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So sorry you are having such a tough time. I hope Graycie gets better soon! I will be praying for you and your family.

Hi everyone!! I just have a question. There always seems to be something to be going on with my little one. His nose is always stopped up. THE POOR KID!!! I looked inside his nose with a pen light and the left nostril is all inflammed and you can even tell from the outside of his nose! He has...

Hi everyone!! I just have a question. There always seems to be something to be going on with my little one. His nose is always stopped up. THE POOR KID!!! I looked inside his nose with a pen light and the left nostril is all inflammed and you can even tell from the outside of his nose! He has...

Hi everyone!! <br />I just have a question. There always seems to be something to be going on with my little one. His nose is always stopped up. THE POOR KID!!! I looked inside his nose with a pen light and the left nostril is all inflammed and you can even tell from the outside of his nose! He...

I would keep giving enzymes. I know fatty food contibute to the greasy stools, but the enzymes help digest the proteins as well. Nine grams is quite a bit so she will need the protease component of the enzymes. Do the resource juice boxes taste good? Marty drinks scandishakes and they have so...

I would keep giving enzymes. I know fatty food contibute to the greasy stools, but the enzymes help digest the proteins as well. Nine grams is quite a bit so she will need the protease component of the enzymes. Do the resource juice boxes taste good? Marty drinks scandishakes and they have so...

I would keep giving enzymes. I know fatty food contibute to the greasy stools, but the enzymes help digest the proteins as well. Nine grams is quite a bit so she will need the protease component of the enzymes. <br />Do the resource juice boxes taste good? Marty drinks scandishakes and they...

Oh Toy Story how fun!! Hmm this may be corny but here it goes... Hey there Cowboys and Cowgirls, if you can come give us a shout but please remember our littlest cowboy cannot have sick germs about!! hahaha. Hope this helps!! Sometimes I surprise myself LOL!!

Oh Toy Story how fun!! Hmm this may be corny but here it goes... Hey there Cowboys and Cowgirls, if you can come give us a shout but please remember our littlest cowboy cannot have sick germs about!! hahaha. Hope this helps!! Sometimes I surprise myself LOL!!

Oh Toy Story how fun!! <br /> <br />Hmm this may be corny but here it goes... <br /> <br />Hey there Cowboys and Cowgirls, if you can come give us a shout but please remember our littlest cowboy cannot have sick germs about!! <br /> <br />hahaha. Hope this helps!! <br />Sometimes I surprise...

I think ambry does check the promoter. Maybe Steve can clarify but I am almost sure they do. Harriet, I am so sorry that you don't know her other mutation. Did you ever have Emily's blood work sent to sickkids in toronto? Isn't that the place with the database? There is no doubt that she has...

Oh I know the answer to this!! The promotor in the thing before Exon 1 in the CFTR. Most amplified tests say that they cannot detect large deletions, deep intronic and promotor mutations. I researched the different kinds of tests when we were trying to find my son's mutations. The CFTR gene has...

No idea why my posts keep double posting!

No idea why my posts keep double posting!

No idea why my posts keep double posting!

Thank you so much Harriet. I have always been amazed by my child's vaccuum like abilities. The secretary upset me but I am over it now. She was just not well informed and had no mouth filter. The endo doctor is suppose to be really good and works with our CF doc. We are just going to get him...

Thank you so much Harriet. I have always been amazed by my child's vaccuum like abilities. The secretary upset me but I am over it now. She was just not well informed and had no mouth filter. The endo doctor is suppose to be really good and works with our CF doc. We are just going to get him...

Thank you so much Harriet. I have always been amazed by my child's vaccuum like abilities. The secretary upset me but I am over it now. She was just not well informed and had no mouth filter. The endo doctor is suppose to be really good and works with our CF doc. We are just going to get him...

Woops double post!!

Woops double post!!