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Hey, I am a 15 yr old w/cf and I know what it is like to experiance those nasty milkshakes that the Doctors give you to gain weight. these are some supliments Iv'e tried...Ensure - Very thick and vitamney (1/10)Boost - Ew. (0/10)Scandy Shakes aka Sandy Shakes - Does not mix well, But if you put...
RE:Your opinion on the term "cystic" or"Cysti" is it offensive to you?
Hey, I am a 15fw cf and I have only been labled a CFer, But when people call me "diseased" Or they question me if they can get it from me or they act as if I have AIDS or something, then I do get offended. But once you get...
Hello!Yes, I use the Neb, and I use it when i wake up (school days 7 weekends... god only knows) The afternoon, and before bedtime.My doctors have me on Albuterol for the Neb because the say that i can actually take it in and give it time. But i also take Albuterol in the regular Inhaler (for...
Hi, my name is alyssa. I have Cystic fibrosis. I have heard that it being common in most CFers. It happens to me sometimes. But my hair is very, very (very) thick (pathetically). I have to go get my hair thinned to make it thinner. But yes, dont worry hon, nothing is wrong it is common but if it...
Hi, my name is Alyssa Powers, and I have CF i am 14 yrs old. I really want to talk to a girl around my age... 12-15 to talk to. I want to be able to bond with people and help people, and them help me. I tried getting ahold of Kayla Whitly, But she did not asnwer her phone. so If you can drop...
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