Cystic Fibrosis Forum (EXP)

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  1. C

    adhesive allergy with a PICC line

    I have an adhesive allergy as well and for me the best thing for me out of everything that was ever tried was any clear adhesives - if they were white they were the worst. After a few years of using tegaderm I started having issues with getting blisters under the tegaderm and massive itching to...
  2. C

    adhesive allergy with a PICC line

    I have an adhesive allergy as well and for me the best thing for me out of everything that was ever tried was any clear adhesives - if they were white they were the worst. After a few years of using tegaderm I started having issues with getting blisters under the tegaderm and massive itching to...
  3. C

    How did you know you needed Oxygen at night

    I first started with feeling extremely fatigued despite the fact that I might have slept 12 hours the night before. Then I started getting headaches - ranging in severity - first thing in the morning when I would wake up. After a few weeks of that I started waking up a LOT in the middle of the...
  4. C

    How did you know you needed Oxygen at night

    I first started with feeling extremely fatigued despite the fact that I might have slept 12 hours the night before. Then I started getting headaches - ranging in severity - first thing in the morning when I would wake up. After a few weeks of that I started waking up a LOT in the middle of the...
  5. C

    How did you know you needed Oxygen at night

    I first started with feeling extremely fatigued despite the fact that I might have slept 12 hours the night before. Then I started getting headaches - ranging in severity - first thing in the morning when I would wake up. After a few weeks of that I started waking up a LOT in the middle of the...
  6. C

    Life Insurance

    I will try and talk to some people I know in insurance to get the names of the policies because I know they are out there, it just may not be all the coverage you are looking for. Lindsey
  7. C

    Life Insurance

    I will try and talk to some people I know in insurance to get the names of the policies because I know they are out there, it just may not be all the coverage you are looking for. Lindsey
  8. C

    Life Insurance

    I will try and talk to some people I know in insurance to get the names of the policies because I know they are out there, it just may not be all the coverage you are looking for. <br /> <br />Lindsey
  9. C

    Life Insurance

    There are policies you can get, and I have gotten one as an adult but let it lapse because I have a much cheaper policy my parents got for me before I was diagnosed. From my experience with life insurance as an adult is there are limits on how much they will let you take out - meaning for me the...
  10. C

    Life Insurance

    There are policies you can get, and I have gotten one as an adult but let it lapse because I have a much cheaper policy my parents got for me before I was diagnosed. From my experience with life insurance as an adult is there are limits on how much they will let you take out - meaning for me the...
  11. C

    Life Insurance

    There are policies you can get, and I have gotten one as an adult but let it lapse because I have a much cheaper policy my parents got for me before I was diagnosed. From my experience with life insurance as an adult is there are limits on how much they will let you take out - meaning for me the...
  12. C

    PFT's and transplants?

    Just wanted to put this out there too. Your doc may not have been nuts, at the time that he recommended you get listed the list functioned by wait time, whereas now it functions by greatest need. Your doc may have been looking at your average rate of decline and how long he/she thought you may...
  13. C

    PFT's and transplants?

    Just wanted to put this out there too. Your doc may not have been nuts, at the time that he recommended you get listed the list functioned by wait time, whereas now it functions by greatest need. Your doc may have been looking at your average rate of decline and how long he/she thought you may...
  14. C

    PFT's and transplants?

    Just wanted to put this out there too. Your doc may not have been nuts, at the time that he recommended you get listed the list functioned by wait time, whereas now it functions by greatest need. Your doc may have been looking at your average rate of decline and how long he/she thought you may...
  15. C

    Right After surgery

    If your pain is controlled properly it is bearable. For me I am extremely sensitive to most things and the pain was excruciating and near unbearable - honestly I would have killed someone to get the pain to go away the first few days. I woke up from surgery and was being given morphine via...
  16. C

    Right After surgery

    If your pain is controlled properly it is bearable. For me I am extremely sensitive to most things and the pain was excruciating and near unbearable - honestly I would have killed someone to get the pain to go away the first few days. I woke up from surgery and was being given morphine via...
  17. C

    Right After surgery

    If your pain is controlled properly it is bearable. For me I am extremely sensitive to most things and the pain was excruciating and near unbearable - honestly I would have killed someone to get the pain to go away the first few days. <br /> <br />I woke up from surgery and was being given...
  18. C

    what are the outcomes of a transplant?

    Firstly I agree with Jaimes, your docs should be ready and willing to answer your questions. I am going to be blunt here and just say - if they are NOT you need to find docs that are, especially when it comes to transplant. I am post transplant 3 years, pre transplant I had CFRD and also...
  19. C

    what are the outcomes of a transplant?

    Firstly I agree with Jaimes, your docs should be ready and willing to answer your questions. I am going to be blunt here and just say - if they are NOT you need to find docs that are, especially when it comes to transplant. I am post transplant 3 years, pre transplant I had CFRD and also...
  20. C

    what are the outcomes of a transplant?

    Firstly I agree with Jaimes, your docs should be ready and willing to answer your questions. I am going to be blunt here and just say - if they are NOT you need to find docs that are, especially when it comes to transplant. <br /> <br />I am post transplant 3 years, pre transplant I had CFRD and...
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