Cystic Fibrosis Forum (EXP)

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  1. M

    PINK vest

    Marty loves his blue vest. He says he feels like some kind of Transformer in it...LOL...BOYS!!
  2. M

    PINK vest

    Marty loves his blue vest. He says he feels like some kind of Transformer in it...LOL...BOYS!!
  3. M

    When to do the Neb Treatment (our current schedule listed)

    We always start with albuterol. Then we do hypertonic saline, then pulmozyme with vest, then flovent and then Tobi. This is Marty's night time routine. If you want you could move the pulmozyme to either morning or night and do it in that order. Marty's clinic gave us a flow sheet of that order...
  4. M

    When to do the Neb Treatment (our current schedule listed)

    We always start with albuterol. Then we do hypertonic saline, then pulmozyme with vest, then flovent and then Tobi. This is Marty's night time routine. If you want you could move the pulmozyme to either morning or night and do it in that order. Marty's clinic gave us a flow sheet of that order...
  5. M

    When to do the Neb Treatment (our current schedule listed)

    We always start with albuterol. Then we do hypertonic saline, then pulmozyme with vest, then flovent and then Tobi. This is Marty's night time routine. If you want you could move the pulmozyme to either morning or night and do it in that order. Marty's clinic gave us a flow sheet of that order...
  6. M

    steroid side effect or something else

    Oh Man Roid rage has stuck at your house!! So sorry! Could it be that she is just so tired and worn out? Her little body has been through way more than it should have to handle. One time marty was on Solumedrol (IV steroid) before he was diagnosed with CF and had pneumonia. He was sooooo pale...
  7. M

    steroid side effect or something else

    Oh Man Roid rage has stuck at your house!! So sorry! Could it be that she is just so tired and worn out? Her little body has been through way more than it should have to handle. One time marty was on Solumedrol (IV steroid) before he was diagnosed with CF and had pneumonia. He was sooooo pale...
  8. M

    steroid side effect or something else

    Oh Man Roid rage has stuck at your house!! So sorry! Could it be that she is just so tired and worn out? Her little body has been through way more than it should have to handle. One time marty was on Solumedrol (IV steroid) before he was diagnosed with CF and had pneumonia. He was sooooo pale...
  9. M

    coughing coughing coughing

    You guys are the best! I am so done with 2010 and so happy we can have a fresh start. I think that is what the doc will do. She puts him on Levaquin.
  10. M

    coughing coughing coughing

    You guys are the best! I am so done with 2010 and so happy we can have a fresh start. I think that is what the doc will do. She puts him on Levaquin.
  11. M

    coughing coughing coughing

    You guys are the best! I am so done with 2010 and so happy we can have a fresh start. I think that is what the doc will do. She puts him on Levaquin.
  12. M

    coughing coughing coughing

    Oh Heather, I forgot to ask you..Do you think they will reculture her just to make sure the bugs are down/gone? I really thought we would get rid of the pseudo with this last tune up but we didn't <img src="i/expressions/face-icon-small-sad.gif" border="0"> . He had totally stopped coughing and...
  13. M

    coughing coughing coughing

    Oh Heather, I forgot to ask you..Do you think they will reculture her just to make sure the bugs are down/gone? I really thought we would get rid of the pseudo with this last tune up but we didn't <img src="i/expressions/face-icon-small-sad.gif" border="0"> . He had totally stopped coughing and...
  14. M

    coughing coughing coughing

    Oh Heather, <br />I forgot to ask you..Do you think they will reculture her just to make sure the bugs are down/gone? I really thought we would get rid of the pseudo with this last tune up but we didn't <img src="i/expressions/face-icon-small-sad.gif" border="0"> . He had totally stopped...
  15. M

    coughing coughing coughing

    Thank you so much! He just seems run down, he's pale and he is coughing. The Tobi has worked wonders for him and he has never had any trouble tolerating it in the past. He did have some inflammation issues but I was told it was related to the infection. He is on a Flovent inhaler. Last time we...
  16. M

    coughing coughing coughing

    Thank you so much! He just seems run down, he's pale and he is coughing. The Tobi has worked wonders for him and he has never had any trouble tolerating it in the past. He did have some inflammation issues but I was told it was related to the infection. He is on a Flovent inhaler. Last time we...
  17. M

    coughing coughing coughing

    Thank you so much! He just seems run down, he's pale and he is coughing. The Tobi has worked wonders for him and he has never had any trouble tolerating it in the past. He did have some inflammation issues but I was told it was related to the infection. He is on a Flovent inhaler. Last time we...
  18. M

    coughing coughing coughing

    Marty has been on Tobi for a while now month on/ month off. Did anyone or your child ever develop a cough while on Tobi? Marty had a tune up last month and is doing his tobi month now. We thought we finally beat the cough with this round of Tobi but now it is coming back. He was also put on oral...
  19. M

    coughing coughing coughing

    Marty has been on Tobi for a while now month on/ month off. Did anyone or your child ever develop a cough while on Tobi? Marty had a tune up last month and is doing his tobi month now. We thought we finally beat the cough with this round of Tobi but now it is coming back. He was also put on oral...
  20. M

    coughing coughing coughing

    Marty has been on Tobi for a while now month on/ month off. Did anyone or your child ever develop a cough while on Tobi? Marty had a tune up last month and is doing his tobi month now. We thought we finally beat the cough with this round of Tobi but now it is coming back. He was also put on oral...
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