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<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Incomudrox</b></i> OP you take colistin yes? Probably for years? Colistin is ototoxic and neurotoxic it could be causing it along with high BSG like that... bad mix.</end quote> I do take colistin, but I have only taken 4-5 rounds in...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Incomudrox</b></i> OP you take colistin yes? Probably for years? Colistin is ototoxic and neurotoxic it could be causing it along with high BSG like that... bad mix.</end quote> I do take colistin, but I have only taken 4-5 rounds in...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> Your #s are only as high as 300? Anything above 140 is causing you damage, both to your lungs, and your nerves. You def have diabetic neuropathy <img src=""> Sorry to say.....</end quote> This made me laugh...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> Your #s are only as high as 300? Anything above 140 is causing you damage, both to your lungs, and your nerves. You def have diabetic neuropathy <img src=""> Sorry to say.....</end quote> This made me laugh...

Interesting...thanks for you input. They think my neuropathy is not from diabetes, since my numbers are only as high as 300, but ususally have more problems being low (35-45).

Interesting...thanks for you input. They think my neuropathy is not from diabetes, since my numbers are only as high as 300, but ususally have more problems being low (35-45).

Mine is in my chest. I prefer it there, because I access it myself, and it takes two hands...so if it was in my arm I don't think it would be possible for me to do on my own. It really doesn't bother me on my chest, and has never gotten in the way of anything (accessed or not). Goodluck, it's so...

Mine is in my chest. I prefer it there, because I access it myself, and it takes two hands...so if it was in my arm I don't think it would be possible for me to do on my own. It really doesn't bother me on my chest, and has never gotten in the way of anything (accessed or not). Goodluck, it's so...

Colisitin doesn't cause liver failure in everyone......just saying

Colisitin doesn't cause liver failure in everyone......just saying

Shea - Thanks so much for your prospective. I've spent the last month trying to talk to as many people as I can, and I think I finally feel like I know enough about the disease and possible treatments to know that I need to talk to a different doctor. I was exercising quite regularly for...

Shea - Thanks so much for your prospective. I've spent the last month trying to talk to as many people as I can, and I think I finally feel like I know enough about the disease and possible treatments to know that I need to talk to a different doctor. I was exercising quite regularly for...

I did ask about long acting, but they said I don't need it...I am going to have to get a second opinion

I did ask about long acting, but they said I don't need it...I am going to have to get a second opinion

Hi. My name is maggie. I'm 24. I have cfrd. I'm married (almost three years) to a man who is in the air force and disarms explosives for a living. I have the best dog.ever, penelope. My PFTs are good 80-100%. I live in Arizona even though i hate hot weather. I have an associates degree in...

Has anyone had this? What have you done for treatments, and have they helped at all?

Has anyone had this? What have you done for treatments, and have they helped at all?

I take colistin during my month off of tobi

I take colistin during my month off of tobi

Hey All, I'll try to keep this history as brief as possible: I was diagnosed with CFRD in September, with a week long continuous meter revealing highs. I was undiagnosed for at least 5 years because my A1C is normal (it has been 6.0, 5.5 and 5.3 in the past year), and my OGTT comes back normal...