Cystic Fibrosis Forum (EXP)

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  1. H

    My Daughter is Afraid of the Albuterol Machine

    The Respronics Mini Elite is pretty quiet. In my opinion, it makes less noise than my ProNeb Ultra 2. The ProNeb noise level is not that bad either. I usually listen to my Ipod while doing nebs and vest to drown out the noise. Good luck!!
  2. H

    Nasty nasty mucus

    If your insurance only allows 12 Zofran pills per month, you could try Compazine. It works for nausea as well. I agree Phenergan does not work well except for putting one to sleep.
  3. H

    Nasty nasty mucus

    If your insurance only allows 12 Zofran pills per month, you could try Compazine. It works for nausea as well. I agree Phenergan does not work well except for putting one to sleep.
  4. H

    Nasty nasty mucus

    If your insurance only allows 12 Zofran pills per month, you could try Compazine. It works for nausea as well. I agree Phenergan does not work well except for putting one to sleep.
  5. H

    nausia

    I take Zofran for nausea, but I am not sure if you can use it while pregnant. Have you tried something natural like ginger tea or cola syrup?
  6. H

    nausia

    I take Zofran for nausea, but I am not sure if you can use it while pregnant. Have you tried something natural like ginger tea or cola syrup?
  7. H

    nausia

    I take Zofran for nausea, but I am not sure if you can use it while pregnant. Have you tried something natural like ginger tea or cola syrup?
  8. H

    G-tube covering for swimming?

    I am surprised your daughter has to wait five months to change over to a Mic-Key. The usual wait time for the stoma to form is 8 to 12 weeks. You could wrap the tube and cover it with Tegaderm (4x4) or AquaGuard. I would definately ask for the button sooner than August. I know people who swim...
  9. H

    G-tube covering for swimming?

    I am surprised your daughter has to wait five months to change over to a Mic-Key. The usual wait time for the stoma to form is 8 to 12 weeks. You could wrap the tube and cover it with Tegaderm (4x4) or AquaGuard. I would definately ask for the button sooner than August. I know people who swim...
  10. H

    G-tube covering for swimming?

    I am surprised your daughter has to wait five months to change over to a Mic-Key. The usual wait time for the stoma to form is 8 to 12 weeks. You could wrap the tube and cover it with Tegaderm (4x4) or AquaGuard. I would definately ask for the button sooner than August. I know people who swim...
  11. H

    feeding tubes and enzymes

    Enteral nutrition is a liquid form of nutrition delivered orally or to the gut. Some enteral formulas can be taken by mouth. I am on Isosource 1.5. I can drink it for extra nutrition if I choose to. I hope this helps.
  12. H

    feeding tubes and enzymes

    Enteral nutrition is a liquid form of nutrition delivered orally or to the gut. Some enteral formulas can be taken by mouth. I am on Isosource 1.5. I can drink it for extra nutrition if I choose to. I hope this helps.
  13. H

    feeding tubes and enzymes

    Enteral nutrition is a liquid form of nutrition delivered orally or to the gut. Some enteral formulas can be taken by mouth. I am on Isosource 1.5. I can drink it for extra nutrition if I choose to. I hope this helps.
  14. H

    alternative to Gatorade?

    I use a prodct called CeraLyte 70. It can be bought online. The website is www.ceraproductsinc.com
  15. H

    alternative to Gatorade?

    I use a prodct called CeraLyte 70. It can be bought online. The website is www.ceraproductsinc.com
  16. H

    alternative to Gatorade?

    I use a prodct called CeraLyte 70. It can be bought online. The website is www.ceraproductsinc.com
  17. H

    G-tube and insomnia

    Hi theLostMiller! I would definately have to say I feel best at night. I seem to get a burst of energy then especially from the extra nutrition. I hope I answered your question. If not, please let me know.
  18. H

    G-tube and insomnia

    Hi theLostMiller! I would definately have to say I feel best at night. I seem to get a burst of energy then especially from the extra nutrition. I hope I answered your question. If not, please let me know.
  19. H

    G-tube and insomnia

    Hi theLostMiller! <br />I would definately have to say I feel best at night. I seem to get a burst of energy then especially from the extra nutrition. I hope I answered your question. If not, please let me know.
  20. H

    St. Vincent's CF Clinic

    I am absolutely thrilled that Dr. Walker's team found a new home. Thanks you for passing on this information Christian. It made my day! Thanks Piper for your well wishes. Thanks for the "heads up" on Beth Israel. I did not know anything one way or another about the hospital since I live outside...
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