Cystic Fibrosis Forum (EXP)

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  1. C

    That's Not Good Enough

    is there anyway you can see another doc?? they have 4 ped. cf docs on staff.
  2. C

    That's Not Good Enough

    is there anyway you can see another doc?? they have 4 ped. cf docs on staff.
  3. C

    That's Not Good Enough

    is there anyway you can see another doc?? they have 4 ped. cf docs on staff.
  4. C

    How long does your child do the vest?

    we do 30min 2x a day when well...we just recently increased the pressure from 60% to 90 or 100% depending on what she is comfortable with that day.
  5. C

    How long does your child do the vest?

    we do 30min 2x a day when well...we just recently increased the pressure from 60% to 90 or 100% depending on what she is comfortable with that day.
  6. C

    How long does your child do the vest?

    we do 30min 2x a day when well...we just recently increased the pressure from 60% to 90 or 100% depending on what she is comfortable with that day.
  7. C

    How long before you/your child got colonized by PA

    she cultured it at 1 yr...but hasnt since then.. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  8. C

    How long before you/your child got colonized by PA

    she cultured it at 1 yr...but hasnt since then.. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  9. C

    How long before you/your child got colonized by PA

    she cultured it at 1 yr...but hasnt since then.. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  10. C

    Family member has/had a staph infection

    we had this issue with a family member also....our doc told us to have the family member tested to see if the staph is active or dormant. there is a series of 3 test that they take and they can tell... the family members doc must order the test and it is "iffy" whether or not insurance will pay...
  11. C

    Family member has/had a staph infection

    we had this issue with a family member also....our doc told us to have the family member tested to see if the staph is active or dormant. there is a series of 3 test that they take and they can tell... the family members doc must order the test and it is "iffy" whether or not insurance will pay...
  12. C

    Family member has/had a staph infection

    we had this issue with a family member also....our doc told us to have the family member tested to see if the staph is active or dormant. there is a series of 3 test that they take and they can tell... the family members doc must order the test and it is "iffy" whether or not insurance will pay...
  13. C

    everyone in my family smokes

    wow!! i truly dont know how you handle that! i have a really good article on 3rd hand smoke (on clothes, hair, furniture, etc, and how it affects others) you should read and blow it up to like a 30ft by 50ft poster and hang in front of your house....(ok, maybe i get carried away on this topic...
  14. C

    everyone in my family smokes

    wow!! i truly dont know how you handle that! i have a really good article on 3rd hand smoke (on clothes, hair, furniture, etc, and how it affects others) you should read and blow it up to like a 30ft by 50ft poster and hang in front of your house....(ok, maybe i get carried away on this topic...
  15. C

    everyone in my family smokes

    wow!! i truly dont know how you handle that! i have a really good article on 3rd hand smoke (on clothes, hair, furniture, etc, and how it affects others) you should read and blow it up to like a 30ft by 50ft poster and hang in front of your house....(ok, maybe i get carried away on this topic...
  16. C

    More nebs or straight to IVs for a 3 yr old?

    i would definatley express to the doc that the cough is getting much worse and ask what they think the odds are that the colomycin will knock it out....they may be trying to hold off on the iv antibiotics (which antibiotics are they planning on using??? tobi??) iv tobi, over an extended period...
  17. C

    More nebs or straight to IVs for a 3 yr old?

    i would definatley express to the doc that the cough is getting much worse and ask what they think the odds are that the colomycin will knock it out....they may be trying to hold off on the iv antibiotics (which antibiotics are they planning on using??? tobi??) iv tobi, over an extended period...
  18. C

    More nebs or straight to IVs for a 3 yr old?

    i would definatley express to the doc that the cough is getting much worse and ask what they think the odds are that the colomycin will knock it out....they may be trying to hold off on the iv antibiotics (which antibiotics are they planning on using??? tobi??) iv tobi, over an extended period...
  19. C

    Bronchoscopy questions.

    my little one had a bronch/lung lavage last summer and it went very smooth...they did it in the o.r. not the picu...but she seemed to not have any difficulty afterward and we went home 4 days later on iv antibiotics. i think it took 3 or 4 days to find out what was being cultured, but i cant...
  20. C

    Bronchoscopy questions.

    my little one had a bronch/lung lavage last summer and it went very smooth...they did it in the o.r. not the picu...but she seemed to not have any difficulty afterward and we went home 4 days later on iv antibiotics. i think it took 3 or 4 days to find out what was being cultured, but i cant...
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