Cystic Fibrosis Forum (EXP)

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  1. I

    many without power and water in the NorthEast

    I just got a message from hmw and she is still without power and water, meeting beleache today and her power is just being restored.<div>I know many more are suffering losses through this awful storm to hit the Northeast.</div><div><br></div><div>Know we are praying for a quick recovery of power...
  2. I

    Hurricane Stay Safe east coast USA

    <a href="http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm269766.htm?utm_source=twitterfeed&utm_medium=twitter">http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm269766.htm?utm_source=twitterfeed&utm_medium=twitter</a><div><br></div><div><br></div>
  3. I

    CFTechnology

    We had a wonderful response to the launch of our CFTechnology Foundation yesterday. Many people want to work with us and we received our first donations. One of the commenters said it succinctly: "I believe this has enormous potential, connecting needs with a specific crowd and allowing...
  4. I

    Diabetes App helpful

    http://www.ama-assn.org/amednews/2011/08/15/bise0817.htm
  5. I

    Pulmatrix new drug moving forward

    <span class="Apple-style-span" style="font-family: 'Lucida Grande', 'Segoe UI', 'Bitstream Vera Sans', Tahoma, Verdana, Arial, sans-serif; font-size: 13px; line-height: 20px; background-color: rgb(255, 255, 255); "><a...
  6. I

    Chronicinfectionproblem

    <a href="http://chronicinfectionproblem.com/">http://chronicinfectionproblem.com/</a><div><br></div><div>Testing for biofilms...</div><div><br></div><div>what do you think?</div>
  7. I

    does your doctor/center know genetic medicine

    http://community.jax.org/genetics_health/b/weblog/archive/2011/08/01/doctors-knowledge-of-personalized-medicine-remains-poor.aspx With CF, I think the answer is yes...but interesting to know we are all learning this fascinating topic together! Jeanne
  8. I

    a new site to compare healthcare quality and cost!

    http://www.rwjf.org/qualityequality/product.jsp?id=71857 At CF.com, we compare quality all the time!
  9. I

    the whole genome

    http://www.nytimes.com/2011/06/03/science/03wsfcancer.html?_r=2&hpw I think you can substitute the term CF for "cancer" and it all applies!<br>More on this later. Jeanne
  10. I

    Remembering Mel

    <a target="" title="" href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=51058">http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=51058</a><br><br>
  11. I

    Patient directed clinical trials?

    Read my current blog at eyeforpharma to see how Innovative Pharma can capture the spirit of crowdsourcing and user-generated content in R&D. <a href="http://social.eyeforpharma.com/blogs/jeanne-barnett/patient-power-technology-treatments"...
  12. I

    New Therapy for a cure

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.newswise.com/articles/view/575913/?sc=rsmn&utm_source=twitterfeed&utm_medium=twitter&utm_campaign=Feed%3A+NewswiseMednews+%28Newswise%3A+MedNews%29">Newswire</a> Combination therapy provides hope for a cure.
  13. I

    HSS report

    Mobile matters, place shifting from hospitals to home What you think! Read my new blog on <a target=_blank class=ftalternatingbarlinklarge href="http://social.eyeforpharma.com/story/future-pharma-home-healthcare-center">home as the center of healthcare</a> Jeanne
  14. I

    lost threads

    Ennio is working on our database this morning. With over 2 million messages, it works hard and needs some attention. Some threads have lost the connection to their messages. The messages themselves are not lost...just the connection. Ennio is working on this now and I am confident he will...
  15. I

    QR Codes on all medicines and equipment

    <a target=_blank class=ftalternatingbarlinklarge href="http://social.eyeforpharma.com/story/how-quick-response-codes-can-help-pharma-engage-patients">QR Codes and how they may be used</a> <img src="http://i51.photobucket.com/albums/f389/Jeannilou/cfqrcode.jpg">
  16. I

    QR codes

    This QR code leads to Beleache's Great Stride event! Though they have been around for 17 years, and used widely in Japan, QR codes are now appearing everywhere: business cards, stamps, stickers, coupons, wrapping paper, boxes, magnets, letterhead, envelopes, signs, TV commercials, and...
  17. I

    Run to Breathe

    It is time to get ready for the Boomer Cystic Fibrosis Run to Breathe, a happening in Central Park, NYC on July 9th. It's important to sign up early. You must register <b>both</b> with Team Boomer and for the event itself. <b>Apply</b> Go to the for official information on Boomer's Cystic...
  18. I

    Lung Engineering

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.jove.com/details.php?id=2651">Lung Engineering</a>
  19. I

    Printing a human kidney

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.ted.com/talks/anthony_atala_printing_a_human_kidney.html">Printed human kidney</a>
  20. I

    Drug collaborations colistin

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.drugdiscoverynews.com/index.php?newsarticle=4586">Collaboration between Germany and NYC companies</a>
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