Cystic Fibrosis Forum (EXP)

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  1. M

    Cystic Fibrosis Center Visis

    Sorry about the hard time u are having. In the case of cooking oil in the toilet you can ask his primary Dr. to run a 72hr fecal fat and or stool elastase test. This does not require a specialist. But the results if positive May. Try that rout and see if it can get you anywhere. Being PI in most...
  2. M

    Cystic Fibrosis Center Visis

    Sorry about the hard time u are having. In the case of cooking oil in the toilet you can ask his primary Dr. to run a 72hr fecal fat and or stool elastase test. This does not require a specialist. But the results if positive May. Try that rout and see if it can get you anywhere. Being PI in most...
  3. M

    Cystic Fibrosis Center Visis

    Sorry about the hard time u are having. In the case of cooking oil in the toilet you can ask his primary Dr. to run a 72hr fecal fat and or stool elastase test. This does not require a specialist. But the results if positive May. Try that rout and see if it can get you anywhere. Being PI in most...
  4. M

    Navigating health insurance

    Hi I dont know if I can help or not, but your daughter may still be able to qualify for medical under institutionaly deeming,reguardless of income. You may want to ask about that. And Is CCS not suppose to pick up copays? Just wondering the only thing we were ever able to get from CCS was the...
  5. M

    Navigating health insurance

    Hi I dont know if I can help or not, but your daughter may still be able to qualify for medical under institutionaly deeming,reguardless of income. You may want to ask about that. And Is CCS not suppose to pick up copays? Just wondering the only thing we were ever able to get from CCS was the...
  6. M

    Navigating health insurance

    Hi I dont know if I can help or not, but your daughter may still be able to qualify for medical under institutionaly deeming,reguardless of income. You may want to ask about that. And Is CCS not suppose to pick up copays? Just wondering the only thing we were ever able to get from CCS was the...
  7. M

    Navigating health insurance

    Hi I dont know if I can help or not, but your daughter may still be able to qualify for medical under institutionaly deeming,reguardless of income. You may want to ask about that. And Is CCS not suppose to pick up copays? Just wondering the only thing we were ever able to get from CCS was the...
  8. M

    Navigating health insurance

    Hi I dont know if I can help or not, but your daughter may still be able to qualify for medical under institutionaly deeming,reguardless of income. You may want to ask about that. And Is CCS not suppose to pick up copays? Just wondering the only thing we were ever able to get from CCS was the...
  9. M

    Cystic Fibrosis Center Visis

    It may well be that your child Does not have CF. But I think the DR at the clinic you went to Jumped the gun on deciding that without further testing. With having 1 borderline test and one negative test and respritory issues its obvious that further testing should be done. genetic testing...
  10. M

    Cystic Fibrosis Center Visis

    It may well be that your child Does not have CF. But I think the DR at the clinic you went to Jumped the gun on deciding that without further testing. With having 1 borderline test and one negative test and respritory issues its obvious that further testing should be done. genetic testing...
  11. M

    Cystic Fibrosis Center Visis

    It may well be that your child Does not have CF. But I think the DR at the clinic you went to Jumped the gun on deciding that without further testing. With having 1 borderline test and one negative test and respritory issues its obvious that further testing should be done. genetic testing...
  12. M

    Cystic Fibrosis Center Visis

    It may well be that your child Does not have CF. But I think the DR at the clinic you went to Jumped the gun on deciding that without further testing. With having 1 borderline test and one negative test and respritory issues its obvious that further testing should be done. genetic testing...
  13. M

    Cystic Fibrosis Center Visis

    It may well be that your child Does not have CF. But I think the DR at the clinic you went to Jumped the gun on deciding that without further testing. With having 1 borderline test and one negative test and respritory issues its obvious that further testing should be done. genetic testing...
  14. M

    anyone dx'd with CF without known mutations?

    Hi, My daughter Maryam who is 9 was Diagnosed with CF 5 years ago. NO Mutations found as of this day the complete genetic testing has been done twice, and we will do so every few years till something pops up. Keep in mind they are always adding new genes as they are discovered. Her Diagnosis...
  15. M

    anyone dx'd with CF without known mutations?

    Hi, My daughter Maryam who is 9 was Diagnosed with CF 5 years ago. NO Mutations found as of this day the complete genetic testing has been done twice, and we will do so every few years till something pops up. Keep in mind they are always adding new genes as they are discovered. Her Diagnosis...
  16. M

    anyone dx'd with CF without known mutations?

    Hi, My daughter Maryam who is 9 was Diagnosed with CF 5 years ago. NO Mutations found as of this day the complete genetic testing has been done twice, and we will do so every few years till something pops up. Keep in mind they are always adding new genes as they are discovered. Her Diagnosis...
  17. M

    anyone dx'd with CF without known mutations?

    Hi, My daughter Maryam who is 9 was Diagnosed with CF 5 years ago. NO Mutations found as of this day the complete genetic testing has been done twice, and we will do so every few years till something pops up. Keep in mind they are always adding new genes as they are discovered. Her Diagnosis...
  18. M

    anyone dx'd with CF without known mutations?

    Hi, <br /> My daughter Maryam who is 9 was Diagnosed with CF 5 years ago. NO Mutations found as of this day the complete genetic testing has been done twice, and we will do so every few years till something pops up. Keep in mind they are always adding new genes as they are discovered. Her...
  19. M

    Puffer vs nebulizer

    Hey Andrea.... Guess what My daughters doctors told me the same thing about the spacers...LOL hope all is ok. I usually never post here just read.. Karen Mommy to Maryam 9 with CF...
  20. M

    Puffer vs nebulizer

    Hey Andrea.... Guess what My daughters doctors told me the same thing about the spacers...LOL hope all is ok. I usually never post here just read.. Karen Mommy to Maryam 9 with CF...
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