Cystic Fibrosis Forum (EXP)

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  1. J

    New Forums

    Sweet.
  2. J

    "red man syndrom"

    So yesterday I got addmitted and when they were doing my Vankomycin, over 90 minutes, my head began to itch like all hell and then I turned red. Has this happened to anyone else? MY docs are gonna do the Vanko over a longer time to see if that helps it.Thoughts?Comments? Thanks,Brandyn
  3. J

    cabin fever from ivs

    Read, online friends Skype, find a game to play. I would recommend Johnathan Kozal since you are a school teacher. Law and order marathons, have friends over for dinner, stuff like that.... I'm in the same boat. Best of Luck!
  4. J

    Looking for chart showing bacteria/average age of detection.

    My doc said aspergillus just kind of happens when it happens. Usually it has an environmental cause, for instance I got it after being being around mold and it gets worse during wet and humid seasons. I don't know if that is typical, but it seems like it would be. They may be, I was tested for...
  5. J

    Need perspective

    I have never resented my biological mother for it, I almost killed her during the pregnancy. That said, please do not take the risk of having children unless you get a sperm donor verified not to have a cf gene. I understand the want to have children, need almost, and I have seen it in other...
  6. J

    Pneumothorax: To fly or not to fly?

    Such a short flight should not have any pressure problems, a sudden drop is what you want to worry about and cabin pressure is very well controlled, if in doubt get a prescription to have a supplemental O2 with you for the trip. Being in Colorado is another issue entirely. It's just plain...
  7. J

    SSDI re-evaluation and Kalydeco

    Yep, fun paperwork... if you are really worried about it you can call them and ask about it. For some reason they did mine over the phone and they guy gave me the same answer Just Ducky got.
  8. J

    Nomenclature for describing mutations

    Duely noted for future use. I thought the heading was "nomenclature for describing mucus" which should exist, if it does not already.
  9. J

    Mucus?

    I found the vest doesn't do good but the Acapella helps me to get up the thick stuff, also doing steam treatments over a tea kettle or with a hot shower. My order of treatment, Albuterol, Pulmozyme, hot steamy shower, hi huffs and low huffs while in the shower, then acapella, then Advair. That's...
  10. J

    Anyone gluten intolerant as well as CF?

    So I shouldn't be eating MC Donalds and Jack in the box an a daily basis? jk. My sympathies to anyone with gluten intolerance, I hear it sucks.
  11. J

    Supreme Court Ruling Obamacare Upheld

    On TB- My docs boiled it down to Cfers being less likely to contract it because we have so much in our lungs anyway and are doing a lot of preventative care. Since TB happens a lot in bad environments or to populations lacking preventative care we are just less likely to get it. ON healthcare-...
  12. J

    Supreme Court Ruling Obamacare Upheld

    Ifg your insurance went up it is because your insurance company made that decision in order to make more money before it becomes illegal to gouge prices on the disabled. I have read the entire bill... it took while. It is solid legislation, complete will all the partisan crap you could hope for...
  13. J

    Dogs ok or not?

    My puppy licks my face if my sugars get too low... which is good and bad. Plus he is hypoallergenic.
  14. J

    Neuropsychiatric events with Singulair

    Well now I am glad my insurance denied singulair and I stayed on advair. Have you tried other long acting bronchio-dilators like Flovent or Advair? I don't know what all is in Singulair, but when I am on prednisone i get night terrors so there could be other meds having an effect coupled with...
  15. J

    medicare eligibility

    Wow you msut have a good social security officer for them to count back years. I know it is an automatic thing that the social security administration just does without you having to apply if you are already on SSI and Medicaid then as soon as you have 24 months done. I made the mistake of...
  16. J

    medicare eligibility

    Sorry I should have clarified my assumptions.
  17. J

    medicare eligibility

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>RytheStunner</b></i> I didn't say everyone can get it. But if you are deemed disabled and eligible for SSDI, then you automatically become eligible for Medicare 2 1/2 years after you gain SSDI eligibility. And yes, MOST CFers can get...
  18. J

    medicare eligibility

    You are right that was a bad choice of words. However, on the whole it is mush easier and faster to try and find something else for more immediate care then applying for Medicare before you are 65 or have been employed in specific places. He can try to apply for it, but it will take time. There...
  19. J

    medicare eligibility

    http://www.medicare.gov/MedicareEligibility/Home.asp?dest=NAV|Home|GeneralEnrollment#TabTop Most people cannot, there are programs available, but Medicare is only for those who have somehow earned it through retirement benefits or special and very specific employment histories... or if you...
  20. J

    medicare eligibility

    *the funding is federal.
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