Cystic Fibrosis Forum (EXP)

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    New Feature POLLING!

    Thanks Andrei for this new "easy to use" feature. Enjoy using the Poll feature. Imogene
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    Green Category

    I've noticed so many threads here on different ways we can be more mindful of the products we use and what in the environment is affecting our airways and skin and sinuses. I am very aware because Peter (hubby) has so many allergies...food, wool, nature everything really. I try to be aware...
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    Julie Page

    Please take a look at our new: <a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/tips_julie.cfm">Julie's Page</a> Many of you have requested and benfitted from Julie's food log and tax tips. It's now available from our home page...so take advantage and send...
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    Gilead

    Dear Community, I hate to bring the news that the appeal for the Gilead Sciences' Aztreonam Lysine for Inhalation (AZLI) was not approved by the FDA. Gilead had appealed the original decision not to approve the drug. With the approval of this drug would have come the FDA approval for the...
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    JavaScript

    Ennio told me that certain scripts need to be downloaded and if your computer doesn't have the updates...some things will go wrong with the blogs...bottom line is he disabled this feature from all the blogs...so you shouldn't have trouble posting...i.e. ReadytoDance's blog had trouble accepting...
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    Cystic Fibrosis.com WALL

    Please enjoy this instant chat! You post in the column to the left...but look for the posts on the homepage...next to the CF NEWS...gotcha..looking at the latest news! Imogene
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    Hermit

    Hermit was an active member a while back...and I think everyone who knew her loved her. She had her transplant in western Canada. She and her family can use all the positive vibes and prayers you can give them. It's a tough one...stay focused on this.. Peace and Mercy~ Jeanne
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    Wired Magazine

    I stayed up late reading this last night... Some of you may think it's interesting! <a target=_blank class=ftalternatingbarlinklarge href="http://www.wired.com/medtech/genetics/magazine/17-02/ff_diygenetics">from Wired Magazine</a> Jeanne
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    Jerry Cahill

    Pre-Transplant - Gearing Up for New Beginnings... Jerry Cahill, 52 years old, Living Breathing Succeeding with cystic fibrosis talks about being listed for a double lung transplant. Exercise has been a key factor in his life to keep his lungs clear and continues to be important...
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    CFLiving Banner

    CF Living, sponsored by Genentech,(click on the CFLiving banner at the top of the page to join) also consists of an onoing eNewsletter program that is goaled with educating patients around important topics such as treatment adherence, general health, appropriate use of medical devices, the role...
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    CFLiving

    CF Living, sponsored by Genentech,(click on the banner at the top of the page to join) also consists of an onoing eNewsletter program that is goaled with educating patients around important topics such as treatment adherence, general health, appropriate use of medical devices, the role of a...
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    Community Health Care Groups Meeting

    Dear e-Patients: Health Care Community Discussion Groups are being held in homes and places of work all over the country. Again, having CF, it is not advisable to physically congregate. The issues we have here at CysticFibrosis.com are very unique to this category. For these reasons, I've...
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    Health Care Community Discussions

    These questions are being discussed from December 15th-26th in small groups all over the US. There are a total of 7 questions. Please see my blog: Change.gov for the background information. We will make a group submission at the end of the timeframe. I look forward to your responses~...
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    Question 1

    Briefly, from your own experience, what do you perceive is the biggest problem in the health system?
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    Question 2

    How do you choose a doctor or hospital? What are your sources of information? How should public policy promote quality health care providers?
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    Question 3

    In addition to employer-based coverage, would you like the option to purchase a private plan through an insurance-exchange or a public plan like Medicare?
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    Question 4

    Have you or your family members ever experienced difficulty paying medical bills? What do you think policy makers can do to address this problem?
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    Question 5

    Do you know how much you or your employer pays for health insurance? What should an employer's role be in a reformed health care system?
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    Question 6

    Below are examples of the types of preventive services Americans should receive. Have you gotten the prevention you should have? If not, how can public policy help? EXAMPLES OF RECOMMENDED PREVENTIVE SCREENINGS Screening Mammography: . All of the major professional societies that make...
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    Question 7

    How can public policy promote healthier lifestyles?
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