Cystic Fibrosis Forum (EXP)

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  1. M

    Be careful fundraising

    UGH!!! This is so sickening. Makes me want to puke.
  2. M

    Undiagnosed, but worried.

    I totally agree with having no clue what to look for. Marty is my first child and in the beginning his weight gain was okay. Once he started eating foods and I stopped nursing, he dropped a lot! From the 50th percentile to the 5th. It was scary but I never thought about the stools. I actually...
  3. M

    Undiagnosed, but worried.

    I totally agree with having no clue what to look for. Marty is my first child and in the beginning his weight gain was okay. Once he started eating foods and I stopped nursing, he dropped a lot! From the 50th percentile to the 5th. It was scary but I never thought about the stools. I actually...
  4. M

    Undiagnosed, but worried.

    I totally agree with having no clue what to look for. Marty is my first child and in the beginning his weight gain was okay. Once he started eating foods and I stopped nursing, he dropped a lot! From the 50th percentile to the 5th. It was scary but I never thought about the stools. I actually...
  5. M

    Undiagnosed, but worried.

    So sorry that he has been sick so much! Poor little guy! How are his stools and his weight gain? In most kids (not all) with CF have greasy bulky stools and do not gain weight as quickly. Sometimes this happens later on for some kids. At 9 months he probably wouldn't have a persistant cough so I...
  6. M

    Undiagnosed, but worried.

    So sorry that he has been sick so much! Poor little guy! How are his stools and his weight gain? In most kids (not all) with CF have greasy bulky stools and do not gain weight as quickly. Sometimes this happens later on for some kids. At 9 months he probably wouldn't have a persistant cough so I...
  7. M

    Undiagnosed, but worried.

    So sorry that he has been sick so much! Poor little guy! How are his stools and his weight gain? In most kids (not all) with CF have greasy bulky stools and do not gain weight as quickly. Sometimes this happens later on for some kids. At 9 months he probably wouldn't have a persistant cough so I...
  8. M

    Pregnant daughter just diagnosed as carrier

    So sorry about the news. I agree that he does need to be tested but depending on what state you live in they will also test the baby at birth. I would first make sure that your state includes CF in the newborn screening. He can get a prescription and get the test done at many different labs...
  9. M

    Pregnant daughter just diagnosed as carrier

    So sorry about the news. I agree that he does need to be tested but depending on what state you live in they will also test the baby at birth. I would first make sure that your state includes CF in the newborn screening. He can get a prescription and get the test done at many different labs...
  10. M

    Pregnant daughter just diagnosed as carrier

    So sorry about the news. I agree that he does need to be tested but depending on what state you live in they will also test the baby at birth. I would first make sure that your state includes CF in the newborn screening. He can get a prescription and get the test done at many different labs...
  11. M

    It is now official

    So sorry to hear about your son's diagnosis. We have all been there and it is not easy! Especially when it takes so long to diagnose and symptoms keep getting worse. We have been there. Neither of my son's mutations are in the common profile. We had to do a quest amplified test to find out his...
  12. M

    It is now official

    So sorry to hear about your son's diagnosis. We have all been there and it is not easy! Especially when it takes so long to diagnose and symptoms keep getting worse. We have been there. Neither of my son's mutations are in the common profile. We had to do a quest amplified test to find out his...
  13. M

    It is now official

    So sorry to hear about your son's diagnosis. We have all been there and it is not easy! Especially when it takes so long to diagnose and symptoms keep getting worse. We have been there. Neither of my son's mutations are in the common profile. We had to do a quest amplified test to find out his...
  14. M

    Is where we live better or worse for our CF up keep?

    Colder climates really??? Maybe it is just all the germs that are indoors right now in the winter that are making my kid's lung function so horrible! I personally feel that living by the ocean is best. We are hoping to move soon <img src="i/expressions/face-icon-small-smile.gif" border="0">
  15. M

    Is where we live better or worse for our CF up keep?

    Colder climates really??? Maybe it is just all the germs that are indoors right now in the winter that are making my kid's lung function so horrible! I personally feel that living by the ocean is best. We are hoping to move soon <img src="i/expressions/face-icon-small-smile.gif" border="0">
  16. M

    Is where we live better or worse for our CF up keep?

    Colder climates really??? Maybe it is just all the germs that are indoors right now in the winter that are making my kid's lung function so horrible! I personally feel that living by the ocean is best. We are hoping to move soon <img src="i/expressions/face-icon-small-smile.gif" border="0">
  17. M

    Universal Orlando

    We are doing Make a Wish for Marty. Just waiting for some paper work to get done and then we are good. I would recommend it!!
  18. M

    Universal Orlando

    We are doing Make a Wish for Marty. Just waiting for some paper work to get done and then we are good. I would recommend it!!
  19. M

    Universal Orlando

    We are doing Make a Wish for Marty. Just waiting for some paper work to get done and then we are good. I would recommend it!!
  20. M

    PINK vest

    Marty loves his blue vest. He says he feels like some kind of Transformer in it...LOL...BOYS!!
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