Cystic Fibrosis Forum (EXP)

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  1. M

    Strange pain in lung

    Its possible you may have just strained a muscle from coughing. Is there any over the counter pain reliever you can take that has worked? (I'm not sure what you can have seeing as you're pregnant) I recently had problems with lots of lung/rib pain but it turned out I had a bad exacerbation. Hope...
  2. M

    Sport was my life, can i ever get that back?

    Not to be too mean but I'm gonna chime in on the hard side here. CF isn't something you can ignore and think you beat it, no matter how well you were doing before if you do nothing to take care of yourself you'll end up getting taken out by it a lot sooner than you should. I feel I can say this...
  3. M

    Sport was my life, can i ever get that back?

    Not to be too mean but I'm gonna chime in on the hard side here. CF isn't something you can ignore and think you beat it, no matter how well you were doing before if you do nothing to take care of yourself you'll end up getting taken out by it a lot sooner than you should. I feel I can say this...
  4. M

    Sport was my life, can i ever get that back?

    Not to be too mean but I'm gonna chime in on the hard side here. CF isn't something you can ignore and think you beat it, no matter how well you were doing before if you do nothing to take care of yourself you'll end up getting taken out by it a lot sooner than you should. I feel I can say this...
  5. M

    Looking for advice--Exercise/PF's

    I know exactly how you feel, I use to be extremely active in marching band, softball, ice hockey in high school and when I went to college I got really sick and had to give everything up. Now I'm waiting for a lung transplant and can't even walk long distances without getting completely out of...
  6. M

    Looking for advice--Exercise/PF's

    I know exactly how you feel, I use to be extremely active in marching band, softball, ice hockey in high school and when I went to college I got really sick and had to give everything up. Now I'm waiting for a lung transplant and can't even walk long distances without getting completely out of...
  7. M

    Looking for advice--Exercise/PF's

    I know exactly how you feel, I use to be extremely active in marching band, softball, ice hockey in high school and when I went to college I got really sick and had to give everything up. Now I'm waiting for a lung transplant and can't even walk long distances without getting completely out of...
  8. M

    Coughing.......UGH!

    Have you tried proping yourself up on some pillows to sleep? I know for me certain positions make me cough more, or when I'm starting to get sick. Sometimes I have a lot of trouble with sinus drainage and that's always the worst cough to get rid of because it turns into a dry tickle in the back...
  9. M

    Coughing.......UGH!

    Have you tried proping yourself up on some pillows to sleep? I know for me certain positions make me cough more, or when I'm starting to get sick. Sometimes I have a lot of trouble with sinus drainage and that's always the worst cough to get rid of because it turns into a dry tickle in the back...
  10. M

    Coughing.......UGH!

    Have you tried proping yourself up on some pillows to sleep? I know for me certain positions make me cough more, or when I'm starting to get sick. Sometimes I have a lot of trouble with sinus drainage and that's always the worst cough to get rid of because it turns into a dry tickle in the back...
  11. M

    Heart Problems

    My heart rate is always high, usually 100-120 or higher when sick. My docs have never been too concered, they pass it off as being due to meds I'm on the my heart having to work harder with such low pfts. I've had several echo's done and they've all been fine, I had a right heart cath recently...
  12. M

    Heart Problems

    My heart rate is always high, usually 100-120 or higher when sick. My docs have never been too concered, they pass it off as being due to meds I'm on the my heart having to work harder with such low pfts. I've had several echo's done and they've all been fine, I had a right heart cath recently...
  13. M

    Heart Problems

    My heart rate is always high, usually 100-120 or higher when sick. My docs have never been too concered, they pass it off as being due to meds I'm on the my heart having to work harder with such low pfts. I've had several echo's done and they've all been fine, I had a right heart cath recently...
  14. M

    Interesting research article

    I don't know about singing personally but I can definitely say this works with playing an instrument. I was in band and marching band in jr high and high school and I had great pfts, when I graduated and stopped playing my pfts really started to drop
  15. M

    Interesting research article

    I don't know about singing personally but I can definitely say this works with playing an instrument. I was in band and marching band in jr high and high school and I had great pfts, when I graduated and stopped playing my pfts really started to drop
  16. M

    Interesting research article

    I don't know about singing personally but I can definitely say this works with playing an instrument. I was in band and marching band in jr high and high school and I had great pfts, when I graduated and stopped playing my pfts really started to drop
  17. M

    More nebs or straight to IVs for a 3 yr old?

    Edan sounds like you are talking about Intermates. That's what I get for home ivs too and it makes doing home ivs a piece of cake. As far as another oral med vs. ivs when I was that age they probably would have tried the oral but the docs seem to be much more aggressive in treatment now than...
  18. M

    More nebs or straight to IVs for a 3 yr old?

    Edan sounds like you are talking about Intermates. That's what I get for home ivs too and it makes doing home ivs a piece of cake. As far as another oral med vs. ivs when I was that age they probably would have tried the oral but the docs seem to be much more aggressive in treatment now than...
  19. M

    More nebs or straight to IVs for a 3 yr old?

    Edan sounds like you are talking about Intermates. That's what I get for home ivs too and it makes doing home ivs a piece of cake. As far as another oral med vs. ivs when I was that age they probably would have tried the oral but the docs seem to be much more aggressive in treatment now than...
  20. M

    HYPERTENSION OF THE RIGHT LUNG???

    I know its one of the things they check for during a transplant evaluation and I guess its fairly common with people with severe lung disease/low pfts. But if you're healthy enough to have a baby then you probably have nothing to worry about.
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