Cystic Fibrosis Forum (EXP)

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  1. L

    inhaler Spacers

    hmm, iv'e always used them.. and switched a lot and i never notice a difference, but then again i don't take care of myself as good as i should <img src="i/expressions/face-icon-small-sad.gif" border="0">
  2. L

    I did the CF walk.

    I wish I would of gotten there earlier to do the walk... but this weekend or this week.. we are re-doing it! haha <img src="i/expressions/face-icon-small-smile.gif" border="0"> (P.S. everyone, i AM ALYSSA POWERS) psft yeah.
  3. L

    getting pregnant with 47% FEV!???

    Hmm.. well I really wouldn't know about this because I am only 16 and I have never been pregnant but I do have LOW PFTS! I think that it's mainly a matter of motivation, and setting your goals. If you are willing to take care of yourself 110% while being low... you have to be willing 200% with...
  4. L

    There has to be a God.

    Okay, so recently... my friend Merritt & I have met, for the first time. I drove up to oregon to meet her. Well, Merritt and I are in a Candy shop at the Bayfront in Oregon.. and the song.. "Angels in Waiting comes on". (Merritt has CF too btw.) I mean, that song isn't even popular AT ALL! But...
  5. L

    I'm Baaaaack!

    Welcome back <img src="i/expressions/face-icon-small-smile.gif" border="0"> I don't think it's bad you did that stuff... It's good to jumble the ***** out of your lungs !
  6. L

    Coughing up Blood

    I cough up blood sometimes, My doctors said that pulmozyme can sometimes start this. I don't take pulmozyme anymore, and I don't cough up blood either. I don't think you should worry unless it's more than a few tablespoons full at a time.. other wise, you're okay.
  7. L

    What do you think about p[eople that dont do there treatment?

    Hmm, Well I am not sure this is a very fair question. More like, what do you think about not taking treatments? I don't take my treatments as much as I am supposed to.. as a matter of fact I am supposed to be taking my treatments as I type this. I think that some kids go through a rebelious...
  8. L

    Happy Birthday Emily!

    HAPPY BIRTHDAY EMILY <3 hope all your dreams and wishes come true.. and you are officially able to do WHATEVER the hell you want how does this make you feel? hehe. well.. you can't run for president yet.. ya gotta be 30.. gosh, your growing up so fast.. i love you xo, alyssa
  9. L

    Predisone?

    <font color=ff22aa> Hey! My lungs have really never been that bad. I know that a lot of CFers have it a lot worse than me so I never complain. Well, my grandma always used to say. "Don't say something bad, because then it will happen." And she is a strong believer in that. Well, when I got done...
  10. L

    the vest

    Hi, I know many people have already said that they like the vest, and then some of them don't. I personally do not like the vest, because I do not feel that it does it's job as best as it can. Although, a lot of people like to use the vest... because some people have benifits from it. I think...
  11. L

    Refrigerate Enzymes?????

    Oops, I forgot to log in. The last post was by me. (The post about Standford.)
  12. L

    Refrigerate Enzymes?????

    Hey! Oh my gosh... I know your son Austin Warkington (I think thats how you spell it.) We went to school together for a long time at Project City! I have cysitic fibrosis also. And Yeah, I go to UCDMC too HOW AWESOME! Lol, sorry I just got really excited. Anyways, they never told me to put my...
  13. L

    diabetes

    Yes, a lot of us CFers get it. It is called "CFRD" (Cystic Fibrosis related Diabetes). About 75% of us get it before our mid-twenties.
  14. L

    Problems with enzymes such as Ultrase MT(s)?

    The title just pretty much states it. I have been taking Ultrase MT20's for quite a while now, about 5 years... All of a sudden I have had problems with them. If you guys remember I had posted a topic about me having stomach problems. Well we had researched it and the problem was, my enzymes...
  15. L

    Pulmozyme

    Hey! My name is Alyssa and I am 16 years old with CF. I have been doing pulmozyme for about two years now... When I first started pulmozyme it was definatly the best thing thats ever happened to my medicine collection! I love it. Anyways, I do my pulmozyme at night, right after I do my...
  16. L

    CF and Bowel Problems?

    Hi, I don't post here often... but when I do, it's usually something that is bothering my health. So here we go... Iv'e had Cystic Fibrosis ever since I was 3 months old and ever since then iv'e rarely been hospitalized. Iv'e only been in for a tune-up twice in my life, once when i was...
  17. L

    ultrase

    How come you take 10 in the morning and 10 at night? just not with your meals/snacks?
  18. L

    ultrase

    How come you take 10 in the morning and 10 at night? just not with your meals/snacks?
  19. L

    The Enzymes Pancrease MT 20 im having problems...

    My doctors have recently put me on these new enzymes. I have taken them when I was a toddler, and a infant. I used to take Ultrase MT 20 before these. But I Have been getting the CF stomache aches and I have had to go to the bathroom alot more with these pills. I do not think they are working...
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