Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. M

    CFTR2 Site is now active

    I had trouble finding my mutation. I did find more just by looking it up on google.
  2. M

    Pleurisy or lung inflammation

    Thank you so much for the feedback so far. I gave a sputum culture last week amd so far no news. Yes the inhale is what sets off the pain. My muscles are a mess from all the coughing. I have had croup 2-3 times this past winter and then a plain old cold. I was hoping the spring would have been...
  3. M

    Pleurisy or lung inflammation

    Thank you so much for the feedback so far. I gave a sputum culture last week amd so far no news. Yes the inhale is what sets off the pain. My muscles are a mess from all the coughing. I have had croup 2-3 times this past winter and then a plain old cold. I was hoping the spring would have been...
  4. M

    Pleurisy or lung inflammation

    I have been having horrible chest/sternum pain. Just got a call from the nurse that I may have simple lung inflammation or pleurisy. I am scheduled to go in next week and do another lung function test and do a chest x-ray. They started me on a predisone burst today to see if the tightness and...
  5. M

    Pleurisy or lung inflammation

    I have been having horrible chest/sternum pain. Just got a call from the nurse that I may have simple lung inflammation or pleurisy. I am scheduled to go in next week and do another lung function test and do a chest x-ray. They started me on a predisone burst today to see if the tightness and...
  6. M

    Boiling nebs?

    Vinegar is a natural cleaner. I used vinegar in lots of my cleaning projects including my nebs and flutter.
  7. M

    Boiling nebs?

    Vinegar is a natural cleaner. I used vinegar in lots of my cleaning projects including my nebs and flutter.
  8. M

    Boiling nebs?

    My guess is soap residue. I usually just boil my nebs in vinegar water.
  9. M

    Boiling nebs?

    My guess is soap residue. I usually just boil my nebs in vinegar water.
  10. M

    Calling all CF bloggers!

    Here is my blog link.... http://notenoughoxygen.blogspot.com/
  11. M

    Calling all CF bloggers!

    Here is my blog link.... http://notenoughoxygen.blogspot.com/
  12. M

    Sternum Pressure and Soreness

    I have been having pressure and tightness in my sternum the past few weeks (where the ribs connect on the left side). I get lots of muscle spasms on the left side of my chest. My chest gets tight.... if I cough enough the tightness loosens in the sternum area. I even have a sore (hot spot) on...
  13. M

    Sternum Pressure and Soreness

    I have been having pressure and tightness in my sternum the past few weeks (where the ribs connect on the left side). I get lots of muscle spasms on the left side of my chest. My chest gets tight.... if I cough enough the tightness loosens in the sternum area. I even have a sore (hot spot) on...
  14. M

    Oxygen Concentrator Question

    Thank you for the feedback. It is not super far off.... I am just a perfectionist with my health and my machines.
  15. M

    Oxygen Concentrator Question

    Thank you for the feedback. It is not super far off.... I am just a perfectionist with my health and my machines.
  16. M

    Oxygen Concentrator Question

    I have been on night time oxygen for a couple of weeks. I am renting a concentrator..... When I go to bed I set the oxygen on 2 liters. Some mornings it is slight lower than 2 liters (more like 1.75 liters). Why would the liter level drop during the night?? No one in my house is touching the...
  17. M

    Oxygen Concentrator Question

    I have been on night time oxygen for a couple of weeks. I am renting a concentrator..... When I go to bed I set the oxygen on 2 liters. Some mornings it is slight lower than 2 liters (more like 1.75 liters). Why would the liter level drop during the night?? No one in my house is touching the...
  18. M

    Obama & Healthcare

    I am enrolled in one of those state mandated health insurance plans. Something it covers well and most things it doesn't cover at all. Without it I would without coverage. We want to move states but if we do I will back where I started from..... no insurance. My husband is self employed so...
  19. M

    Hospital Stays - optimizing health and cost (and minimizing frustration)

    I was told by a nurse that some drugs have to be mixed with sugars. I ask for those that can be mixed with saline and the rest I just deal with. Walk the halls extra, walk around the room extra, watch between meal snacks is one way of keeping sugars down and also not get sluggish. I suppose for...
  20. M

    Hospital Stays - optimizing health and cost (and minimizing frustration)

    I was told by a nurse that some drugs have to be mixed with sugars. I ask for those that can be mixed with saline and the rest I just deal with. Walk the halls extra, walk around the room extra, watch between meal snacks is one way of keeping sugars down and also not get sluggish. I suppose for...
Top