Cystic Fibrosis Forum (EXP)

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  1. B

    head colds and coughing

    oh missy do i knw exactly how u feel....the past 4 months for aidan and us have sucked royaly. he was goin thru the exact same thing. it wuld start out as sinus symptoms. and i wuld do everything i culd to get it under control but then eventually it wuld turn into a cough. so onto abx we wuld...
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    altera neb with cayston

    we jst started it with aidan too and they sent us the Nuc. dont knw if thats the one u have. it came with a dvd on how to clean and use the Nuc. yes put it all in. i do it thrre times a day after each cayston dose. ----------------------------------------------- Elizabeth mama to aidan 5 w/cf
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    altera neb with cayston

    we jst started it with aidan too and they sent us the Nuc. dont knw if thats the one u have. it came with a dvd on how to clean and use the Nuc. yes put it all in. i do it thrre times a day after each cayston dose. ----------------------------------------------- Elizabeth mama to aidan 5 w/cf
  4. B

    altera neb with cayston

    we jst started it with aidan too and they sent us the Nuc. dont knw if thats the one u have. it came with a dvd on how to clean and use the Nuc. yes put it all in. i do it thrre times a day after each cayston dose. <br />----------------------------------------------- <br />Elizabeth <br />mama...
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    Don't knw how much more we can take(please help)!!!!

    so heres the update. aidan has full blown cold weve determined gona ride it out thru weekend and se how hes doin on monday as for me i caught the viral thing he had last week. fever for 2 days and nights. my body is aching and in so much pain i cant walk standin straight. the headache is...
  6. B

    Don't knw how much more we can take(please help)!!!!

    so heres the update. aidan has full blown cold weve determined gona ride it out thru weekend and se how hes doin on monday as for me i caught the viral thing he had last week. fever for 2 days and nights. my body is aching and in so much pain i cant walk standin straight. the headache is...
  7. B

    Don't knw how much more we can take(please help)!!!!

    so heres the update. aidan has full blown cold weve determined gona ride it out thru weekend and se how hes doin on monday <br /> <br />as for me i caught the viral thing he had last week. fever for 2 days and nights. my body is aching and in so much pain i cant walk standin straight. the...
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    Don't knw how much more we can take(please help)!!!!

    hi ya'll im elizabeth been here couple years have posted and commented. i love this home for us so thats why im writting this. so heres the short version if i can do it: Aidan had back to back to back sinus infection bout 10 weeks ago they were treated each time but after abx was done he would...
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    Don't knw how much more we can take(please help)!!!!

    hi ya'll im elizabeth been here couple years have posted and commented. i love this home for us so thats why im writting this. so heres the short version if i can do it: Aidan had back to back to back sinus infection bout 10 weeks ago they were treated each time but after abx was done he would...
  10. B

    Don't knw how much more we can take(please help)!!!!

    hi ya'll im elizabeth been here couple years have posted and commented. i love this home for us so thats why im writting this. so heres the short version if i can do it: <br /> <br />Aidan had back to back to back sinus infection bout 10 weeks ago they were treated each time but after abx was...
  11. B

    PICC lines and recess?

    awweee megan i am soory you and aidan are goin thru this. i think keeping him home is the best thing for you and him. maybe you can find something "special" for him to do to make up for this. my aidan just got his second picc line put in on wed and hes only in school 3 days a week for 3 hours i...
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    snacks for pre-school

    snacks for pre-school(update) wow that is so sad about the note on the page about ashley not allowed to have snack with the kids. i am so glad u got to it so she wasnt left out. uggghhh could this all be any more frustrating for all of us. ok heres the update....i talked with his cf team today...
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    snacks for pre-school

    snacks for pre-school(update) wow that is so sad about the note on the page about ashley not allowed to have snack with the kids. i am so glad u got to it so she wasnt left out. uggghhh could this all be any more frustrating for all of us. ok heres the update....i talked with his cf team today...
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    snacks for pre-school

    snacks for pre-school(update) wow that is so sad about the note on the page about ashley not allowed to have snack with the kids. i am so glad u got to it so she wasnt left out. uggghhh could this all be any more frustrating for all of us. <br /> <br />ok heres the update....i talked with his...
  15. B

    snacks for pre-school

    ok so ive been thinkin about this all last night and it was brought up too isnt there someone who is certified to do CPR in the school. good lord i hope so. and if so why cant that person give aidan his enzymes.there is a girl in aidans class who has celiac disease actually so mom only gives her...
  16. B

    snacks for pre-school

    ok so ive been thinkin about this all last night and it was brought up too isnt there someone who is certified to do CPR in the school. good lord i hope so. and if so why cant that person give aidan his enzymes.there is a girl in aidans class who has celiac disease actually so mom only gives her...
  17. B

    snacks for pre-school

    ok so ive been thinkin about this all last night and it was brought up too isnt there someone who is certified to do CPR in the school. good lord i hope so. and if so why cant that person give aidan his enzymes.there is a girl in aidans class who has celiac disease actually so mom only gives her...
  18. B

    snacks for pre-school

    thaxs for the replys you guys are great. ok the school is a church. so i guess thats why they get away with not having to have to have some one staffed for meds. i mean come on aidan can physically take the pills himself. i did tell her that when a parent brings in cupcakes for a birthday to let...
  19. B

    snacks for pre-school

    thaxs for the replys you guys are great. ok the school is a church. so i guess thats why they get away with not having to have to have some one staffed for meds. i mean come on aidan can physically take the pills himself. i did tell her that when a parent brings in cupcakes for a birthday to let...
  20. B

    snacks for pre-school

    thaxs for the replys you guys are great. ok the school is a church. so i guess thats why they get away with not having to have to have some one staffed for meds. i mean come on aidan can physically take the pills himself. i did tell her that when a parent brings in cupcakes for a birthday to let...
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