Cystic Fibrosis Forum (EXP)

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  1. S

    Only one IV med?

    I have to say it is nice that I only have one med. I am just concerned it won't do its job. But I am also on Cipro and Bactrim so hopefully something works soon!
  2. S

    Only one IV med?

    I am getting a PICC tomorrow and am only going on Zoysn. Usually I do that and tobra but the last time I had ringing in the ears so they stopped the tobra and do not want me to try it this time. Is there no other medicine that does the same job as tobra? I just feel that I won't get better with...
  3. S

    Only one IV med?

    I am getting a PICC tomorrow and am only going on Zoysn. Usually I do that and tobra but the last time I had ringing in the ears so they stopped the tobra and do not want me to try it this time. Is there no other medicine that does the same job as tobra? I just feel that I won't get better with...
  4. S

    Only one IV med?

    I am getting a PICC tomorrow and am only going on Zoysn. Usually I do that and tobra but the last time I had ringing in the ears so they stopped the tobra and do not want me to try it this time. Is there no other medicine that does the same job as tobra? I just feel that I won't get better with...
  5. S

    Vertex announces DF508 trial!!!

    How can you find out what hospitals are participating? I was set to do the trial last year but got sick so I would love to try again. Anywhere online I can find out?
  6. S

    Vertex announces DF508 trial!!!

    How can you find out what hospitals are participating? I was set to do the trial last year but got sick so I would love to try again. Anywhere online I can find out?
  7. S

    Vertex announces DF508 trial!!!

    How can you find out what hospitals are participating? I was set to do the trial last year but got sick so I would love to try again. Anywhere online I can find out?
  8. S

    Adult CF and joint problems

    While I agree that medicine should not be taken unless absolutely needed, if you are having the severe pain I have had with arthritis you will eventually need to take something. It is not something to just let happen because it can get worse. If the rash continues I would really think about...
  9. S

    Adult CF and joint problems

    While I agree that medicine should not be taken unless absolutely needed, if you are having the severe pain I have had with arthritis you will eventually need to take something. It is not something to just let happen because it can get worse. If the rash continues I would really think about...
  10. S

    Adult CF and joint problems

    While I agree that medicine should not be taken unless absolutely needed, if you are having the severe pain I have had with arthritis you will eventually need to take something. It is not something to just let happen because it can get worse. If the rash continues I would really think about...
  11. S

    Adult CF and joint problems

    This is almost funny because I am in the process of treating this myself. Although my rash is on my arms and legs and it is very painful as well as the joints. I am hoping to get a dignosis of Still's disease because I have all the symptoms but first I had to get a ton of tests and now have to...
  12. S

    Adult CF and joint problems

    This is almost funny because I am in the process of treating this myself. Although my rash is on my arms and legs and it is very painful as well as the joints. I am hoping to get a dignosis of Still's disease because I have all the symptoms but first I had to get a ton of tests and now have to...
  13. S

    Adult CF and joint problems

    This is almost funny because I am in the process of treating this myself. Although my rash is on my arms and legs and it is very painful as well as the joints. I am hoping to get a dignosis of Still's disease because I have all the symptoms but first I had to get a ton of tests and now have to...
  14. S

    Birth Control Patch

    How did you find out that the pills weren't working? I am actually thinking of going back to pills from the patch so this worries me. I have been on the patch for 6 years(?). Overall it has been fine for me. I do think it has lessened my sex drive which was why I was thinking of changing. As...
  15. S

    Birth Control Patch

    How did you find out that the pills weren't working? I am actually thinking of going back to pills from the patch so this worries me. I have been on the patch for 6 years(?). Overall it has been fine for me. I do think it has lessened my sex drive which was why I was thinking of changing. As...
  16. S

    Birth Control Patch

    How did you find out that the pills weren't working? I am actually thinking of going back to pills from the patch so this worries me. <br /> <br />I have been on the patch for 6 years(?). Overall it has been fine for me. I do think it has lessened my sex drive which was why I was thinking of...
  17. S

    hypertrophic pulmonary osteoarthropathy

    Christian what did they diagnose you with if you don't mind me asking? Also, what treatment options did they offer you. I am so tired of taking the prednisone, which only stops the problem until I go off it, then it starts up again.
  18. S

    hypertrophic pulmonary osteoarthropathy

    Christian what did they diagnose you with if you don't mind me asking? Also, what treatment options did they offer you. I am so tired of taking the prednisone, which only stops the problem until I go off it, then it starts up again.
  19. S

    hypertrophic pulmonary osteoarthropathy

    Christian what did they diagnose you with if you don't mind me asking? Also, what treatment options did they offer you. I am so tired of taking the prednisone, which only stops the problem until I go off it, then it starts up again.
  20. S

    hypertrophic pulmonary osteoarthropathy

    I started getting this in the beginning of the year. I went to many doctors and got tested for all autoimmune diseases. None of them would even think it was HPO because of how rare it apparently is. I also tried to tell them about CF related arthritis but they weren't buying it, not even my CF...
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