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Whitening your teeth may be a waste as if you are like many cfers you may have very little enamel left and the reason your teeth may be discolored is because the dentin is showing through which has a yellowy color to it. Also, whitening can increase sensitivity. The great thing about going to...

Are you speaking of a drug that already has a compassionate use clause? If so, your doctor contacts the pharma co. or a local participating cf center regarding enrolling you. It is a leg of the clinical trial and thus you will have to travel to a participating hospital if your own hospital is...

This is awesome. Thanks for sharing!

That I do not know. Sorry...I would be curious to know the answer.

My parents have written their will with a special needs trust fund for my portion. It is not going to be managed by my brother who is the executor of the estate. It is managed by a relative. I believe it is also a conflict of interest for the cfer to be the executor of an estate for some reason...

I was diagnosed by this lady - amazing - http://www.nlm.nih.gov/changingthefaceofmedicine/physicians/biography_79.html at St. Vincents Hospital back in 1980 after multiple pneumonias and positive sweat tests. Even though doctors saw the results of a postive sweat test twice they said it...

Per request of the original poster I am locking this thread. The thread has run its course and now is just going in circles or rehashing what has already been stated. Thank you everyone for your constructive discussion.

DainaMay, Since Mirena is a hormonal IUD. I would have it out for 6 months before expecting to try with any sort of success. Could you take it out and use condoms? Once I was okay with the idea of getting pregnant but it wasn't quite the ideal time I gave myself 6 months of using natural family...

The family did not post here. I saw it through a friend of a friend on Facebook. I believe in the power of prayer and thought I'd share it with the community because I wanted the family to have our prayers and well wishes. I have no further information.

All day I have been thinking about Micah and praying for a smooth, peaceful departure. I'm also thinking of his sweet siblings and parents. Peace and love at this difficult time.

Printer, Threads are not just locked for no reason at all when there is a healthy discussion going on. They are ended when either the direction has veered so far from the originals posters intention or there is ill will directed at a single person in a way that is not constructive criticism...

I hope someone hooks you up. I'm sure there's someone in the Indy area who has read this. Perhaps you should change the title of the message to include the word "Indianapolis" so that people see it and click to read your message.

I alternate Cayston and Colistin.

I've been on Social Security Disability Income since July 2008. If I remember correctly, when they awarded me benefits they said my case would be reviewed in 3 years. Anyone know from experience should I be expectinga notice of a case evaluation this month or do you think that was just a...

I have never had this happen. Is the sepsis a result of a port gone bad or do ports have to be removed when one becomes septic? Also, how did you know you have sepsis? Scary! I recently went your website and you are an awesome, very talented painter. Did I read it correctly that you have done...

Oh and anyone can reference the Code of Conduct on the home page at the bottom for more details.

Just to clarify...posting about other sites, facebook groups, etc. is not a code of conduct infraction. What is is advertising another site. The difference? regularity and tone - a mention here or there is one thing doing something on a schedule is advertising IMHO. Many other sites have...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> I just sent you an email. I also know someone who was kicked off this board for sharing information about a facebook group for people with CF. Ridiculous. :::wondering how long it will take for this thread to be...

I use Foundation Care and have always been very happy with them. I only use them for items that Medco (my mail order pharmacy) can not provide (Cayston and Colistin and get for free my vitamins, nebs, hypertonic saline and eflows.) If I need a medication very quickly and it is inexpensive I get...

Welcome back Jana. You and your experience are an asset to our community. I hope you'll stick around albeit it is difficult I am sure. Do you see a counselor regularly? I would think it would be helpful to have a person you can vent to and who can help you track your progress from a professional...