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Thank you so much everyone!
Becky, We are here that long too. He has staph and pseudomonas and he got really sick. Freaked me out!!! He is responding wonderfully to the IVs so we are so relieved. I hope you are doing well and that the little guy is feeling better.
Thank you so much everyone!
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<br />Becky, We are here that long too. He has staph and pseudomonas and he got really sick. Freaked me out!!! He is responding wonderfully to the IVs so we are so relieved. I hope you are doing well and that the little guy is feeling better.
I am so sorry you are going through this. If you are unsatisfied take him to another doctor. There are doctors out there that will treat you son regardless of what mutations are there. Before my son's genetic test came back revealing CF we found a fabulous doctor who began treating him right...
I am so sorry you are going through this. If you are unsatisfied take him to another doctor. There are doctors out there that will treat you son regardless of what mutations are there. Before my son's genetic test came back revealing CF we found a fabulous doctor who began treating him right...
I am so sorry you are going through this. If you are unsatisfied take him to another doctor. There are doctors out there that will treat you son regardless of what mutations are there. Before my son's genetic test came back revealing CF we found a fabulous doctor who began treating him right...
Marty is in the hospital for a tune up. His lung function has been down and his cultures were icky. How have you guys killed the time and what procedures have they done? They put an IV in for now but they mentioned putting in a PICC line. Is this typical? He has been hospitalized many times...
Marty is in the hospital for a tune up. His lung function has been down and his cultures were icky. How have you guys killed the time and what procedures have they done? They put an IV in for now but they mentioned putting in a PICC line. Is this typical? He has been hospitalized many times...
Marty is in the hospital for a tune up. His lung function has been down and his cultures were icky. How have you guys killed the time and what procedures have they done? They put an IV in for now but they mentioned putting in a PICC line. Is this typical? He has been hospitalized many times...
Marty was on Omnicef for this a couple of times. It is pretty common in the sinuses and in CFers it goes into the lungs. It really didn't cause too many problems except for one time when he was pretty sick. We were pretty sure that was the cause. It is gone now and he doesn't culture it anymore...
Marty was on Omnicef for this a couple of times. It is pretty common in the sinuses and in CFers it goes into the lungs. It really didn't cause too many problems except for one time when he was pretty sick. We were pretty sure that was the cause. It is gone now and he doesn't culture it anymore...
Marty was on Omnicef for this a couple of times. It is pretty common in the sinuses and in CFers it goes into the lungs. It really didn't cause too many problems except for one time when he was pretty sick. We were pretty sure that was the cause. It is gone now and he doesn't culture it anymore...
WOW!! I am so sorry that he said that! Some people are such morons!
I am so sick of people's stupid comments!!!!!! I keep getting that kind of stuff too. We were discussing having another baby and one of my cousins asked me if we plan to have another one. She knows about Marty's CF and when I...
WOW!! I am so sorry that he said that! Some people are such morons!
I am so sick of people's stupid comments!!!!!! I keep getting that kind of stuff too. We were discussing having another baby and one of my cousins asked me if we plan to have another one. She knows about Marty's CF and when I...
WOW!! I am so sorry that he said that! Some people are such morons!
<br />I am so sick of people's stupid comments!!!!!! I keep getting that kind of stuff too. We were discussing having another baby and one of my cousins asked me if we plan to have another one. She knows about Marty's CF and...
We use the Masimo Rad-8 for my son. He is 4 and he desats in his sleep with exacerbations. It is nice to have because it gets away from that worry through the night. I like it because you can set it to whatever values you want so the alarm doesn't go off for rediculous reasons(like moving!!) It...
We use the Masimo Rad-8 for my son. He is 4 and he desats in his sleep with exacerbations. It is nice to have because it gets away from that worry through the night. I like it because you can set it to whatever values you want so the alarm doesn't go off for rediculous reasons(like moving!!) It...
We use the Masimo Rad-8 for my son. He is 4 and he desats in his sleep with exacerbations. It is nice to have because it gets away from that worry through the night. I like it because you can set it to whatever values you want so the alarm doesn't go off for rediculous reasons(like moving!!) It...
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