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By the way, thank you Aboveallislove for the link, there were quite a few responses there. I definitely sense a pattern emerging with the different approaches to the subject :-)

Thanks for you replies. We're in New Zealand which uses 240 volts, thus the difficulty finding something that will go to 110. We will buy something and ship it to the place we are staying as you suggest. They were a lot cheaper than I was expecting because the next most appropriate one available...

We are coming to the United States (NY) for a couple of months and haven't been able to find an adaptor or transformer for our daughter's PARIBOY SX, so are wondering if we need to buy something over there to fit her LC Sprint nebuliser (we currently use hypertonic saline only). Any ideas? Thanks!

Thank you for all your stories. I know deeply that this can be an emotional subject. In regards to people who have got a diagnosis while pregnant- if that happened to us I could never terminate, I just wouldn't be capable of it. I see PGD as different to that. I have also heard a story (on one...

Thanks Autumn, looks like not too many people have shared their experiences yet (even on the other threads), so it will be interesting to see if anyone else comes out of the woodwork! :)

So I'm interested to know what people's experiences are with deciding to have more children after you've had one diagnosed with CF. I always thought we'd try naturally knowing that there was a possibility of having another with CF, but I've recently changed my mind to thinking IVF with PGD is...

We put on our 3.5 yr old daughter's favourite DVD's if she's being an alligator :-) Usually works! I also requested an acapella device a couple of months ago to practise on, so that we can use it on the long plane rides between NZ and NY we are doing in a few weeks. She's got the hang of it now...

While it doesn't seem likely that you have 'classic' CF, some of your symptoms do suggest malabsorption issues. You may want to talk to your doctor about a stool test to see if your pancreas is functioning properly. A full allergy check-up could be helpful, as you maybe eating things that are...

Hi All, We are travelling to New York later this year and are looking for a recommended paediatric care center for our 3 year old PWCF. She's DDF508. We will be staying with my partner's parents near Binghamton. I am not a citizen, but my partner is, and we are currently looking at getting dual...

Thanks for the replies guys, now I feel loved :-) While we're on the subject, I found this great map/graphic of CF population division around the world, and may be helpful in grouping areas together: http://www.cftrscience.com/?q=epidemiology Looking forward to seeing the results of the...

Good survey, thank you. I just thought I'd add that at the end is a question about where people are from, and on the list is Antarctica, but no option for New Zealand? I don't know how many people with CF live in Antarctica (most likely none) but we have hundreds in New Zealand. I chose...

Oh, and guess what? The link you posted 'mmswiki' is totally bogus! It is not a wikipedia page at all, but designed to look like one, which is a huge hallmark of a scam. This is the wikipedia page for mms: http://en.wikipedia.org/wiki/Miracle_Mineral_Supplement which shows a completely different...

I agree with Nmw. I think that it's really important when you come into a forum with thousands of people who either have Cystic Fibrosis, or care for someone who has, you need to come in with a sense of humbleness for their experience, advice, and information. We have people coming to us all the...

Hi Enzo, typically if you are pancreatic insufficient, then you will have trouble digesting fat and protein. This is because the pancreas is responsible for producing enzymes that break down both fat and protein. Do you know what your pancreatic status is? Do you take enzymes? The basic...

Excellent!

Also wanted to add: We're from New Zealand, my partner (carrier) is from NY, so we look at the differences in healthcare all the time. The thing is- you have to be a citizen or at least permanent resident of the country you are considering to be eligible for healthcare. We are very lucky that...

Two things that I think are important to add to the routine for PWCF are broad-spectrum probiotics (maintaining good gut flora is so important for a wide range of reasons) and DHA oils which PWCF are specifically lacking. I think it's great that you are getting benefit from the pranayama...

Really interesting link Aboveallislove! In our family, the carriers (myself and my Dad) both have allergies, sinus issues, and are prone to eczema and asthma (my Dad worse than me). We both have to be very careful with what we eat. Neither of us can tolerate dairy (causes a thick, mucus-like...

You are doing a wonderful job fighting for answers for your child. I'm glad you are able to get gene sequencing done, hopefully that will be helpful in providing some answers. The original pulmo who was very unhelpful does not sound very professional, and I would be inclined to write a letter of...

Wow. I love this train of thought. My daughter has CF and these are the kinds of things I'm thinking about & looking into. I'd love to follow your progress and things you are finding out. Do you have a blog? Thanks so much for this.