Cystic Fibrosis Forum (EXP)

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  1. C

    Bactrim if not coughing?

    did you ask why he was putting her on the bactrim? a few weeks ago my daughter was sick with a virus and they had her take bactrim also (which of course, antibiotics dont help virus') so i asked them why the bactrim and they told me that it was to help "keep the other stuff (bacteria) in her...
  2. C

    Bactrim if not coughing?

    did you ask why he was putting her on the bactrim? a few weeks ago my daughter was sick with a virus and they had her take bactrim also (which of course, antibiotics dont help virus') so i asked them why the bactrim and they told me that it was to help "keep the other stuff (bacteria) in her...
  3. C

    Effect of treatments on others

    im with my daughter all of the time and the only one i have been cautioned about is Tobi....i was told by our respiratory dept to always mask up when administering tobi, respiratory is supposed to also. before i knew this (and wasnt wearing a mask) it would really irritate my throat and make me...
  4. C

    Effect of treatments on others

    im with my daughter all of the time and the only one i have been cautioned about is Tobi....i was told by our respiratory dept to always mask up when administering tobi, respiratory is supposed to also. before i knew this (and wasnt wearing a mask) it would really irritate my throat and make me...
  5. C

    Effect of treatments on others

    im with my daughter all of the time and the only one i have been cautioned about is Tobi....i was told by our respiratory dept to always mask up when administering tobi, respiratory is supposed to also. before i knew this (and wasnt wearing a mask) it would really irritate my throat and make me...
  6. C

    Vertex announces DF508 trial!!!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i> How can you find out what hospitals are participating? I was set to do the trial last year but got sick so I would love to try again. Anywhere online I can find out?</end quote></div> ..go to cff.org, then find your...
  7. C

    Vertex announces DF508 trial!!!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i> How can you find out what hospitals are participating? I was set to do the trial last year but got sick so I would love to try again. Anywhere online I can find out?</end quote> ..go to cff.org, then find your hospital...
  8. C

    Vertex announces DF508 trial!!!

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i> <br /> <br />How can you find out what hospitals are participating? I was set to do the trial last year but got sick so I would love to try again. Anywhere online I can find out?</end quote> <br /> <br />..go to cff.org...
  9. C

    neb bulbs

    i always wash and sterilize nebs between every use....when my daughter was first born i wasnt aware that i needed to sterilize the nebs and i would only wash them out and we are pretty sure that is how she contracted pa. since then i have done much, much research ...i guess its up to each...
  10. C

    neb bulbs

    i always wash and sterilize nebs between every use....when my daughter was first born i wasnt aware that i needed to sterilize the nebs and i would only wash them out and we are pretty sure that is how she contracted pa. since then i have done much, much research ...i guess its up to each...
  11. C

    neb bulbs

    i always wash and sterilize nebs between every use....when my daughter was first born i wasnt aware that i needed to sterilize the nebs and i would only wash them out and we are pretty sure that is how she contracted pa. since then i have done much, much research ...i guess its up to each...
  12. C

    daughter keeps getting sick!!

    I think when you become the mom of a cf'er you have a tendency to also become "Sherlock Holmes"!!...but thats our job to protect our little ones and with so many differing views from the cf physican community i feel it is necessary to not take what our docs say and do at "face value". we are...
  13. C

    daughter keeps getting sick!!

    I think when you become the mom of a cf'er you have a tendency to also become "Sherlock Holmes"!!...but thats our job to protect our little ones and with so many differing views from the cf physican community i feel it is necessary to not take what our docs say and do at "face value". we are...
  14. C

    daughter keeps getting sick!!

    I think when you become the mom of a cf'er you have a tendency to also become "Sherlock Holmes"!!...but thats our job to protect our little ones and with so many differing views from the cf physican community i feel it is necessary to not take what our docs say and do at "face value". we are...
  15. C

    Do I have the only child that screams the entire time at Clinic?

    boy it doesnt seem like that long ago that i posted the same thread!!!! my daughter goes berzerk in parking garages, most offices of any type and around white coats! i will say this is getting better because we had a few "non-threatening" appointments with her pediatrician where we scheduled her...
  16. C

    Do I have the only child that screams the entire time at Clinic?

    boy it doesnt seem like that long ago that i posted the same thread!!!! my daughter goes berzerk in parking garages, most offices of any type and around white coats! i will say this is getting better because we had a few "non-threatening" appointments with her pediatrician where we scheduled her...
  17. C

    Do I have the only child that screams the entire time at Clinic?

    boy it doesnt seem like that long ago that i posted the same thread!!!! my daughter goes berzerk in parking garages, most offices of any type and around white coats! i will say this is getting better because we had a few "non-threatening" appointments with her pediatrician where we scheduled her...
  18. C

    Is Cystic Fibrosis linked with High IQ?

    i previously read an article from the "famous cf dr" at the minnesota clinic (is it dr warwick??,cant remember name) and he actually said that in all of his years experience with children he has always felt children with cf are of higher intelligence....
  19. C

    Is Cystic Fibrosis linked with High IQ?

    i previously read an article from the "famous cf dr" at the minnesota clinic (is it dr warwick??,cant remember name) and he actually said that in all of his years experience with children he has always felt children with cf are of higher intelligence....
  20. C

    Is Cystic Fibrosis linked with High IQ?

    i previously read an article from the "famous cf dr" at the minnesota clinic (is it dr warwick??,cant remember name) and he actually said that in all of his years experience with children he has always felt children with cf are of higher intelligence.... <br /> <br />
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