Cystic Fibrosis Forum (EXP)

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  1. C

    How to get your CF Child to gain Weight

    what happened with the feeding tubes?? what kind were they?
  2. C

    How to get your CF Child to gain Weight

    what happened with the feeding tubes?? what kind were they?
  3. C

    How long do you neb Hyper-Sal?

    thanks everyone!
  4. C

    How long do you neb Hyper-Sal?

    thanks everyone!
  5. C

    How long do you neb Hyper-Sal?

    thanks everyone!
  6. C

    stomach acid in lungs

    my daughter had the nissen fundolopication (sp?) procedure at 4 months because of severe aspiration on her stomach acid....i couldnt even lay her flat to change her diaper and she would start turning red and coughing and gasping. and she had chronic vomitting issues. ive heard of quite a few...
  7. C

    stomach acid in lungs

    my daughter had the nissen fundolopication (sp?) procedure at 4 months because of severe aspiration on her stomach acid....i couldnt even lay her flat to change her diaper and she would start turning red and coughing and gasping. and she had chronic vomitting issues. ive heard of quite a few...
  8. C

    stomach acid in lungs

    my daughter had the nissen fundolopication (sp?) procedure at 4 months because of severe aspiration on her stomach acid....i couldnt even lay her flat to change her diaper and she would start turning red and coughing and gasping. and she had chronic vomitting issues. ive heard of quite a few...
  9. C

    Elevated IGE Levels

    yes, my daughter went thru this when she was 1yr old....they did blood allergy tests and it came back she was allergic to EVERYTHING...eg: wheat, soy, eggs, peanuts, dogs, cats, milk, ...but when they did the actual skin test it only showed eggs and peanuts. they will probably run some allergy...
  10. C

    Elevated IGE Levels

    yes, my daughter went thru this when she was 1yr old....they did blood allergy tests and it came back she was allergic to EVERYTHING...eg: wheat, soy, eggs, peanuts, dogs, cats, milk, ...but when they did the actual skin test it only showed eggs and peanuts. they will probably run some allergy...
  11. C

    Elevated IGE Levels

    yes, my daughter went thru this when she was 1yr old....they did blood allergy tests and it came back she was allergic to EVERYTHING...eg: wheat, soy, eggs, peanuts, dogs, cats, milk, ...but when they did the actual skin test it only showed eggs and peanuts. they will probably run some allergy...
  12. C

    How long do you neb Hyper-Sal?

    How long do you neb hypersal? sophia just started on it and it seems like it goes on "forever"....usually i shut it off at about 25 min, but it seems there is still alot coming out of the neb cup.
  13. C

    How long do you neb Hyper-Sal?

    How long do you neb hypersal? sophia just started on it and it seems like it goes on "forever"....usually i shut it off at about 25 min, but it seems there is still alot coming out of the neb cup.
  14. C

    How long do you neb Hyper-Sal?

    How long do you neb hypersal? sophia just started on it and it seems like it goes on "forever"....usually i shut it off at about 25 min, but it seems there is still alot coming out of the neb cup.
  15. C

    XRAY yields "changes" yet seldom coughs

    XRAY yields my daughter never coughs unless she is getting a bug...but her xrays show what is "consistant with progressive cystic fibrosis"....its tough to hear, because we often want to think that if they show no "symptoms" that the lungs arent getting worse, but unfortunatley with cf being a...
  16. C

    XRAY yields "changes" yet seldom coughs

    XRAY yields my daughter never coughs unless she is getting a bug...but her xrays show what is "consistant with progressive cystic fibrosis"....its tough to hear, because we often want to think that if they show no "symptoms" that the lungs arent getting worse, but unfortunatley with cf being a...
  17. C

    XRAY yields "changes" yet seldom coughs

    XRAY yields my daughter never coughs unless she is getting a bug...but her xrays show what is "consistant with progressive cystic fibrosis"....its tough to hear, because we often want to think that if they show no "symptoms" that the lungs arent getting worse, but unfortunatley with cf being a...
  18. C

    Hopkins Appointment

    dr mogayzel is great! we transferred to hopkins when my daughter was 15 months...much longer drive, but we know we are in the best place for her! hope you get the answers you are looking for! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  19. C

    Hopkins Appointment

    dr mogayzel is great! we transferred to hopkins when my daughter was 15 months...much longer drive, but we know we are in the best place for her! hope you get the answers you are looking for! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  20. C

    Hopkins Appointment

    dr mogayzel is great! we transferred to hopkins when my daughter was 15 months...much longer drive, but we know we are in the best place for her! hope you get the answers you are looking for! <img src="i/expressions/face-icon-small-smile.gif" border="0">
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