Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. B

    How long do you bleed for?

    Hi Alisha, Have you told your cf dr. ? They may make changes in your medications, like holding albuterol etc. I think streaking can be very common after a bleed. I have had it happen to me. I know how frightening it can be. Hope you are feeling better soon .. <3 joni
  2. B

    Colorado Wildfires

    Oh my <img src="i/expressions/face-icon-small-sad.gif" border="0"> I cant imagine what that must be like for you ! I hope they get it all under control soon !! <3 joni
  3. B

    Advair

    I have used Advair 250/50 Disk for several years now.. A couple of years ago my dr. wanted to see how I would do w/o it. The result , 1 week in hosp. on steroid IV's .. Thats my experience <img src="i/expressions/face-icon-small-smile.gif" border="0">
  4. B

    excited

    Wow !! Good for you !!! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  5. B

    Chat Tonight !

    in chat now <img src="i/expressions/face-icon-small-smile.gif" border="0">
  6. B

    I need your input please

    Glad to hear you love your new dr. !! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  7. B

    neb machine

    What musclemania said.. I just got a brand spanking new Pari Vios & love it !! Its so quite & mike loves that it doesn't wake him up lol <img src="i/expressions/face-icon-small-smile.gif" border="0">
  8. B

    Chat Tonight !

    Hope to see you there <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  9. B

    I need your input please

    imput Hey Khristina, I mostly stay in for about 1 week then do the rest at home. I like it that way. Gives me time to start feeling better (when I am home I usually start doing stuff) & after a few days I get antsy, lonely, bored, you name it lol ! <img...
  10. B

    Who cooks?

    Wow ! That looks delicious ! I do love to cook , hate the clean up though lol Dont know how to post pics so I cant share <img src="i/expressions/face-icon-small-sad.gif" border="0"> joni
  11. B

    Wednesday Night Chat !

    Hope to see you in chat tonight <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  12. B

    IV antibiotics periodically or as needed?

    My drs. treat when needed..
  13. B

    Everybody watch this video this kid is awesome.

    Love this !! I posted it on fb too <img src="i/expressions/face-icon-small-smile.gif" border="0">
  14. B

    Nurse Case Manager through the ins.company

    Hi Autumn, I agree w/ everything that Jenn said. Have you had a change in your health recently ? I also have United Health Care & after I had renal failure , due to Tobramycin, I was assigned a nurse case manager. She was helpful at that time, but like you I was leery due to the fact that she...
  15. B

    new, pls help

    Hi Cheri, I am sorry that your brother (& you) are going through so much. He needs to get insurance asap ! Yes, one sweat test can be enough to diagnose cf. It sounds to me like he may have a blockage, & if I were him I would take something to help w/ that, like maybe Miralax or something that...
  16. B

    new, pls help

    Hi Cheri, I am sorry that your brother (& you) are going through so much. He needs to get insurance asap ! Yes, one sweat test can be enough to diagnose cf. It sounds to me like he may have a blockage, & if I were him I would take something to help w/ that, like maybe Miralax or something that...
  17. B

    weird symptoms near my port

    Hey Caitlin, I think you should let your dr. know asap.. It may be nothing to worry about, then again why take chances ??? I have had 3 dvt's from ports & one clot from a picc line. In my case I am on blood thinner shots because for some apparent reason my body does not like foreign objects lol...
  18. B

    weird symptoms near my port

    Hey Caitlin, I think you should let your dr. know asap.. It may be nothing to worry about, then again why take chances ??? I have had 3 dvt's from ports & one clot from a picc line. In my case I am on blood thinner shots because for some apparent reason my body does not like foreign objects lol...
  19. B

    CF Fundraiser... This Thursday May 24TH.

    Today is the day ! If you live in New Jersey please stop by , eat, drink & help us raise $$$ for the Cystic Fibrosis Foundation ! I will be there as will my sister Naomi. Naomi has been one of my biggest supporters in the fight ! <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  20. B

    CF Fundraiser... This Thursday May 24TH.

    Today is the day ! If you live in New Jersey please stop by , eat, drink & help us raise $$$ for the Cystic Fibrosis Foundation ! I will be there as will my sister Naomi. Naomi has been one of my biggest supporters in the fight ! <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
Top