Cystic Fibrosis Forum (EXP)

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  1. H

    Mothers of CF children

    Same with me samb- I had to eat HEAPS but still didn't gain any weight (I think I stayed exactly the same weight for the last 2 months of my pregnancy). Everything was going to my baby girl with CF! She was average weight when she was born & very healthy. The only thing I can remember craving...
  2. H

    Mothers of CF children

    Same with me samb- I had to eat HEAPS but still didn't gain any weight (I think I stayed exactly the same weight for the last 2 months of my pregnancy). Everything was going to my baby girl with CF! She was average weight when she was born & very healthy. The only thing I can remember craving...
  3. H

    Carriers symptoms..?

    This is really interesting. My daughter was diagnosed recently with D508x2 mutations. Reading through these so-called 'carrier sypmptoms', many of them are very familiar. I had asthma as a child, and episodes of very bad eczema. I've always had digestive issues, with particular problems with...
  4. H

    Carriers symptoms..?

    This is really interesting. My daughter was diagnosed recently with D508x2 mutations. Reading through these so-called 'carrier sypmptoms', many of them are very familiar. I had asthma as a child, and episodes of very bad eczema. I've always had digestive issues, with particular problems with...
  5. H

    Need help and advice for our 11 week old with CF

    We've been given Karicare 'Vitadol C', by the CF team at Wellington hospital, in New Zealand.
  6. H

    Need help and advice for our 11 week old with CF

    We've been given Karicare 'Vitadol C', by the CF team at Wellington hospital, in New Zealand.
  7. H

    Need help and advice for our 11 week old with CF

    "i would take my little pinkie finger and wipe the side of her mouth to get it moist(of course with clean hands) then dip my finger in the medicine cup with the enzyme beads, coat my pinkie finger with about the half capsule amount and put in the back of her mouth. Then i would pop her on the...
  8. H

    Need help and advice for our 11 week old with CF

    "i would take my little pinkie finger and wipe the side of her mouth to get it moist(of course with clean hands) then dip my finger in the medicine cup with the enzyme beads, coat my pinkie finger with about the half capsule amount and put in the back of her mouth. Then i would pop her on the...
  9. H

    Need help and advice for our 11 week old with CF

    Hi, Our daughter has been diagnosed with CF (no bloodwork yet), and has been given Vit A,C, and D (E still to come), Sodium Chloride, and now the enzymes with apple sauce. She's also currently on Augmentin and I've added an infant-friendly pro-biotic. We've started to get the hang of syringing...
  10. H

    Need help and advice for our 11 week old with CF

    Hi, Our daughter has been diagnosed with CF (no bloodwork yet), and has been given Vit A,C, and D (E still to come), Sodium Chloride, and now the enzymes with apple sauce. She's also currently on Augmentin and I've added an infant-friendly pro-biotic. We've started to get the hang of syringing...
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