thickened secretions....
  14. K

    Vertex 770 question

    You definitely heard wrong...the drug functions to bring the NaCl channel to it's proper function...thus mucus becomes thinner and can be moved out of the lungs more easily. Colonization with PA would 'hopefully' no longer be an issue without the thickened secretions....
  15. K

    Needs to gain weight

    Sorry - the rest of my post didn't appear... <br> <br>Here's what we do - <br> <br>- Duocal instead of Polycose. Duocal is supposed to be better than Polycose per DD's dietician. Polycose is more sugar while Duocal is comprised of easily absorbed/digested carbs (still sugar, but better form)...
  16. K

    Needs to gain weight

    Sorry - the rest of my post didn't appear... <br> <br>Here's what we do - <br> <br>- Duocal instead of Polycose. Duocal is supposed to be better than Polycose per DD's dietician. Polycose is more sugar while Duocal is comprised of easily absorbed/digested carbs (still sugar, but better form)...
  17. K

    Needs to gain weight

    Sorry - the rest of my post didn't appear... <br> <br>Here's what we do - <br> <br>- Duocal instead of Polycose. Duocal is supposed to be better than Polycose per DD's dietician. Polycose is more sugar while Duocal is comprised of easily absorbed/digested carbs (still sugar, but better form)...
  18. K

    Needs to gain weight

    DD has very little appetite and a very strong gag reflex. She'll munch on chips or french fries...lettuce with dressing...crackers. Nothing of substantial amount. In fact, most of her calories come from Pediasure. She drinks Pediasure three times a day and snacks on whatever else. She drinks...
  19. K

    Needs to gain weight

    DD has very little appetite and a very strong gag reflex. She'll munch on chips or french fries...lettuce with dressing...crackers. Nothing of substantial amount. In fact, most of her calories come from Pediasure. She drinks Pediasure three times a day and snacks on whatever else. She drinks...
  20. K

    Needs to gain weight

    DD has very little appetite and a very strong gag reflex. She'll munch on chips or french fries...lettuce with dressing...crackers. Nothing of substantial amount. In fact, most of her calories come from Pediasure. She drinks Pediasure three times a day and snacks on whatever else. She drinks...
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