Cystic Fibrosis Forum (EXP)

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  1. H

    Bactrim

    I used to use the liquid form of Bactrim instead of the pills. You can get the pill equivalent in liquid form. I used to vomit from the pills. The liquid was much easier on my system. You still need to eat a little something regardless of the form of Bactrim you use.
  2. H

    just spilled an entire vile of TOBI

    I am not sure if your insurance allows you to fill TOBI on the off cycle month. I tend to spill my meds a lot. I always keep an extra box of TOBI on hand in the refrigerator so I can have a full 28 day cycle. Maybe you can fill the TOBI again right before the 28 days is up.
  3. H

    just spilled an entire vile of TOBI

    I am not sure if your insurance allows you to fill TOBI on the off cycle month. I tend to spill my meds a lot. I always keep an extra box of TOBI on hand in the refrigerator so I can have a full 28 day cycle. Maybe you can fill the TOBI again right before the 28 days is up.
  4. H

    just spilled an entire vile of TOBI

    I am not sure if your insurance allows you to fill TOBI on the off cycle month. I tend to spill my meds a lot. I always keep an extra box of TOBI on hand in the refrigerator so I can have a full 28 day cycle. Maybe you can fill the TOBI again right before the 28 days is up.
  5. H

    G-Tube Button options

    I have a Mic-key. A G/J button has two ports. It has a gastric port (g) which is used for venting. The jejunal port (j) is used for feeding. If a person has poor motility, they might need to have their tube feedings go into their small bowel instead of their stomach. A Gastric Emptying Study...
  6. H

    G-Tube Button options

    I have a Mic-key. A G/J button has two ports. It has a gastric port (g) which is used for venting. The jejunal port (j) is used for feeding. If a person has poor motility, they might need to have their tube feedings go into their small bowel instead of their stomach. A Gastric Emptying Study...
  7. H

    G-Tube Button options

    I have a Mic-key. A G/J button has two ports. It has a gastric port (g) which is used for venting. The jejunal port (j) is used for feeding. If a person has poor motility, they might need to have their tube feedings go into their small bowel instead of their stomach. A Gastric Emptying Study...
  8. H

    G-Tube Button options

    Have you thought about trying Interventional Radiology for a fitting? If you are having a lot of leaking, you may need to increase your french size as well. I personally went from an 18 french to a 24 french. My leaking pretty much stopped. If you have motility issues, your doctors may need to...
  9. H

    G-Tube Button options

    Have you thought about trying Interventional Radiology for a fitting? If you are having a lot of leaking, you may need to increase your french size as well. I personally went from an 18 french to a 24 french. My leaking pretty much stopped. If you have motility issues, your doctors may need to...
  10. H

    G-Tube Button options

    Have you thought about trying Interventional Radiology for a fitting? If you are having a lot of leaking, you may need to increase your french size as well. I personally went from an 18 french to a 24 french. My leaking pretty much stopped. If you have motility issues, your doctors may need to...
  11. H

    Rogue cars, buses, and other cliches.

    I hate when people say " you do not look sick". This absolutely drives me crazy. I especially hear this at the pharmacy when up my several bags of medication.
  12. H

    Rogue cars, buses, and other cliches.

    I hate when people say " you do not look sick". This absolutely drives me crazy. I especially hear this at the pharmacy when up my several bags of medication.
  13. H

    Rogue cars, buses, and other cliches.

    I hate when people say " you do not look sick". This absolutely drives me crazy. I especially hear this at the pharmacy when up my several bags of medication.
  14. H

    Oral Thrush-Need help!

    I personally take fluconazole several times a month. It seems to keep by thrush under control. I have used Nystatin as well.
  15. H

    Oral Thrush-Need help!

    I personally take fluconazole several times a month. It seems to keep by thrush under control. I have used Nystatin as well.
  16. H

    Oral Thrush-Need help!

    I personally take fluconazole several times a month. It seems to keep by thrush under control. I have used Nystatin as well.
  17. H

    Hello from lock up land

    I am so happy you are being discharged. Happy Mother's Day!!!!
  18. H

    Hello from lock up land

    I am so happy you are being discharged. Happy Mother's Day!!!!
  19. H

    Hello from lock up land

    I am so happy you are being discharged. Happy Mother's Day!!!!
  20. H

    Hello from lock up land

    I am so happy you are being discharged. Happy Mother's Day!!!!
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