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Yes they are great!! Im sad that your son has CF but Im really happy that he will be getting his treatment at millers. Thats great that he has normal lung function right now. They will test his lung function?PFT at every visit. Are they aware that he has cultured MRSA? and was that from his...

Hi, My daughter Maryam is Also seen at Millers Children, I must say your child will be in good hands. Millers is Awesome and The doctors are amazing. Expect alot of test at first. Dr Mathis And Sela Herman are the GI doctors and There is a ton of Pulmonary Docs. Our clinic is the only one in the...

Hi, My daughter Maryam is Also seen at Millers Children, I must say your child will be in good hands. Millers is Awesome and The doctors are amazing. Expect alot of test at first. Dr Mathis And Sela Herman are the GI doctors and There is a ton of Pulmonary Docs. Our clinic is the only one in the...

Hi, My daughter Maryam is Also seen at Millers Children, I must say your child will be in good hands. Millers is Awesome and The doctors are amazing. Expect alot of test at first. Dr Mathis And Sela Herman are the GI doctors and There is a ton of Pulmonary Docs. Our clinic is the only one in the...

Hi, I must agree thats along time to wait. Did you ask what made them believe your child should be further tested? Here is the state I live in California they actually due full genetic panel of more then 1000 muttions as prt of new born screening. what tests do they run there for new born...

Hi, I must agree thats along time to wait. Did you ask what made them believe your child should be further tested? Here is the state I live in California they actually due full genetic panel of more then 1000 muttions as prt of new born screening. what tests do they run there for new born...

Hi, I must agree thats along time to wait. Did you ask what made them believe your child should be further tested? Here is the state I live in California they actually due full genetic panel of more then 1000 muttions as prt of new born screening. what tests do they run there for new born...

Wow.. I dont want to scare you here. And trust me for most the Nissen/Fundoplication actually is wonderful and they have great results... But there are risks and complications and it is not 100% a certin % of the surgeries fail and can fail/slip over and over. My daughter now 10 had her first...

Wow.. I dont want to scare you here. And trust me for most the Nissen/Fundoplication actually is wonderful and they have great results... But there are risks and complications and it is not 100% a certin % of the surgeries fail and can fail/slip over and over. My daughter now 10 had her first...

Wow.. I dont want to scare you here. And trust me for most the Nissen/Fundoplication actually is wonderful and they have great results... But there are risks and complications and it is not 100% a certin % of the surgeries fail and can fail/slip over and over. My daughter now 10 had her first...

Hi, The CF Surf Events are Awesome.. We Live in Cali and went to one about a month ago. You cant attend if you have MRSA or B Cecpecia. All the kids had wet suits and also had to put red t-shirts over them to identify themselves as having CF. At ours the paitents have to be over I believe 7...

Hi, The CF Surf Events are Awesome.. We Live in Cali and went to one about a month ago. You cant attend if you have MRSA or B Cecpecia. All the kids had wet suits and also had to put red t-shirts over them to identify themselves as having CF. At ours the paitents have to be over I believe 7...

Hi, <br /> <br /> The CF Surf Events are Awesome.. We Live in Cali and went to one about a month ago. You cant attend if you have MRSA or B Cecpecia. All the kids had wet suits and also had to put red t-shirts over them to identify themselves as having CF. At ours the paitents have to be over...

Creon in G-tube. Yes there is a way. But you need a 20 cc slip tip syringe it will fit directly into the hole where you would otherwise put the extention as long as its a mickey.. Mix 1-2 talbespoons apple sauce 1-2 tablespoons water you must play with the concentration. Then empty the enzymes...

Creon in G-tube. Yes there is a way. But you need a 20 cc slip tip syringe it will fit directly into the hole where you would otherwise put the extention as long as its a mickey.. Mix 1-2 talbespoons apple sauce 1-2 tablespoons water you must play with the concentration. Then empty the enzymes...

Creon in G-tube. Yes there is a way. But you need a 20 cc slip tip syringe it will fit directly into the hole where you would otherwise put the extention as long as its a mickey.. Mix 1-2 talbespoons apple sauce 1-2 tablespoons water you must play with the concentration. Then empty the enzymes...

Hi, We also use Viokase for my daughters night feed. We have always used the pill form. We crush it and drop it in the feed midway through. She is on her pump 10-12 hours a night. I have not herd yet about the pills being discontinued. We are in the club right now and will ask the GI doc about...

Hi, We also use Viokase for my daughters night feed. We have always used the pill form. We crush it and drop it in the feed midway through. She is on her pump 10-12 hours a night. I have not herd yet about the pills being discontinued. We are in the club right now and will ask the GI doc about...

Hi, <br />We also use Viokase for my daughters night feed. We have always used the pill form. We crush it and drop it in the feed midway through. She is on her pump 10-12 hours a night. I have not herd yet about the pills being discontinued. We are in the club right now and will ask the GI doc...

Thats Great you have a base line on your son. Most clinics do not do Infant PFTs because its a newer thing and most are not trained in it.We had one doctor in our clinic who did them but is no longer here. none of the others do it. Karen mommy to Maryam 10 with CF