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I too love your attitude Laney. No real advice other than that pre-seed is a good *sperm friendly* lubricant that may help the sperm swim more freely before getting stuck in cf mucus. I realize with the methodology you are using you aren't using traditional intercourse to conceive but perhaps it...
Due to the lack of minerals in our soil (erosion, over farming, etc.) our food is not providing the nutrition it once was. Soil depletion is a real issue for all of us. Add in absorption issues and most cf patients are probably quite minerally deprived. Without the proper minerals we can't...
I'd still call the legal hotline. It's good to brush up on what your rights are so if they try some silly business to see how much they can get away with you can call them out. Good luck & keep us posted!
Isn't this so fascinating?! We all knew that sugar feeds bacteria but this is proof. I know for me I crave sugar badly after having antibiotics the worst (when good gut flora is compromised). As for which foods to avoid, to start it's all processed foods because they mostly have either refined...
Not much to add that others haven't already said other than...
- Is this the Director of an accredited CF center saying this? or the head OBGYN in charge of delivering the cf mother's babies?
- Good for your that data from their clinic alone is not enough to convince you its a good idea, ask...
I gained 26 lbs. with my pregnancy that went to 39+4 wks. I gave birth ******lly to a healthy, 7 lb. 10 oz. baby boy. It is my understanding that cf moms have a greater risk for premature labor more due to fetal nutrition than respiratory involvement. In order to gain the 26 lbs I had to eat...
Wrightclick, I found your testimonial of colloidal silver very interesting. Do you think merely taking it orally has much benefit? I'll admit I'm a bit chicken to inhale. I have been using it periodically to help with immune support but wonder if I took it prophylactically if it could help kill...
I'm excited to inquire about this. So the advantage to me are two fold: approval for all meds (right now using it for albuterol and hypersal though approved by my doctor are not approved by Pari) & insurance pays for the device which means we own it. I don't like that my Trio and Altera are only...
Unfortunately it is not available for purchase in the US. I've only heard the cost in reference to the replacement cost if the patient were to lose it. Even with the best of insurance, it is not available to buy it out right whether you choose to run it through insurance or not. I considered...
My guess is you won't have problems getting pregnant especially if the sperm are from a younger male.
Just wanted to add to the mix that a pregnanct NON CF over age 35 is considered high risk.
As most of us will agree, the pregnancy was the easy part and for many of us even getting pregnant...
i think it is great that you sent everyone a letter. Another suggestion I was going to offer is to bring them to a "Possible Next Steps" meeting...call it what you will "The Beginning of the End" meeting. Have it at your doctors office, scheduled ahead for one hour where your doctor goes over...
perhaps you could qualify under anemia. Have you had your iron levels checked recently? That is another reason they to brochial artery embolizations which I'm guessing is the procedure you'd want...not a brochoscopy.
I tried the 50,000 IU approach a few times with no success. I was down at 27 and got it up to 35 with a whole food mineral supplement that I now take every day. Watch this video to learn about the product. http://www.youtube.com/watch?v=kpwzJT7r3uk&feature=youtu.be
It's helped me not get a cold...
Kelly Langs, (mom2newfie, cowtown) had a transplant a few days ago. Drs suspect pneumonia and have placed her on ECMO.
Rhiannon- ("Rhi," wife of Kevin...both with cf) - Rhi was admitted and has been placed on the vent.
Please pray for these folks and all of our other cfers suffering with...
Sounds normal to me. I believe its a combo of die off from the mass carnage on bacteria going on (drink water to rid the body of the toxins), the body trying to find a new normal while on the toxic meds & tiredness while the body is rebuilding and repairing.
Listen and do as your body asks to...
Cool! So do you have cf and your doing clinical research or are you without cf? Thanks for working on advancing care. I think you are correct regarding the SpiroDoc. It probably provides way more than what I need. To be clear, my doctor never asked me to get a home spirometer though did support...
Hi DmT145, Welcome! I've never read a post by you. Glad to have you here and happy you are jumping right in! I've been a member since 2006. I am 34 f with cf. Life got a little more complicated when my son was also diagnosed in 2007. This site has been a wealth of information for me seeking best...
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