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Have you looked into SCHIP or CHIP programs in you state? Another good resource is your congressional representative. Their office has a mandate to look into and help with your case or advocate if need be; their website should have their info on how to contact their office for help, it may be...

I am pretty much the same way, Im gonna have to try the cayenne thing. I only get worried if it is persistent blood in sputum or just frank blood.

So as much as I would love to just have a post of Billy Joel songs that speak to you I do have a question. When you wake up and have blood in your sputum what is your reaction? Lately I found my reaction to coughing up smaller amounts of blood (I am a bleeder btw) to be that I just say, "damn...

Yeah, I got back pay eventually, I was told that if I worked it might disqualify me from getting SSI. It sucks, but you might be able to get unemployment and SNAP benefits.

I use it on occasion at night and I am nowhere near getting a t-plant. I just have a standing scrip that I use when I need it.

I could spend hours talking about this. I will not. I will say that we have our humanity in common; an inalienable dignity and worth to each of us and a sense of caring and compassion for others despite our cf we are human and thus have very similar experiences. It get really complicated really...

I have it too, hospitals filter and control their air a lot. So I'm pretty sure that is what's to blame.

Hello friends, So I was trying to do some sociology and some of the search terms I used are apparently also biology terms, who knew! Anyway I stumbled on scholarly articles talking about proteins in croc blood that are pretty awesome. The best explanation for us normal folks was a Cracked.com...

Tickling the baby would probably work well as respiratory therapy.... :D

Hey everyone! So after a particularly rough weekend in the CF sense I got a port today instead of the normal PICC line, I will be returning to my "normal" life tomorrow at school. I was wondering if anyone had any tips on having a port and using it as an outpatient as well as what kind of things...

I had this problem and it turned out to be because I had lung infections and we cough with the same muscles we puke with, so if you cough a lot and have refllux, you will puke... it sucks. I ended up on a high dose of prevacid and then just doing cleanouts when it got really bad. Generally if...

Perhaps if we as a society were to take a look at ourselves ad how many of the media's representations of our nation are false we would be able to live without constant worry. We will be fine, they system will change, but for the better. A life lived in fear, especially unfounded fears is not a...

True life, the media is ridiculous, stop worrying. Western society is pretty stable and oddly, the US is one of the more stable nations at the moment. Corrupt, but stable.

So I got the Aspergilosis pretty bad, and I live in Western Washington, humidity and a general dampness is unavoidable. My doc and some other professionals I have been talking too reccomend to get a good dehumidifier to compliment my air purifiers. Since I live in student housing I might get one...

I had/have a ton of surgical scar tissue in my gut in addition to pancreas stuff that keeps giving me obstructions. I ended up needed surgery every now and then to reduce the adhesions "matting" or "wrapped around" my intestine. It sucks, but there is nothing that can be done except maintenance...

^I like this guy. Thanks for the comments.

Yeah I was defiantly lucky, I had just gotten a picc pulled the day before and that would have gotten messy real fast. At least the chest x-ray was better than it has been for a while so there is a silver lining, <img src="i/expressions/face-icon-small-smile.gif" border="0">

Often orgs like local CFF chapters, Hospital fundraisers, ect. like to have poster children (so to to say). Unfortunately there is quite a bit of compassion fatigue at the moment and a great many places need volunteers, but not necessarily for CF. Through my work with United Way and the VOA I...

So today I totaled my car. It was scary and I am pretty sure I was in shock. My question to you all is is you have had experiences in accidents which caused adverse affects or complicated your CF? First to preemptivly answer some questions...1) It was a 98' Escort with airbags that had ythe...

So I like smelling good, I guess that is a positive trait. I know that the plug ins are bad for your lungs in general and I was curious about alternatives. You see I am blessed (sometimes cursed) with a wonderful olfactory system and things like aroma therapy, psychosomatic as they may be, are...