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You guys are the best!! Katie, I am so sorry that you are having troubles with this as well. I hate this whole thing but it is nice to not feel so alone. The endo doc told us the same thing about the A1C that it really isn't a great indicator for cf patients. It would have been high for...

You guys are the best!! Katie, I am so sorry that you are having troubles with this as well. I hate this whole thing but it is nice to not feel so alone. The endo doc told us the same thing about the A1C that it really isn't a great indicator for cf patients. It would have been high for...

You guys are the best!! <br />Katie, I am so sorry that you are having troubles with this as well. I hate this whole thing but it is nice to not feel so alone. The endo doc told us the same thing about the A1C that it really isn't a great indicator for cf patients. It would have been high for...

Bill Thank you so much for your encouraging words! You are truley inspirational!! Heather, I loved the cyber hug. I am in tears today. I think I got to put Marty to bed and wait for hubby to bring me some wine. It has been rough because my poor husband has to work like a dog so that we can pay...

Bill Thank you so much for your encouraging words! You are truley inspirational!! Heather, I loved the cyber hug. I am in tears today. I think I got to put Marty to bed and wait for hubby to bring me some wine. It has been rough because my poor husband has to work like a dog so that we can pay...

Bill Thank you so much for your encouraging words! You are truley inspirational!! <br /> <br />Heather, I loved the cyber hug. I am in tears today. I think I got to put Marty to bed and wait for hubby to bring me some wine. It has been rough because my poor husband has to work like a dog so that...

Oh I am having a terrible day. Today was not a typical CF clinic visit but we went to clinic today. We had to see GI and endocrine. My baby is taking such a high dose of enzymes that the doctor is concerned. They want to increase the prevacid even more and they can't increase his enzyme dose...

Oh I am having a terrible day. Today was not a typical CF clinic visit but we went to clinic today. We had to see GI and endocrine. My baby is taking such a high dose of enzymes that the doctor is concerned. They want to increase the prevacid even more and they can't increase his enzyme dose...

Oh I am having a terrible day. Today was not a typical CF clinic visit but we went to clinic today. We had to see GI and endocrine. My baby is taking such a high dose of enzymes that the doctor is concerned. They want to increase the prevacid even more and they can't increase his enzyme dose...

IVs didn't get rid of it for my son either. He was in for ten days then we went home on IVs. I am not quite sure what that means for us for the future. He has been on antibiotics so much lately! I totally understand how you feel. I think it is a disadvantage at such a young age. My son is 4. We...

IVs didn't get rid of it for my son either. He was in for ten days then we went home on IVs. I am not quite sure what that means for us for the future. He has been on antibiotics so much lately! I totally understand how you feel. I think it is a disadvantage at such a young age. My son is 4. We...

IVs didn't get rid of it for my son either. He was in for ten days then we went home on IVs. I am not quite sure what that means for us for the future. He has been on antibiotics so much lately! I totally understand how you feel. I think it is a disadvantage at such a young age. My son is 4. We...

So sorry you are going through this. That is very close to borderline. I would just go right to genetic testing. Ask the doctor about it and hopefully they go for it. I had to fight for genetic testing on my son and I am sure glad I did because it turns out that he does have CF. Another test...

So sorry you are going through this. That is very close to borderline. I would just go right to genetic testing. Ask the doctor about it and hopefully they go for it. I had to fight for genetic testing on my son and I am sure glad I did because it turns out that he does have CF. Another test...

So sorry you are going through this. That is very close to borderline. I would just go right to genetic testing. Ask the doctor about it and hopefully they go for it. I had to fight for genetic testing on my son and I am sure glad I did because it turns out that he does have CF. Another test...

I was actually surprised at how small and chinsy the proneb ultra 2 is. We used to have another compressor but I forget the name. I dont really think the pari is any better so if you find a great one let me know!!!

I was actually surprised at how small and chinsy the proneb ultra 2 is. We used to have another compressor but I forget the name. I dont really think the pari is any better so if you find a great one let me know!!!

I was actually surprised at how small and chinsy the proneb ultra 2 is. We used to have another compressor but I forget the name. I dont really think the pari is any better so if you find a great one let me know!!!

Oh my gosh Heather I am so sorry!!! That is insane and yes....BS!! When Marty had the PICC placed, they put him out. It was like it never happened for him. With that said, the hospital that our CF center is with STINKS!!! They did a great job with the PICC but their policy is that they don't...

Oh my gosh Heather I am so sorry!!! That is insane and yes....BS!! When Marty had the PICC placed, they put him out. It was like it never happened for him. With that said, the hospital that our CF center is with STINKS!!! They did a great job with the PICC but their policy is that they don't...