Cystic Fibrosis Forum (EXP)

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  1. C

    Respirtech

    does any one have a current phone number for respirtech, i am having problems with my daughters vest and the numbers on the internet (800.793.1261/651.379.8999) arent working. thanks
  2. C

    Finally, Hopkins next week

    sorry, finger slipped...didnt mean to put ff in there. LOL
  3. C

    Finally, Hopkins next week

    sorry, finger slipped...didnt mean to put ff in there. LOL
  4. C

    Finally, Hopkins next week

    sorry, finger slipped...didnt mean to put ff in there. LOL
  5. C

    Finally, Hopkins next week

    you will get some awesome help at hopkins...we go there too. the docs are great we see dr mogayzel and dr paranjupe. believe me...you will not hear "do nothing"!! good luck! ff<img src="i/expressions/face-icon-small-smile.gif" border="0">
  6. C

    Finally, Hopkins next week

    you will get some awesome help at hopkins...we go there too. the docs are great we see dr mogayzel and dr paranjupe. believe me...you will not hear "do nothing"!! good luck! ff<img src="i/expressions/face-icon-small-smile.gif" border="0">
  7. C

    Finally, Hopkins next week

    you will get some awesome help at hopkins...we go there too. the docs are great we see dr mogayzel and dr paranjupe. believe me...you will not hear "do nothing"!! good luck! ff<img src="i/expressions/face-icon-small-smile.gif" border="0">
  8. C

    mother doesnt understand

    its a terrible situation she is putting you in! but i agree with the posts above...you are doing the right thing by seeking information and thinking about your grandson first. i am sorry you are being made to make this kind of decision and hope you can find somekind of peace with the right...
  9. C

    mother doesnt understand

    its a terrible situation she is putting you in! but i agree with the posts above...you are doing the right thing by seeking information and thinking about your grandson first. i am sorry you are being made to make this kind of decision and hope you can find somekind of peace with the right...
  10. C

    mother doesnt understand

    its a terrible situation she is putting you in! but i agree with the posts above...you are doing the right thing by seeking information and thinking about your grandson first. i am sorry you are being made to make this kind of decision and hope you can find somekind of peace with the right...
  11. C

    Wanting Children

    unfortunatley, i have to agree...i would never have knowingly conceived a child with cystic fibrosis. i love my daughter more than anything in this world, but when i see the struggles she goes thru it breaks my heart. i know this is an extremely touchy subject for which many people have...
  12. C

    Wanting Children

    unfortunatley, i have to agree...i would never have knowingly conceived a child with cystic fibrosis. i love my daughter more than anything in this world, but when i see the struggles she goes thru it breaks my heart. i know this is an extremely touchy subject for which many people have...
  13. C

    Wanting Children

    unfortunatley, i have to agree...i would never have knowingly conceived a child with cystic fibrosis. i love my daughter more than anything in this world, but when i see the struggles she goes thru it breaks my heart. i know this is an extremely touchy subject for which many people have...
  14. C

    Nebulizer Cups Confusion

    i scratch either a "p" for pulmozyme, "x" for xoepenex, etc...into the side of the nebs pieces she uses for each one that way i dont get them mixed up.
  15. C

    Nebulizer Cups Confusion

    i scratch either a "p" for pulmozyme, "x" for xoepenex, etc...into the side of the nebs pieces she uses for each one that way i dont get them mixed up.
  16. C

    Nebulizer Cups Confusion

    i scratch either a "p" for pulmozyme, "x" for xoepenex, etc...into the side of the nebs pieces she uses for each one that way i dont get them mixed up.
  17. C

    Sterilizing nebs while travelling

    i use the medela breast pump sterilization bags...you can get them at target and one can be used up to 20 times. just follow the directions, all you need is a microwave. so, when we travel i always make sure our room has a microwave in it. our cf clinic at hopkins said the medela bags are also...
  18. C

    Sterilizing nebs while travelling

    i use the medela breast pump sterilization bags...you can get them at target and one can be used up to 20 times. just follow the directions, all you need is a microwave. so, when we travel i always make sure our room has a microwave in it. our cf clinic at hopkins said the medela bags are also...
  19. C

    Sterilizing nebs while travelling

    i use the medela breast pump sterilization bags...you can get them at target and one can be used up to 20 times. just follow the directions, all you need is a microwave. so, when we travel i always make sure our room has a microwave in it. our cf clinic at hopkins said the medela bags are also...
  20. C

    Bactrim if not coughing?

    did you ask why he was putting her on the bactrim? a few weeks ago my daughter was sick with a virus and they had her take bactrim also (which of course, antibiotics dont help virus') so i asked them why the bactrim and they told me that it was to help "keep the other stuff (bacteria) in her...
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