Search results

hey guys, for those of you who do NOT have ports, i was curious your thoughts on this subject: do you go into the hospital and get started on antibiotics with a peripheral IV when you know you might not be able to get a picc in for a couple or few days? i ask because the CF clinic day at...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.newsobserver.com/news/story/735688.html">News & Observer</a> sorry i couldn't cut and paste, the article is two pages.

i haven't seen her on IM or read any posts about her...how's she doing? or how are YOU doing if you are reading this, marie! <img src="i/expressions/face-icon-small-smile.gif" border="0">

i was wondering if it takes you guys a while to cough productively after you start your vest. recently (as in weeks and months) it seems like it takes me longer to get going and i'm not sure why this is. in the first 5 mins doing my vest i'll probalby cough one good cough; then it seems to...

i'm curious if anyone knows the real deal with the HS shortage. i've never had a problem getting it until i ordered it last time about a month ago. the woman at the pharmacy who does the special orders was told that it would be available the second week of september; she has tried several...

<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=24128&catid=191 ">http://blogs.cysticfibrosis.co...eadid=24128&catid=191 </a> i wanted to repost my blog for those of you who didn't get a chance to see it. i think it will really hit...

cleaning makes me especially irritated these days--and i'm not talking about not wanting to do it! we have all hardwood floors, so when i sweep, i am exposed to all kinds of dust mites, pet dander and fur, dirt, etc. i know that i am very allergic to both dust mites and pet hair. generally i...

Scientists at UNC-Chapel Hill have discovered a new weapon against drug-resistant bacteria <a target=_blank class=ftalternatingbarlinklarge href="http://www.newsobserver.com/print/tuesday/city_state/story/632180.html">News & Observer story</a>

am i super paranoid about running the air out of my tubing before each dose, even if it's only 6 inches or so? the nurses always seem to be like, oh, you need a LOT of air to hurt you. but if you let a little in many times, does that give the same result? thanks.

am i super paranoid about running the air out of my tubing before each dose, even if it's only 6 inches or so? the nurses always seem to be like, oh, you need a LOT of air to hurt you. but if you let a little in many times, does that give the same result? thanks.

long story short, i've been on ivs for a month now (switched meds a week ago). i'm going in for PFTs on monday and my doctor mentioned possibly adding in some prednisone depending on my numbers. what is y'alls experience with this (short term steroid use)? also, any ill effects besides...

have any of us CFers ever knowingly gotten a bug while in the hosptial? and you're pretty sure it came from there and not somewhere else?? i know a lot of us like to avoid the hospital for this reason. just wondering how founded our paranoia is?

i'm thinking of cycling Tobi and i culture PA, cepacia as well as staph. for those of you with PA and cepacia, what has your experience been? my doctor has told me that there isn't a lot of data that says cycling Tobi increases lung function or decreases the number of exaccerbations...but yet...

hello. i'm coming up on two weeks on my IVs. at first, i thought my progress of getting better was so slow that i would for sure have to go for three weeks instead of just two. (i guess two weeks is normal for me.) but now i am beginning to lean toward just the two weeks. what do you guys...

i'm looking for something to monitor my sats. right now, i'm just interested in using it at different times of the day, but i'd also eventually like to use when i exercise. so, something portable would be good. i'm willing to spend between $100-$200. thanks.

i'll make this brief, just wanted to know if anyone had any ideas. i got a cold over a week ago. i felt really awful for a few days, then i got a little better. i now have some of my energy and apetite back, but have been having whole body ache feelings, a lot of fatigue, possible temperature...

i'm hoping you guys can help. my father has emphysema and is considering going on oxygen, but he has some reservations. i was hoping you all could share some of your experiences that i could then share with him. your responces could include answers to the following: what were your...

is anyone else as frustrated with the process for logging in to see your Great Strides account online? i wish they could have something a little more user friendly. as it is now, you have to go to the main CFF page, click on Great Strides, which pulls up another window, click on Find Walker...

my dad is trying to find out info about alternative therapies, what other people are doing, experimental stuff, etc. i am going to do some looking around, but thought one of you may have stumbled upon something like that? thanks!

last year i signed up for great strides only to realize that i cannot attend because i culture cepacia. i thought about trying to collect donations from people anyway, but i didn't feel like explaining why i wouldn't be able to walk to everyone. does anyone have any ideas on what i should do...