Cystic Fibrosis Forum (EXP)

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  1. B

    snacks for pre-school

    so Aidan started pre-school today. YAH!!!! and believe it or not they dont have anyone certified to give him his enzymes for his snack which is all of 15 minutes long. he only goes 3 days a week from 9-12. i tried everyhting with this director. what if i put just two pills in his pill case and...
  2. B

    snacks for pre-school

    so Aidan started pre-school today. YAH!!!! and believe it or not they dont have anyone certified to give him his enzymes for his snack which is all of 15 minutes long. he only goes 3 days a week from 9-12. i tried everyhting with this director. what if i put just two pills in his pill case and...
  3. B

    snacks for pre-school

    so Aidan started pre-school today. YAH!!!! and believe it or not they dont have anyone certified to give him his enzymes for his snack which is all of 15 minutes long. he only goes 3 days a week from 9-12. i tried everyhting with this director. what if i put just two pills in his pill case and...
  4. B

    clinical trial

    hey dana i know just what u mean about doing this 3 times a day with aidan he does his chest pt with inhalers twice a day now so im going to have to add the denefosul in the middle of that at least it will be with out the vest and just by itself. im glad to hear it replaces the hypertonic. aidan...
  5. B

    clinical trial

    hey dana i know just what u mean about doing this 3 times a day with aidan he does his chest pt with inhalers twice a day now so im going to have to add the denefosul in the middle of that at least it will be with out the vest and just by itself. im glad to hear it replaces the hypertonic. aidan...
  6. B

    clinical trial

    hey dana i know just what u mean about doing this 3 times a day with aidan he does his chest pt with inhalers twice a day now so im going to have to add the denefosul in the middle of that at least it will be with out the vest and just by itself. im glad to hear it replaces the hypertonic. aidan...
  7. B

    clinical trial

    i knw i am so excited about this when i first heard bout it over a year ago i wanted aidan to get on it but he was too young and it wasnt being used on little ones. now they are doing the trial for 2yr olds up to teen. they havnt said anything yet about me not talking about it. so what i do know...
  8. B

    clinical trial

    i knw i am so excited about this when i first heard bout it over a year ago i wanted aidan to get on it but he was too young and it wasnt being used on little ones. now they are doing the trial for 2yr olds up to teen. they havnt said anything yet about me not talking about it. so what i do know...
  9. B

    clinical trial

    i knw i am so excited about this when i first heard bout it over a year ago i wanted aidan to get on it but he was too young and it wasnt being used on little ones. now they are doing the trial for 2yr olds up to teen. they havnt said anything yet about me not talking about it. so what i do know...
  10. B

    clinical trial

    Aidan will be starting his first clinical trial for Denefosul in Sept. anyone have any feedback for me ------------------------------ Elizabeth mama to Aidan 4 w/CF
  11. B

    clinical trial

    Aidan will be starting his first clinical trial for Denefosul in Sept. anyone have any feedback for me ------------------------------ Elizabeth mama to Aidan 4 w/CF
  12. B

    clinical trial

    Aidan will be starting his first clinical trial for Denefosul in Sept. anyone have any feedback for me <br />------------------------------ <br />Elizabeth <br />mama to Aidan 4 w/CF
  13. B

    NeilMed sinus rinse for kids

    i just got one for aidan and i think i did it wrong cause he completly flipped out and ran off. i think i squirted it to much to fast in his nose. he kept his mouth open. is the solution supposed to come out of their mouth too and make them cough? i made my hubby try it(lol) and he said it was...
  14. B

    NeilMed sinus rinse for kids

    i just got one for aidan and i think i did it wrong cause he completly flipped out and ran off. i think i squirted it to much to fast in his nose. he kept his mouth open. is the solution supposed to come out of their mouth too and make them cough? i made my hubby try it(lol) and he said it was...
  15. B

    NeilMed sinus rinse for kids

    i just got one for aidan and i think i did it wrong cause he completly flipped out and ran off. i think i squirted it to much to fast in his nose. he kept his mouth open. is the solution supposed to come out of their mouth too and make them cough? i made my hubby try it(lol) and he said it was...
  16. B

    NeilMed sinus rinse for kids

    i just got one for aidan and i think i did it wrong cause he completly flipped out and ran off. i think i squirted it to much to fast in his nose. he kept his mouth open. is the solution supposed to come out of their mouth too and make them cough? i made my hubby try it(lol) and he said it was...
  17. B

    NeilMed sinus rinse for kids

    i just got one for aidan and i think i did it wrong cause he completly flipped out and ran off. i think i squirted it to much to fast in his nose. he kept his mouth open. is the solution supposed to come out of their mouth too and make them cough? i made my hubby try it(lol) and he said it was...
  18. B

    ooops- double Tobra.

    oh man i knw just how u feel and i am very happy ur little one is ok and you did a great job by contactin ur support help line. i got one for you if u can believe this it was the pharmacy's mistake. Aidan must have been under the age of 1 and he was prescribed Tobi and the label said to give 3...
  19. B

    ooops- double Tobra.

    oh man i knw just how u feel and i am very happy ur little one is ok and you did a great job by contactin ur support help line. i got one for you if u can believe this it was the pharmacy's mistake. Aidan must have been under the age of 1 and he was prescribed Tobi and the label said to give 3...
  20. B

    ooops- double Tobra.

    oh man i knw just how u feel and i am very happy ur little one is ok and you did a great job by contactin ur support help line. i got one for you if u can believe this it was the pharmacy's mistake. Aidan must have been under the age of 1 and he was prescribed Tobi and the label said to give 3...
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