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I guess im not the only one here who's fed up with the crap normal people say and do. <br /> <br />I appreciate the "rallying" to the cause here, so to speak btw. XD <br /> <br />If anyone wants to dig me up on facebook sometime btw, mine is Jason Carpenito. Forgot to add that one in there. I'm...

When it comes the normal people I meet on a day to day basis, be it online or in person, they don't seem to handle the fact that I have CF too well it seems. Now, I know my CF isn't the most conveniant thing, with how often im hacking away (espically in this jersey humidity... yeesh, it's bad...

When it comes the normal people I meet on a day to day basis, be it online or in person, they don't seem to handle the fact that I have CF too well it seems. Now, I know my CF isn't the most conveniant thing, with how often im hacking away (espically in this jersey humidity... yeesh, it's bad...

When it comes the normal people I meet on a day to day basis, be it online or in person, they don't seem to handle the fact that I have CF too well it seems. Now, I know my CF isn't the most conveniant thing, with how often im hacking away (espically in this jersey humidity... yeesh, it's bad...

When it comes the normal people I meet on a day to day basis, be it online or in person, they don't seem to handle the fact that I have CF too well it seems. Now, I know my CF isn't the most conveniant thing, with how often im hacking away (espically in this jersey humidity... yeesh, it's bad...

When it comes the normal people I meet on a day to day basis, be it online or in person, they don't seem to handle the fact that I have CF too well it seems. Now, I know my CF isn't the most conveniant thing, with how often im hacking away (espically in this jersey humidity... yeesh, it's bad...

I don't think I've done this before, so I'll do it now. I'm Jason. I'm 23 years old, diagnosed with CF at birth, on SSI/SSDI, and stuck living in lovly new jersey atm. My AIM is Cloud5527, FB is Jason Carpenito. Can msg me any time if anyone wants to talk. No guarentees I won't be asleep...

Future 5 gold metal winner of the special olymics, right here!

Just thought I'd say this, since it kinda screwed me over on an order a minute ago. I was coughing well writing up an order, anda green blob came out and landed on the page. Well, I wiped it off, and all the ink came with it! XD I wonder what else our lung gunk is capibable of. Maybe fueling...

Thanks guys! This'll help more then you can imagine.

It was 66% 4 months ago when I got out of the hospital. (when they told me this first time, they told me about when I got outta the hospital, and how it is compared to now)

I can't see any link in your post, julie. ; ; Teri's link also didn't work for me.

Holy *****. The first time ever I got my FEV number from my docs (beth told me they need to be giving it to me). It's at 48%! Woooooow. That seems low. lol

Thanks a ton Julie. Once I have that down, and my dads talked to beth (which we have setup for monday for her to reassure him of things), then I can hopefully get things moving in the RIGHT direction for once.

Julie, I need to ask you something. Well, more of a favor really... since you're really good at information finding. Beth is telling me about a disabled child form. It's a new jersey law, that if your child, of 18 or older, is unable to work and get insurance, that you can put them back under...

erm, in my prevous posts, I ment the one that covers everything. I get medicade and medicare mixed up constantly, no matter how many times I hear the diffrence. lol Thanks for the links julie. I'll check em out once im back from the DMV. Getting my AZ lisence changed to a jersey one. They...

I just got an e-mail back from beth. She's saying that that insurance company can't refuse me like they are due to new jersey law. So im gonna call them back later today, and speak with a supervisor. Maybe I'll get lucky have have some real work for beth. <img...

- In jersey, they won't give me insurance unless I go on the welfare program. - The ultrase patitent assistance program wouldn't help me. They would only bring my ultrase costs from 3,000 a month to 2,000 a month. and pancrease dosen't work on me. Nor does Creon (anymore). - Cobra booted me...

That's what im doin. I have all the ultrase they'll let me get. (about a month and a half worth) I'm lookin into the welfare tomorrow once they're open, to see if they'll cover my basic meds. If so, im goin on it.

I just got off the phone with the SS office... again. They said that with my current job, there's no chance im getting accepted. Here are my new choices. - Withdraw my application for SSDI, apply directly to medicare, and then later apply for SSDI.(only if the medicare office will allow it) -...