Cystic Fibrosis Forum (EXP)

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  1. T

    Does TOBI decrease the frequency of lung infections and/or make you feel better during an exacerbation?

    Does TOBI decrease the frequency of lung infections and/or make you feel better during an exacerbation? I have to be on tobi every other month and cayston every month im not on tobi. :/ <br /> <br />For me, they don't really keep away the frequency of infections. What they instead do, is keep...
  2. T

    Nasal Polyps

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JENNYC</b></i>  so when the surgeon removed the polyps (that were holding her eyes in place and we had no idea) instead of the bone, her eyes fell back in her sinus cavities. </end quote></div> <div><br></div><div>DEAR GOD!!! Reading...
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    Nasal Polyps

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JENNYC</b></i> so when the surgeon removed the polyps (that were holding her eyes in place and we had no idea) instead of the bone, her eyes fell back in her sinus cavities. </end quote> <br>DEAR GOD!!! Reading your post was like...
  4. T

    Nasal Polyps

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JENNYC</b></i> so when the surgeon removed the polyps (that were holding her eyes in place and we had no idea) instead of the bone, her eyes fell back in her sinus cavities. </end quote> <br>DEAR GOD!!! Reading your post was like...
  5. T

    for those who have yet to decide on transplant

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>azdesertrat</b></i>  As has been said previously- it comes down to a very simple question. do you want to live?</end quote></div> <div><br></div><div>This.</div><div><br></div><div>I mean there's nothing wrong with trying to get the...
  6. T

    for those who have yet to decide on transplant

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>azdesertrat</b></i> As has been said previously- it comes down to a very simple question. do you want to live?</end quote> <br>This.<br>I mean there's nothing wrong with trying to get the most outta your original lungs, like Jerry...
  7. T

    for those who have yet to decide on transplant

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>azdesertrat</b></i> As has been said previously- it comes down to a very simple question. do you want to live?</end quote> <br>This.<br>I mean there's nothing wrong with trying to get the most outta your original lungs, like Jerry...
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    Culturing Bacteira

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mamaScarlett</b></i> I don't know about your cultures, bu b. cepacia has been found on rotting onions. I always avoided them, or washed my hands thoroughly after cutting onions at all. Not even for myself but I also have kids. In the...
  9. T

    Culturing Bacteira

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mamaScarlett</b></i> I don't know about your cultures, bu b. cepacia has been found on rotting onions. I always avoided them, or washed my hands thoroughly after cutting onions at all. Not even for myself but I also have kids. In the...
  10. T

    Culturing Bacteira

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mamaScarlett</b></i> I don't know about your cultures, bu b. cepacia has been found on rotting onions. I always avoided them, or washed my hands thoroughly after cutting onions at all. Not even for myself but I also have kids. In the...
  11. T

    Anyone else dreading the upcoming months?

    I'm actually happy as can be that winter is finally here. The rain and the humidity of summer time DESTROYS me like no other. It's so bad for me that I need to literally hide in the house 24/7 hugging the AC, or else my lungs freak out so badly that I cough myself into pulled muscles/bleeding...
  12. T

    Anyone else dreading the upcoming months?

    I'm actually happy as can be that winter is finally here. The rain and the humidity of summer time DESTROYS me like no other. It's so bad for me that I need to literally hide in the house 24/7 hugging the AC, or else my lungs freak out so badly that I cough myself into pulled muscles/bleeding...
  13. T

    Anyone else dreading the upcoming months?

    I'm actually happy as can be that winter is finally here. The rain and the humidity of summer time DESTROYS me like no other. It's so bad for me that I need to literally hide in the house 24/7 hugging the AC, or else my lungs freak out so badly that I cough myself into pulled muscles/bleeding...
  14. T

    soreness after hospital stay

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Iamqueenofeverything</b></i> I usually stay in the hospital for about 7 days in a tiny little room with minimal excersize. i do walk around the hospital hallways but there is only so much to look at and places to go and explore...
  15. T

    soreness after hospital stay

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Iamqueenofeverything</b></i> I usually stay in the hospital for about 7 days in a tiny little room with minimal excersize. i do walk around the hospital hallways but there is only so much to look at and places to go and explore...
  16. T

    soreness after hospital stay

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Iamqueenofeverything</b></i> I usually stay in the hospital for about 7 days in a tiny little room with minimal excersize. i do walk around the hospital hallways but there is only so much to look at and places to go and explore.<p>...
  17. T

    Looking for CF people to talk to in their 20's

    I guess im not the only one here who's fed up with the crap normal people say and do. I appreciate the "rallying" to the cause here, so to speak btw. XD If anyone wants to dig me up on facebook sometime btw, mine is Jason Carpenito. Forgot to add that one in there. I'm the one in the south...
  18. T

    Looking for CF people to talk to in their 20's

    I guess im not the only one here who's fed up with the crap normal people say and do. I appreciate the "rallying" to the cause here, so to speak btw. XD If anyone wants to dig me up on facebook sometime btw, mine is Jason Carpenito. Forgot to add that one in there. I'm the one in the south...
  19. T

    Looking for CF people to talk to in their 20's

    I guess im not the only one here who's fed up with the crap normal people say and do. I appreciate the "rallying" to the cause here, so to speak btw. XD If anyone wants to dig me up on facebook sometime btw, mine is Jason Carpenito. Forgot to add that one in there. I'm the one in the south...
  20. T

    Looking for CF people to talk to in their 20's

    I guess im not the only one here who's fed up with the crap normal people say and do. I appreciate the "rallying" to the cause here, so to speak btw. XD If anyone wants to dig me up on facebook sometime btw, mine is Jason Carpenito. Forgot to add that one in there. I'm the one in the south...
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