Cystic Fibrosis Forum (EXP)

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  1. T

    Picc line at home or in hospital

    I prefer staying in the hospital honestly. I've had too many piccs clot on me and go bad, and one time I wound up having to grab my dad aside to hold some goz over the picc site while I yank it out myself because they can never seem to get nurses out when you need them to, and my docs were...
  2. T

    Mickey button popped out!

    Gotta do what ya gotta do. If she can't maintain without it, then she needs it.
  3. T

    Mickey button popped out!

    Gotta do what ya gotta do. If she can't maintain without it, then she needs it.
  4. T

    Mickey button popped out!

    Gotta do what ya gotta do. If she can't maintain without it, then she needs it.
  5. T

    extreme night sweating.....

    This happens to me whenever I have really really bad infections. I'll be soaked from head to toe, my bed will look like someone threw a bucket of water on me while I was sleeping, and all my clothing/bedding needs changing. Also, my hair feels like I just got outta the shower, lol. Another fun...
  6. T

    extreme night sweating.....

    This happens to me whenever I have really really bad infections. I'll be soaked from head to toe, my bed will look like someone threw a bucket of water on me while I was sleeping, and all my clothing/bedding needs changing. Also, my hair feels like I just got outta the shower, lol. Another fun...
  7. T

    extreme night sweating.....

    This happens to me whenever I have really really bad infections. I'll be soaked from head to toe, my bed will look like someone threw a bucket of water on me while I was sleeping, and all my clothing/bedding needs changing. Also, my hair feels like I just got outta the shower, lol. <br /> <br...
  8. T

    Feeling bad more times than good

    I'm only 25 and im in the same boat as you are atm giggles, lol. It's just never ending. >_< <br> <br><br>
  9. T

    Feeling bad more times than good

    I'm only 25 and im in the same boat as you are atm giggles, lol. It's just never ending. >_< <br> <br><br>
  10. T

    Feeling bad more times than good

    I'm only 25 and im in the same boat as you are atm giggles, lol. It's just never ending. >_< <br> <br><br>
  11. T

    frustrated...son is sick AGAIN..it never ends

    I don't really know how much this'll help, but with my personal experiences, this just seems to be how CF goes. Like, for the past year straight, I've been sick almost non-stop. <br>I'm literally healthy for maybe 2-3 weeks at a time, and then im sick again with a virus, or massive lung flare...
  12. T

    frustrated...son is sick AGAIN..it never ends

    I don't really know how much this'll help, but with my personal experiences, this just seems to be how CF goes. Like, for the past year straight, I've been sick almost non-stop. <br>I'm literally healthy for maybe 2-3 weeks at a time, and then im sick again with a virus, or massive lung flare...
  13. T

    frustrated...son is sick AGAIN..it never ends

    I don't really know how much this'll help, but with my personal experiences, this just seems to be how CF goes. Like, for the past year straight, I've been sick almost non-stop. <br>I'm literally healthy for maybe 2-3 weeks at a time, and then im sick again with a virus, or massive lung flare...
  14. T

    CF effects all aspects of your life?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BelEAche</b></i> Hey Carrie, <div> </div><div> This person sounds like an idiot !!  I would love to use stronger language here..  </div><div> </div><div>Yes, Cf does affect every part of my life but it does not mean I dont enjoy...
  15. T

    CF effects all aspects of your life?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BelEAche</b></i> Hey Carrie, This person sounds like an idiot !! I would love to use stronger language here.. Yes, Cf does affect every part of my life but it does not mean I dont enjoy being alive.. We are not talking about having...
  16. T

    CF effects all aspects of your life?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BelEAche</b></i> Hey Carrie, This person sounds like an idiot !! I would love to use stronger language here.. Yes, Cf does affect every part of my life but it does not mean I dont enjoy being alive.. We are not talking about having...
  17. T

    Flu shot... Do you get one?

    I got my shot last year around oct, and then wound up with the flu in late dec, lololol. Normally I never get the shot and never get the flu too, so this year im just avoiding it.
  18. T

    Flu shot... Do you get one?

    I got my shot last year around oct, and then wound up with the flu in late dec, lololol. Normally I never get the shot and never get the flu too, so this year im just avoiding it.
  19. T

    Flu shot... Do you get one?

    I got my shot last year around oct, and then wound up with the flu in late dec, lololol. Normally I never get the shot and never get the flu too, so this year im just avoiding it.
  20. T

    Sports Organization Discriminating against my daughter w/CF

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BikerEd</b></i> Also, have you considered the possible long term alienation that may result in "special treatment" Perhaps she wont invited to the cool outing or great party, because "well, we didn't want her to get tired" or "we...
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