Cystic Fibrosis Forum (EXP)

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  1. H

    Sinus surgery

    I have had 5 sinus surgeries. I found the worse part to be the packing. My pain was controlled with Tylenol with Codiene all five times. Like others said, it will be important to irrigate your sinuses twice daily to promote healing.
  2. H

    Sinus surgery

    I have had 5 sinus surgeries. I found the worse part to be the packing. My pain was controlled with Tylenol with Codiene all five times. Like others said, it will be important to irrigate your sinuses twice daily to promote healing.
  3. H

    Sinus surgery

    I have had 5 sinus surgeries. I found the worse part to be the packing. My pain was controlled with Tylenol with Codiene all five times. Like others said, it will be important to irrigate your sinuses twice daily to promote healing.
  4. H

    on vacation but left pulmozyme at home

    I sent you a PM,
  5. H

    on vacation but left pulmozyme at home

    I sent you a PM,
  6. H

    on vacation but left pulmozyme at home

    I sent you a PM,
  7. H

    How do you guys deal?

    Sometimes I ask my doctor to obtain specific sample medications for me. I also take advantage of the $4.00 and $10.00 drug programs that places such as Target have. Luckily, my insurance does cover a good amount of the medication I need.
  8. H

    Acapella

    I have the Acapella Chioce as well since it can boiled. I use it when I do not want to carry my vest while traveling.
  9. H

    Acapella

    I have the Acapella Chioce as well since it can boiled. I use it when I do not want to carry my vest while traveling.
  10. H

    Acapella

    I have the Acapella Chioce as well since it can boiled. I use it when I do not want to carry my vest while traveling.
  11. H

    New PEG tube

    Before I switched a Mic-Key, I used an abdominal binder to help the PEG not be so visable under my clothes. I am not sure if they make them for kids. The Oley Foundation would be a great resource for you. Their web address is www.oley.org.
  12. H

    New PEG tube

    Before I switched a Mic-Key, I used an abdominal binder to help the PEG not be so visable under my clothes. I am not sure if they make them for kids. The Oley Foundation would be a great resource for you. Their web address is www.oley.org.
  13. H

    New PEG tube

    Before I switched a Mic-Key, I used an abdominal binder to help the PEG not be so visable under my clothes. I am not sure if they make them for kids. The Oley Foundation would be a great resource for you. Their web address is www.oley.org.
  14. H

    shakey hands?

    I personally get very shakey hands from Duo Neb. It was my understanding this medication was for patients 18 years old and up. I just checked my leaflet to be sure that is in my Duo Neb box. I would definately run this by your child's doctor.
  15. H

    shakey hands?

    I personally get very shakey hands from Duo Neb. It was my understanding this medication was for patients 18 years old and up. I just checked my leaflet to be sure that is in my Duo Neb box. I would definately run this by your child's doctor.
  16. H

    shakey hands?

    I personally get very shakey hands from Duo Neb. It was my understanding this medication was for patients 18 years old and up. I just checked my leaflet to be sure that is in my Duo Neb box. I would definately run this by your child's doctor.
  17. H

    Accordant Health Services?

    My insurance company is contracted with Accordant. Accordant said I had to join, but my insurance plan said it was totally up to me. I chose not to deal with them. They call about every three months to see if you are being compliant. I use the Accordant website for tips. They have good...
  18. H

    Accordant Health Services?

    My insurance company is contracted with Accordant. Accordant said I had to join, but my insurance plan said it was totally up to me. I chose not to deal with them. They call about every three months to see if you are being compliant. I use the Accordant website for tips. They have good...
  19. H

    Accordant Health Services?

    My insurance company is contracted with Accordant. Accordant said I had to join, but my insurance plan said it was totally up to me. I chose not to deal with them. They call about every three months to see if you are being compliant. I use the Accordant website for tips. They have good...
  20. H

    Miralax-how often/dosage?

    I take Miralax twice daily when I have bowel issues. I take Miralax and Lactulose daily. I also add Benifiber to my juice in the morning. This regiment works pretty well for me.
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