Cystic Fibrosis Forum (EXP)

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  1. M

    Impedance Test for GERD

    Hi Jane, My daughter Maryam had this test done last year,after an endoscopy showed that her 4th fundoplication had slipped. Its done the same way a Ph study is done,ur right it just gives a bit more info in reguards to the non acidic reflux. We found out that my daughter has a great degree of...
  2. M

    Impedance Test for GERD

    Hi Jane, My daughter Maryam had this test done last year,after an endoscopy showed that her 4th fundoplication had slipped. Its done the same way a Ph study is done,ur right it just gives a bit more info in reguards to the non acidic reflux. We found out that my daughter has a great degree of...
  3. M

    Impedance Test for GERD

    Hi Jane, <br /> <br /> My daughter Maryam had this test done last year,after an endoscopy showed that her 4th fundoplication had slipped. Its done the same way a Ph study is done,ur right it just gives a bit more info in reguards to the non acidic reflux. We found out that my daughter has a...
  4. M

    Hemoptysis

    Hello, So sorry your dealing with this right now. My 9 yearold daughter with CF started coughing up blood Thursday for the first time ever. Her doc said stop Pulmozyme and hypertonic and add one back 24 hours later and the next 24 hours after that as long as there is no blood. They said it...
  5. M

    Hemoptysis

    Hello, So sorry your dealing with this right now. My 9 yearold daughter with CF started coughing up blood Thursday for the first time ever. Her doc said stop Pulmozyme and hypertonic and add one back 24 hours later and the next 24 hours after that as long as there is no blood. They said it...
  6. M

    Hemoptysis

    Hello, So sorry your dealing with this right now. My 9 yearold daughter with CF started coughing up blood Thursday for the first time ever. Her doc said stop Pulmozyme and hypertonic and add one back 24 hours later and the next 24 hours after that as long as there is no blood. They said it...
  7. M

    Hemoptysis

    Hello, So sorry your dealing with this right now. My 9 yearold daughter with CF started coughing up blood Thursday for the first time ever. Her doc said stop Pulmozyme and hypertonic and add one back 24 hours later and the next 24 hours after that as long as there is no blood. They said it...
  8. M

    Hemoptysis

    Hello, <br /> So sorry your dealing with this right now. My 9 yearold daughter with CF started coughing up blood Thursday for the first time ever. Her doc said stop Pulmozyme and hypertonic and add one back 24 hours later and the next 24 hours after that as long as there is no blood. They said...
  9. M

    How to Teach Other Children Healthy Diet and Not Confuse CF Child?

    I think its good for are children to learn the difference. They should know what is healthy for typical children and what is allowed for them. Yes even for a CFer Fries can be Junk food so can chips and all that other stuff. There is a difference between healthy fats and bad fats even for a...
  10. M

    How to Teach Other Children Healthy Diet and Not Confuse CF Child?

    I think its good for are children to learn the difference. They should know what is healthy for typical children and what is allowed for them. Yes even for a CFer Fries can be Junk food so can chips and all that other stuff. There is a difference between healthy fats and bad fats even for a...
  11. M

    How to Teach Other Children Healthy Diet and Not Confuse CF Child?

    I think its good for are children to learn the difference. They should know what is healthy for typical children and what is allowed for them. Yes even for a CFer Fries can be Junk food so can chips and all that other stuff. There is a difference between healthy fats and bad fats even for a...
  12. M

    How to Teach Other Children Healthy Diet and Not Confuse CF Child?

    I think its good for are children to learn the difference. They should know what is healthy for typical children and what is allowed for them. Yes even for a CFer Fries can be Junk food so can chips and all that other stuff. There is a difference between healthy fats and bad fats even for a...
  13. M

    How to Teach Other Children Healthy Diet and Not Confuse CF Child?

    I think its good for are children to learn the difference. They should know what is healthy for typical children and what is allowed for them. Yes even for a CFer Fries can be Junk food so can chips and all that other stuff. There is a difference between healthy fats and bad fats even for a...
  14. M

    How responsive is your clinic?

    For the most part my daughters CF clinic is pretty good. They have grown over the last few years. And we have only 1 CF Nurse Cordinator. She is great but poor lady is over worked. I always know when I can get in touch with her. 6am lol like clock work even on the weekends. I wonder how many...
  15. M

    How responsive is your clinic?

    For the most part my daughters CF clinic is pretty good. They have grown over the last few years. And we have only 1 CF Nurse Cordinator. She is great but poor lady is over worked. I always know when I can get in touch with her. 6am lol like clock work even on the weekends. I wonder how many...
  16. M

    How responsive is your clinic?

    For the most part my daughters CF clinic is pretty good. They have grown over the last few years. And we have only 1 CF Nurse Cordinator. She is great but poor lady is over worked. I always know when I can get in touch with her. 6am lol like clock work even on the weekends. I wonder how many...
  17. M

    How responsive is your clinic?

    For the most part my daughters CF clinic is pretty good. They have grown over the last few years. And we have only 1 CF Nurse Cordinator. She is great but poor lady is over worked. I always know when I can get in touch with her. 6am lol like clock work even on the weekends. I wonder how many...
  18. M

    How responsive is your clinic?

    For the most part my daughters CF clinic is pretty good. They have grown over the last few years. And we have only 1 CF Nurse Cordinator. She is great but poor lady is over worked. I always know when I can get in touch with her. 6am lol like clock work even on the weekends. I wonder how many...
  19. M

    My Daughters First Great Strides montage

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.onetruemedia.com/shared?p=896f98d616a214faa881d7&skin_id=0">http://www.onetruemedia.com/sh...a214faa881d7&skin_id=0</a>
  20. M

    My Daughters First Great Strides montage

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.onetruemedia.com/shared?p=896f98d616a214faa881d7&skin_id=0">http://www.onetruemedia.com/sh...a214faa881d7&skin_id=0</a>
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