Cystic Fibrosis Forum (EXP)

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  1. C

    free bubbles mask & coloring book

    hello...i have a bubbles the fish mask (unopened) and coloring book (sorry, no stickers! <img src="i/expressions/face-icon-small-smile.gif" border="0"> ) that came with my pari pediatric model nebulizer. anyone interested? if so, please PM me...
  2. C

    reflections on the vest

    hey everyone, i wanted to share some reflection i've had on the vest recently. i was recently on vacation for 10 days and did not take my vest. instead, i did 15 min. of albuterol/hypertonic saline (HS) and then about 15 minutes of flutter. (usually i do 30 min of the vest along with my...
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    costa rica pictures

    hey everyone, i wanted to give you the link to my blog where you can see my costa rica pictures and read about my trip. it was fantastic! and i think you'll really enjoy it... <a target=_blank class=ftalternatingbarlinklarge...
  4. C

    cleaning acapella choice on the go

    i have to admit: i am new to my acapella--i've had it a few weeks and only used it a few times. i got it maily to have something besides my flutter to take on my costa rica trip. but i am worried how i will clean this thing. the flutter i can just wipe down with alcohol pads. any...
  5. C

    anyone flown lately?

    i'm traveling out of the country on saturday and i'm wondering if anyone could give me a heads up on what to expect? i will of course be taking all of my meds in my carry on. do i have to put all that crap in a 8 by 7 inch ziplock bag? and will i have to remove it during the security check...
  6. C

    anyone flown lately?

    i'm traveling out of the country on saturday and i'm wondering if anyone could give me a heads up on what to expect? i will of course be taking all of my meds in my carry on. do i have to put all that crap in a 8 by 7 inch ziplock bag? and will i have to remove it during the security check...
  7. C

    happy birthday kiel

    happy birthday rock star!!! i hope that you had a great birthday... <img src="i/expressions/beer.gif" border="0"> laura
  8. C

    disposable nebulizers

    hey guys, i'm SO against disposalbe things, but i'm thinking of getting some disposable nebs for my trip to costa rica. we all know what a pain it is to travel with CF! i'm hoping this will make it a little easier. my question is, how do i know i'm getting a good one? i found a site that...
  9. C

    suggestions?

    well, my pari pro neb ultra ii DIED last night. i think it was no longer creating enough air pressure to work properly. *sigh* i called Pari. they do not repair only replace these models (can someone say "they don't make 'em like they used to!") i have to send in my old one, they test it...
  10. C

    Acapella Choice

    i'm finally getting around to ordering an acapella. i got a lot of good information off of old threads on here, but i wanted to check in that this is what people are still using? i'm going to check and see if my clinic ever has them to give away but i am doubtful. other than that, i am...
  11. C

    what the H is going on with my neb compressor?

    here's the situation: i have a pari proneb ultra ii that is no more than 2 months old. i have a bunch of neb cups that i use that are at most coming up on 5 months old. (i know you are supposed to replace these every 6 months.) my problem is, when i first turn on my compressor, it sounds as...
  12. C

    allergy testing & question about shots

    hey guys, honestly, i am not trying to toot my own horn here, but i put so much time into this post on my blog last night and then there were a bunch of new blogs today so it got knocked right off the lilst of recent blogs! for those of you interested in reading about my experiences getting...
  13. C

    medical supply company

    i'm unhappy with the company that i've been ordering me neb compressor filters, neb kits, and attempted to get a new compressor through. anyone know of a good national (U.S.) company? i also want to get an acapella, so it would be great if they carried those, too. thanks.
  14. C

    question about stopping some of my medications

    i am going to see the allergist for the first time next week. they sent instructions saying that i am supposed to stop some of my medications that may interfere with my allergy testing. for me, these include: advair, flonase, allegra, and albuterol. i think this is going to be rough...
  15. C

    how many mL in a teaspoon?

    how many mL are in a teaspoon? i ask b/c my mucomyst rx is written to do 5cc's 3 times a day. and, a cc is equivalent to a mL, right? ...i know, i know, how could i get to be 28 w/ CF and ask that? <img src="i/expressions/face-icon-small-tongue.gif" border="0">
  16. C

    same filters for Pari Proneb ultra and ultra II?

    does anyone know if these two neb compressers take the exact same kind of air filters?
  17. C

    question for amy

    amy, i am reading back on all the recent mucomyst and NAC threads and i wanted to clarify something with you. if i understand correctly, you were on the NAC from Whole Foods for 3 weeks before you noticed a difference; then when you got on the stuff from Europe, the Bio-whatever stuff, you...
  18. C

    how are kelly (mynewfy) and sonia (ladybug) doing?

    <img src="i/expressions/face-icon-small-smile.gif" border="0">
  19. C

    What's the cost of your house cleaner(s)?

    i found these house cleaners. their ad in the yellow pages caught my eye because they said they do not use harsh chemicals. (no bleach, etc.) the stuff they use is better for the environment which is important to me personally and i also do not use those chemical cleaners because of my...
  20. C

    how often do you guys clean (wipe down) your vest?

    the guy from Respirtech told me to wipe off my unit, tubing and vest with a cleaning cloth every couple of days. as it is i can hardly ever remember to do it! he said that the equipment is an easy place for germs to accumulate from coughing during treatments, but are we really that contagious...
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