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I've noticed so many threads here on different ways we can be more mindful of the products we use and what in the environment is affecting our airways and skin and sinuses.
I am very aware because Peter (hubby) has so many allergies...food, wool, nature everything really. I try to be aware...
Please take a look at our new:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/tips_julie.cfm">Julie's Page</a>
Many of you have requested and benfitted from Julie's food log and tax tips. It's now available from our home page...so take advantage and send...
Dear Community,
I hate to bring the news that the appeal for the Gilead Sciences' Aztreonam Lysine for Inhalation (AZLI) was not approved by the FDA.
Gilead had appealed the original decision not to approve the drug.
With the approval of this drug would have come the FDA approval for the...
Ennio told me that certain scripts need to be downloaded and if your computer doesn't have the updates...some things will go wrong with the blogs...bottom line is he disabled this feature from all the blogs...so you shouldn't have trouble posting...i.e. ReadytoDance's blog had trouble accepting...
Please enjoy this instant chat!
You post in the column to the left...but look for the posts on the homepage...next to the CF NEWS...gotcha..looking at the latest news!
Imogene
Hermit was an active member a while back...and I think everyone who knew her loved her.
She had her transplant in western Canada. She and her family can use all the positive vibes and prayers you can give them.
It's a tough one...stay focused on this..
Peace and Mercy~ Jeanne
I stayed up late reading this last night...
Some of you may think it's interesting!
<a target=_blank class=ftalternatingbarlinklarge href="http://www.wired.com/medtech/genetics/magazine/17-02/ff_diygenetics">from Wired Magazine</a>
Jeanne
Pre-Transplant - Gearing Up for New Beginnings...
Jerry Cahill, 52 years old, Living Breathing Succeeding with cystic fibrosis talks about being listed for a double lung transplant. Exercise has been a key factor in his life to keep his lungs clear and continues to be important...
CF Living, sponsored by Genentech,(click on the CFLiving banner at the top of the page to join) also consists of an onoing eNewsletter program that is goaled with educating patients around important topics such as treatment adherence, general health, appropriate use of medical devices, the role...
CF Living, sponsored by Genentech,(click on the banner at the top of the page to join) also consists of an onoing eNewsletter program that is goaled with educating patients around important topics such as treatment adherence, general health, appropriate use of medical devices, the role of a...
Dear e-Patients:
Health Care Community Discussion Groups are being held in homes and places of work all over the country.
Again, having CF, it is not advisable to physically congregate.
The issues we have here at CysticFibrosis.com are very unique to this category.
For these reasons, I've...
These questions are being discussed from December 15th-26th in small groups all over the US.
There are a total of 7 questions.
Please see my blog: Change.gov for the background information.
We will make a group submission at the end of the timeframe.
I look forward to your responses~...
In addition to employer-based coverage, would you like the option to purchase a private plan through an insurance-exchange or a public plan like Medicare?
Below are examples of the types of preventive services Americans should receive. Have you gotten the
prevention you should have? If not, how can public policy help?
EXAMPLES OF RECOMMENDED PREVENTIVE SCREENINGS
Screening Mammography:
. All of the major professional societies that make...
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