Cystic Fibrosis Forum (EXP)

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  1. M

    Trouble Breathing

    If something doesn't feel right to you I wouldn't let it go, your doctor isn't you so he can't know how you feel. Do you have asthma or take any meds to control it? I know sometimes even when I finish abx for an exacerbation my asthma flairs up for a while and I feel worse even if I'm not...
  2. M

    Update!..I had my bone density scan..

    Its completely normal for this to happen, osteoperosis/osteopenia goes along with CF like many other things because we don't absorb all our calcium and Vit D. I was on Fosamax originally but had horrible side effects from it and was switched to Boniva which has been fine but I have trouble...
  3. M

    Update!..I had my bone density scan..

    Its completely normal for this to happen, osteoperosis/osteopenia goes along with CF like many other things because we don't absorb all our calcium and Vit D. I was on Fosamax originally but had horrible side effects from it and was switched to Boniva which has been fine but I have trouble...
  4. M

    Update!..I had my bone density scan..

    Its completely normal for this to happen, osteoperosis/osteopenia goes along with CF like many other things because we don't absorb all our calcium and Vit D. I was on Fosamax originally but had horrible side effects from it and was switched to Boniva which has been fine but I have trouble...
  5. M

    desperately need advice

    Yeah definitely tell her if she looks up things online not to believe everything she reads, there is a lot of out of date info out there! I've told people before that I have lung problems and that I get infections easier and that's why I have to take medicines and do ivs. That may be a good way...
  6. M

    desperately need advice

    Yeah definitely tell her if she looks up things online not to believe everything she reads, there is a lot of out of date info out there! I've told people before that I have lung problems and that I get infections easier and that's why I have to take medicines and do ivs. That may be a good way...
  7. M

    desperately need advice

    Yeah definitely tell her if she looks up things online not to believe everything she reads, there is a lot of out of date info out there! I've told people before that I have lung problems and that I get infections easier and that's why I have to take medicines and do ivs. That may be a good way...
  8. M

    desperately need advice

    It can definitely be hard to tell someone you've known for a long time about CF. I know how you feel to some extent, I have several friends who I've known for years that still don't know I have CF and I'm waiting for transplant now, so I'm facing the same thing. How do I tell them I'm waiting...
  9. M

    desperately need advice

    It can definitely be hard to tell someone you've known for a long time about CF. I know how you feel to some extent, I have several friends who I've known for years that still don't know I have CF and I'm waiting for transplant now, so I'm facing the same thing. How do I tell them I'm waiting...
  10. M

    desperately need advice

    It can definitely be hard to tell someone you've known for a long time about CF. I know how you feel to some extent, I have several friends who I've known for years that still don't know I have CF and I'm waiting for transplant now, so I'm facing the same thing. How do I tell them I'm waiting...
  11. M

    Nebs in the car

    I use to have a compressor that actually came with a power cord that plugged into a cigarette lighter. Maybe that would be an option for you?
  12. M

    Nebs in the car

    I use to have a compressor that actually came with a power cord that plugged into a cigarette lighter. Maybe that would be an option for you?
  13. M

    Nebs in the car

    I use to have a compressor that actually came with a power cord that plugged into a cigarette lighter. Maybe that would be an option for you?
  14. M

    Medical Travel Cards

    I found this article interesting and wanted to share it with everyone as I know someone had brought up the subject of security screenings at airports. This might come in handy for explaining a med port or PICC during screenings! <a target=_blank class=ftalternatingbarlinklarge...
  15. M

    Medical Travel Cards

    I found this article interesting and wanted to share it with everyone as I know someone had brought up the subject of security screenings at airports. This might come in handy for explaining a med port or PICC during screenings! <a target=_blank class=ftalternatingbarlinklarge...
  16. M

    Medical Travel Cards

    I found this article interesting and wanted to share it with everyone as I know someone had brought up the subject of security screenings at airports. This might come in handy for explaining a med port or PICC during screenings! <br /> <br /><a target=_blank class=ftalternatingbarlinklarge...
  17. M

    Any Cf'ers had low potassium levels?

    I haven't had anything as severe as you described but I have been told a few times that my potassium was a little on the low side. I've had periods of bad muscle spasms/cramps in my calves and feet and wondered if it had something to do with it, but never really bothered to ask.
  18. M

    Any Cf'ers had low potassium levels?

    I haven't had anything as severe as you described but I have been told a few times that my potassium was a little on the low side. I've had periods of bad muscle spasms/cramps in my calves and feet and wondered if it had something to do with it, but never really bothered to ask.
  19. M

    Any Cf'ers had low potassium levels?

    I haven't had anything as severe as you described but I have been told a few times that my potassium was a little on the low side. I've had periods of bad muscle spasms/cramps in my calves and feet and wondered if it had something to do with it, but never really bothered to ask.
  20. M

    Tummy Issues on Antibiotics

    That sounds like a pretty common thing for Augmentin, my docs stopped prescribing it for me when I was little because it gave me so much trouble. Now when I'm on abx for more than a week I start having stomach issues. I don't know if you take a probiotic or not but this past round of ivs I...
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