Cystic Fibrosis Forum (EXP)

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  1. B

    First CF Hemoptysis

    Hi Stacia, Yes, It is very scary.. Did you let your dr. know ? When I have Hemoptysis my dr. usually will hold certain nebs & also airway clearance. Also if bleeding continues they usually add vitamin K .. Hope you are feeling better now.. <img src="i/expressions/face-icon-small-smile.gif"...
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    First CF Hemoptysis

    Hi Stacia, Yes, It is very scary.. Did you let your dr. know ? When I have Hemoptysis my dr. usually will hold certain nebs & also airway clearance. Also if bleeding continues they usually add vitamin K .. Hope you are feeling better now.. <img src="i/expressions/face-icon-small-smile.gif"...
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    Happy with myself

    Wow ! Good for you !! <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  4. B

    Happy with myself

    Wow ! Good for you !! <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
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    looking for friends with CF

    Hey Melissa, Above in the heading you will see , HOME l Forums l BLOGS & so on, click on CHAT .. Hope to see you in chat this wednesday ! <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
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    looking for friends with CF

    Hey Melissa, Above in the heading you will see , HOME l Forums l BLOGS & so on, click on CHAT .. Hope to see you in chat this wednesday ! <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
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    Sterilizer

    Hey Caitlin, I would see if it could be replaced first or ask for a new script. I have 4 nebs per med, so i have 20 nebs sitting on my counter in separate containers (this is so I dont have to sterilize every day) I use one sterilized set per med per day. You can ask at your center for extra...
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    Sterilizer

    Hey Caitlin, I would see if it could be replaced first or ask for a new script. I have 4 nebs per med, so i have 20 nebs sitting on my counter in separate containers (this is so I dont have to sterilize every day) I use one sterilized set per med per day. You can ask at your center for extra...
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    looking for friends with CF

    Hi Melissa, Welcome to the site, you will find plenty of support/info here. Im joni, 60 y/o f w/ cf. I was dxd @ 44 y/o. I have been married 22 yrs , have 4 sons & 3 grandchildren. My fev1 is sitting about 57 right now, but I am trying to get that # up by doing Pulmonary Rehab.. I am loving the...
  10. B

    looking for friends with CF

    Hi Melissa, Welcome to the site, you will find plenty of support/info here. Im joni, 60 y/o f w/ cf. I was dxd @ 44 y/o. I have been married 22 yrs , have 4 sons & 3 grandchildren. My fev1 is sitting about 57 right now, but I am trying to get that # up by doing Pulmonary Rehab.. I am loving the...
  11. B

    Its Wednesday !

    8PM EST .. Hope to see you there <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  12. B

    Its Wednesday !

    8PM EST .. Hope to see you there <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  13. B

    Pfts's and weight changes

    I think lung infection, allergies, weather , all play a role in our pft's .. your bf's dr. sounds pro active to me & thats a good thing.. Maybe time for a tune-up ?
  14. B

    Pfts's and weight changes

    I think lung infection, allergies, weather , all play a role in our pft's .. your bf's dr. sounds pro active to me & thats a good thing.. Maybe time for a tune-up ?
  15. B

    how were you genotyped

    Hmmm, That is a good question.. I was dxd 16 yrs. ago at the age of 44. The first time i was genotyped was through blood work & they found the DeltaF508, the other mutation couldn't be identified at that time. More recently I was typed again & they found my other mutation. I would want to know...
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    how were you genotyped

    Hmmm, That is a good question.. I was dxd 16 yrs. ago at the age of 44. The first time i was genotyped was through blood work & they found the DeltaF508, the other mutation couldn't be identified at that time. More recently I was typed again & they found my other mutation. I would want to know...
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    Question for those with ports or considering a port

    Not important to me since I dont have any plans to access it myself. I do however de-access myself... <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  18. B

    Question for those with ports or considering a port

    Not important to me since I dont have any plans to access it myself. I do however de-access myself... <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
  19. B

    Can't quit coughing

    Hey Carrie, I'm glad you have a clinic appt today.. Did they do an x-ray ? or a ct scan ?? I hope so. I think your drs have to get to the bottom of what is going on w/ you asap ! I know that o2 can dry out your nose, so I would do extra nasal rinses. Also a humidifier attached to the o2 can be...
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    Can't quit coughing

    Hey Carrie, I'm glad you have a clinic appt today.. Did they do an x-ray ? or a ct scan ?? I hope so. I think your drs have to get to the bottom of what is going on w/ you asap ! I know that o2 can dry out your nose, so I would do extra nasal rinses. Also a humidifier attached to the o2 can be...
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